I was hoping to get answers regarding MS from people who are actually experiencing it. I am 31 and suffer from anxiety which has been multiplied because I am worrying about MS. I know this board cannot diagnose me, I am only hoping for answers to questions about the disease. I think with these answers and talking with my GP, I can put this fear to rest.
2 1/2 years ago, 6 weeks after the birth of my 2nd child, I started feeling a very dizzy/drunk feeling. I was a little wobbly when walking and thought I felt my left side of my boy (face and hand, foot) feeling slightly numb. I panicked and went to the ER because I was worried I was having a stroke. Nuerologist on call immediately said MS can appear after having a child (I think something with hormones?) and attending physician ordered a brain MRI to rule out stroke. The MRI came back clean and I passed all of the other tests in ER. Neuro wanted to admit me for observation but with a new baby along and nursing (baby couldn't stay) I decided to go home. Dizziness went away about 2 days later and when I say my GP she said what I experienced sounded more like a panic attack not MS. Since the Neuro said MS I have become obsessed with this disease and cannot let go of the fear that I may still have it even though my MRI was clean. Mostly because when I have something weird happen with my body, almost always in the possible causes section on internet searches, MS is always there which keeps bringing me back to the ER visit and the anxiety begins all over again. I constantly have this feeling like "what if I do actually have it but it was too early and did not detect a lesion on the MRI?". I know this must sound crazy to think this.
I also had back surgery 2 months ago. I wanted to mention that because I know that some of the same symptoms can occur with MS and Herniated Discs. I had a lumbar MRI 3 months ago and no lesions were found there either. I saw a chiropractor to help with the back issue (before the MRI and before I knew I needed surgery) and he did a neuro exam. I have developed SUPER fast reflexes and during a few of the balance on one foot excercises, I had trouble on one side. He said "we see this a lot with MS" and again begins this viscous circle. Just when I think I have myself convinced "no, I don't have this" I have a doctor or website mention "MS". That is why I can't let this go :(.
During this 2 month recovery from back surgery, I have started experiencing things like MAJOR anxiety (it was only mild to moderate before surgery, now I am seeing a therapist...sigh). The most annoying thing happening to me now is muscle twitches in my right forearm that can spasm every 10-15 seconds for, recently, as long as a day straight. I do not have vision problems, my balance is pretty good and I do not have any numbness or tingling. When I woke up from surgery at the hospital, I had my left arm muscle (between elbow and wrist) start contracting every time the leg bands (to prevent blood clots) would go off. This was gone the next morning and the surgeon did not know why this was happening. I panicked (shocking...I know) and started wondering if this was "muscle spacicity". In the same arm (only since the surgery) My pinkie and ring finger have a slightly numb feel that comes and goes. Surgeon said this could have been from the way I was positioned on operating table and said it could be Cupital Tunnel Syndrome. A woman I work with has a family member who has been diagnosed with MS and when I asked her what her first symptoms were she told me her only symptom was a finger going numb.
That being said...Here are my questions about MS......
When you have a lesion, will this cause a symptom where the nerve is affected on the spinal cord and the symptom will appear on a certain part of the body? How long does the symtoms usually last (days, weeks, Months?) I would think it would last as long as the lesion is present on the spinal cord. Do the lesions heal and then the symptoms go away?
With MS, is there at least one major indicator like Vision problems, balance problems, and numbness that would be present? Would this stay consistant and not come and go in a days/weeks time?
How severe are the symptoms typically (just mildly annoying or debilitating?)
Would any numbness that I would feel be complete numbness or partial?
Would any incontinince associated with MS be consistant, not just random?
Thank you to anyone who will reply to this. about 90 percent of me believes that what I am experiencing is due more to anxiety and not MS. But the other 10 percent just can not let this go after 2 doctors have mentioned this disease with me. Again, I am hoping that answers about this disease from people who experience it will calm my fears once and for all. When you reserch MS online it is not clear to the severity of symptoms and the symptoms can mean so many other things too. Do I have memory loss and fatigue...YES....but I also work 40-50 hours a week, juggle 2 young boys have a husband who works more than me, and can't sleep because I am worrying so much about having MS? LOL My GP has recently left the state and I have a physical in September (the earliest they could get me in, UGH) with a new GP. So, I will be discussing this all with him then and getting his opinion if I need to see a Neuro. In the meantime, here I sit wondering.
I am going back to bed now but hope that tomorrow I will sleep much better having answers!!