Hi Gretchen 1;
Thank you for replying so quickly. I have a GP that I see every week. He refuses to refer me to a neurologist, even after having physiotherapists write letters to him telling him that they can't help me and that they feel I need a neuro exam. Being in Canada, the way our health care works we need our GP to make a referral to see any type of specialist. Some GPs like mine worry about wasting time and resources. Mine will not send me to neuro until and unless an MRI comes back unclean. I had one brain MRI last fall that came back clean. With all of the symptoms I had been experiencing, and more so the onset of so many new ones in the last 2-3 years, my GP has told me that he cannot give me an official diagnosis and that we will have to continue doing MRIs until something shows up. In all of these years, this Doc has not even touched my body, checked my reflexes, nothing other than giving me a b12 shot as far as even touching me goes. Currently though, I am on a sick leave from work and I have accessed my benefits through work for long term disability. Thankfully the job of insurance companies is to get people back to work and in my case it means that they will go above my doctor and send me to independant medical specialists in order to determine the exact nature and level of disability. This will mean answers for me finally. Most people complain about insurance companies not leaving them alone, but in my case I am going to use this to my advantage and hope to finally get to the bottom of things.
My eyes have been jiggling around for a while now. It gets worse when I try to focus in on something, and is especially bad when I try to look someone right in the eyes. It's one of those symptoms I put in the category of "can people see this?" paranoia. When I finally get confirmation of my medical appointment through the insurance company, I would really like to get some input on the forum about how to be prepared for this new doctor, making sure I don't leave anything out. It's hard to explain this whole thing over and over again to different people. I want to make sure that I don't leave this one appointment without covering everything, and I pray that I get a referal to neuro because I know I desperately need help. My body does not listen to my brain anymore. I don't know what I will do if that referral doesn't happen.
That's a great idea Gretchen. I am going to start back tracking now to when I think symptoms began - starting with the weird eye episode in 94. I can even get the hospital records for that because it was the day after an eclipse which would have been May 11, 1994. Maybe bringing those records with me will help paint a better picture as well. I'll start from then and jot down everything I can recall up until this point.
I know what you mean about the anxiety and how it causes the medical profession to assume that anxiety means we're psycho somatic. I've heard that before. Meanwhile, they fail to realize that this painful process will cause depression and anxiety all on its own. I will make a dated list as you suggest, and very calmly go over it with the new doctor.