so afraid of MS or worse

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rm102691
Regular Member


Date Joined May 2009
Total Posts : 39
   Posted 5/11/2009 10:11 AM (GMT -6)   
i am new to the boards; i am a 46 yo female who has weird head numbness/tingly feelings in that area...usually on the left side near my jawline but it does travel throughout my head from time to time.....is this consistent with MS?? it does come and go, some days its not bad, some days its worse....hard to explain.  now i have a pain on the top of my foot - a sharp pain - of course this also makes me crazy with worry.... i'm petrified - i am having an mri this week; last year in february i had a clean mri, but i am so frightened.....can someone please help??

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 5/11/2009 10:57 AM (GMT -6)   
Hi and welcome to the board. Because ur symptoms are transient and not completely typical of ms I'd look more for this to be a form of migraine. Maybe question ur doc on this. Keep in mind that migraines can cause lesions as well and that lesions for ms are very specific in placement. Please do let us know how ur mri goes and continue to ask any questios u may have.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


rm102691
Regular Member


Date Joined May 2009
Total Posts : 39
   Posted 5/11/2009 11:11 AM (GMT -6)   
my symptoms don't last 24/7 but there are times when it happens daily....
i will ask the doctor, but they did rule out migraines already.....

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 5/11/2009 3:48 PM (GMT -6)   
Hi rm,

I deleted your other post. Please be patient - repetitive posts take up server space and are against the rules for that reason. I am sorry you are so scared. Please understand that we are not going to be able to diagnose you! MS is extremely variable. I can tell you this; what you describe could be MS, or it could be a whole host of different things. MS shares symptoms with meningitis, HIV/AIDS, lyme disease, migraines, anxiety and panic disorders, brain cancer/tumor, herniated discs, and more.

A few member describe transient numbness but most have permanent numbness. I am numb from my mid shins down. That never leaves or changes for me. I can have variaions in my pain level and sensory neuropathy but the numbness stays.

Common symptoms for MS are: fatigue, tremors, spasticity, vision issues, bladder and bowel problems, sleep disorders, numbness and tingling, cognitive problems, balance and vertigo problems, heat sensitivity, blindness and paralysis. With MS, you could have one of these or you could have many.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


rm102691
Regular Member


Date Joined May 2009
Total Posts : 39
   Posted 5/11/2009 5:03 PM (GMT -6)   
when you mention "numb", do you mean totally numb, or a feeling of getting novacaine?? because i'm not totally numb, its just a little sensation of numbing....

i'm sorry i took up space on the boards; it wont happen again..

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 5/11/2009 5:17 PM (GMT -6)   
You have hit the nail on the head...novacaine numb.  My skin is completely numb, I can get a blister, or a small cut and not feel it at all.  If someone steps on my foot I do feel that.  I do feet inspections each night on the edge of the bed before I go to sleep.  I have found blisters, splinters cuts bruises all that I didn't feel.  I once found a "made in china" sticker stuck to the arch of my foot!!!
 
I can still move my feet, I walk just fine, I just don't feel my skin.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


rm102691
Regular Member


Date Joined May 2009
Total Posts : 39
   Posted 5/12/2009 4:01 AM (GMT -6)   
so, you're saying you feel a novacaine numb? mine is a sensation of numb, kind of. its hard to explain. i still feel things...and lately i've had calf pain/tightness- it stays with me most of the day and i'm not sure if it has to do with a herniated disc that i have in my lower back; yet that symptom still scares me to death. i really don't know what to think - i'm very anxious and this is all that i think about. every little pain i get i think its related to ms...my doctor said ms symptoms peak to a certain level for a few days/week and then come down....can you give me an example since i didn't really understand her explanation....she said my symptoms don't sound like MS - and i don't know why i cannot just calm down until my doctors appt next week....

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 5/12/2009 7:24 AM (GMT -6)   

Well, let's see......I have permanent damage from MS, so there are things I deal with everyday and I will forever.  I have chronic vertigo and balance issues,  I have some cognitive stuff like word recall, I have the numbness that I already told you about, and I have some other junk.  I am pretty consistent with those.  I deal with them 24/7. I go along dealing with that and then I will "flare" or have an exacerbation.  That is an acute attack of infllammation.  It can mean a new lesion is forming or that I have inflammation at an old site.  I may flare for a few days, weeks, or even months.  Then the inflammation will cool a bit.  Ususally after a flare, I am left with new problems that are here to stay.  Those symptoms that stay are called residual symptoms. 

That is the best I can do.  I have some daily fluctuation but not much. 


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 5/14/2009 7:53 PM (GMT -6)   
Hi M,

My symptoms are not the same as Gretchen's but I agree with everything she has said about how the symptoms behave. I have one heel that is numb it has been exactly the same for years. Not more or less.

I have had symptoms come & then go & usually they go for good or at least 6 months or more. Not like you describe.
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.
Plant your own garden & decorate your own soul instead of waiting for someone to bring you flowers.
Know that you are strong, worthy and can learn & endure.

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