fatigue.....help

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guppy
New Member


Date Joined Feb 2009
Total Posts : 5
   Posted 5/11/2009 11:59 AM (GMT -6)   
I have had ms for over 10 years and the past few months have been terrible. My fatigue is awful. I have had all my blood worked checked over and over for low iron or anything else that may be causing this fatigue. I walk every day and try to stay as active as I can. I just feel like I am on my last leg at times. Does anyone know of anything herbal, non herbal, food I could eat or something I can do for this. My neuro has not prescribe me anything as of yet. Any help would be greatly appreciated.
 
Michelle 

Bamboozelled
New Member


Date Joined May 2009
Total Posts : 12
   Posted 5/11/2009 2:21 PM (GMT -6)   

I was diagnosed with MS last month and the fatigue is overwhelming at times, worse then any flu, even worse then when I had mono as a teen.

 

I’ve really tried to start eating a more healthy diet, never really paid it much attention before. I’m interested in ways to relieve the stress myself.


I am a perfecly good bad example


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 5/11/2009 4:08 PM (GMT -6)   
Hey guppy,

I am sorry to hear about the fatigue. Hang in there. Sometimes these things show up and then disappear again. I have heard that some have success with the supplement L-Carnitine. It supposedly has a postive effect upon the cellular mitochondria which is the mechanism that releases energy from the food we eat.

Provigil seems to be the med of choice for people with MS fatigue. Others say that a simple script of ritalin is effective. I knew one MSer that just drank coffee all day long.

You may want to avoid simple carbs as well...those carb crashes are miserable with MS. Good luck. Let us know how you are feeling.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 5/11/2009 5:23 PM (GMT -6)   
Monday
 
Hello Guppy:
 
As has been discussed many times on this board...fatigue is THE most dibilitating MS sympton.  And no one can understand the depths of our fatigue unless it is another MS patient.
 
I take Provigil...it kinda' helps...
 
Great luck.  John
 
...I like the moniker "guppy"
DX'ed June 21st, 1987
 


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 5/14/2009 6:29 AM (GMT -6)   
Hi Guppy,

I have had that awful fatigue. I think that a low fat diet with no dairy or red meat & bottled water seemed to help me but who can be sure. Also I later discovered that I was very allergic to fluoride so it might have been that. Like Gretchen said symptoms often just come & then go.

I am currentlydoing a diet cutting out all inflammatory foods - wheat, nightshades, legumes & eating lean organic meat and feel fantastic with heaps of energy?!

I think you just have to try a few things and see what helps you.

Good luck
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.
Plant your own garden & decorate your own soul instead of waiting for someone to bring you flowers.
Know that you are strong, worthy and can learn & endure.


dianna30
Regular Member


Date Joined Mar 2009
Total Posts : 90
   Posted 5/14/2009 11:31 PM (GMT -6)   
I take Pro-Vigil to stay awake, and it works pretty well for that as long as I am not too physically active.  I have discovered that with the medication I am fine all day to do homework (sitting at a computer) and some light physical activity, but if I try to do moderate activities all day long I will crash hard. For me I just have to find the balance of how much physical activity I can fit into a day without making myself sicker. The amount I can handle seems pretty depressing compared with what I could do pre-MS, but I guess we all have to readjust our expectations to fit our new version of normal. :)



Be joyful in hope, patient in affliction, faithful in prayer (Romans 12:12).

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