I need some advice

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babyk01
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/2/2009 3:05 PM (GMT -6)   
Hello I am new to this forum and to my surprise I am finding a lot of information that seems to pertain to myself! I will make this as quick as I can... I am 34 years old and about 5 years ago I had this strange episode where I would get dizzy and slur my speech as if I had been drinking. This would happen about 15 to 30 times daily. I went to the neurologist and he took MRI, MRA, and an EEG. He thought I ma be having small strokes. When all the test came back with no finding he said "well its probably stress". I went on with my life and it went away. Then I began to go into a major depression and have anxiety attacks. This is still present... now I have vertigo, blurred vision which comes and goes, PVCs, trouble swallowing, when I talk sometimes I can't find the right word for something as simple as "chair". Fatigue, pain, I pee a lot, stumble... the list is kind of silly stuff but when it adds up its strange. I am curious as to whether I should make an appointment with my doctor and ask him about the possibility of multiple sclerosis or am I just too sensitive?
Thank you,
Amy

GrizLeeB
Regular Member


Date Joined May 2009
Total Posts : 25
   Posted 6/2/2009 4:53 PM (GMT -6)   
Amy, I'm no physician, but my symptoms presented as difficulty swallowing, vision changes on the right, facial numbness on the right, big time vertigo (which I hate!), urinary leaking w/o me always knowing, and exhaustion.

Since it seems to take a miracle to get diagnosed, what have you got to lose by checking with your doc?

Good luck.

nursejenn1012
Regular Member


Date Joined May 2009
Total Posts : 104
   Posted 6/2/2009 5:55 PM (GMT -6)   
did your md check you for diabetes or low sugar??
God will Give me nothing i cannot handle--i just wish he didn't trust me so much


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3530
   Posted 6/2/2009 6:43 PM (GMT -6)   
You have gotten very good advice here.  The episode where you had dizziness and slurred speech off and on does not sound like MS.  MS symptoms don't typically come and go. 
 
For example, my presenting symptom was vertigo.  I woke up with it.  It did not abate and continued to get worse and worse until I could no longer walk.  I have since gotten some better but  have vertigo 24/7.  Another time, I developed numbness in my legs and feet.  I still have it.  MS is not usually on again off again.
 
Some of your more recent symptoms could be attributed to many different illnesses or disorders including MS.  I would definitely see a doctor.  Your current diagnosis of depression with anxiety will complicate things. 
 
I would NOT go to a doctor and request testing for MS.  You very well could get the brush off or have it attributed to your anxiety.  Just present your symptoms and see what they say.  Again, this could be caused by something else.  Below is a link that will explain the MS diagnostic process.  It is very informative.  Good luck and let us know how you are.
 
http://www.mult-sclerosis.org/diagnosingms.html
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


GrizLeeB
Regular Member


Date Joined May 2009
Total Posts : 25
   Posted 6/2/2009 8:15 PM (GMT -6)   
Gretchen shared: MS is not usually on again off again. and MS symptoms don't typically come and go.

I'm confused because everything I've read and a lot of what I've experienced is a lot of MS *DO* come and go. Tonight I was reading an article referenced in the MS References page, an article by Dr. Yarnofsky and in it he clearly states that symptoms come and go.

So now I'm baffled.... can you unbaffle me Gretchen? (Sorry if this is a hijack, I'm just being a sponge right now and want to make sure I'm absorbing the right stuff.)

nursejenn1012
Regular Member


Date Joined May 2009
Total Posts : 104
   Posted 6/2/2009 8:28 PM (GMT -6)   
when my symptoms first started they were present evey day. i had a neg mri, my symptoms lessened for a few weeks, then they came back, my symptoms are always present, just at different levels..., i have not been diagnosed with anything yet but my primary md is not convinced by the mri that its not ms, but i agree with gretchen, rule out everything first, lab work, just be persistant.
God will Give me nothing i cannot handle--i just wish he didn't trust me so much


babyk01
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/2/2009 9:03 PM (GMT -6)   
My symptoms of the dizziness and slurring happened everyday for about 5 months around the clock. I have been checked for diabetes and hyperthyroidism. I also was under the impression that the symptoms come and go. As I was looking on line my symptoms are very common symptoms... but as I put them together I was told by a friend of a friend to look up ms. Honestly it was the only thing I saw that could explain it.... I just want a doctor to listen to me a take me seriously. Mine sometimes just dismisses me and relates everything to my depression.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3530
   Posted 6/2/2009 11:05 PM (GMT -6)   
well I am certainly not a doctor nor am I an expert, but MS symptoms come from demyelination of the CNS.  When this occurs in MS, there is an abnormal immune response; the body attacts its own myelin, the myelin is damaged.  The immune response cools, at this point, there may be some re-myelinating.  When there is re-myelination, there is some healing.  This can cause some variation in symptom severity, however this is a slow process.  This would not allow for say, blurred vision that comes one day and leaves the next.  It also does not allow for vertigo for an hour or so. 
 
There is a certain ebb and flow to residual symptoms.  These still tend to be permanent symptoms but they can worsen with fatigue, heat, colds, stress, allergies or whatever.  I almost never have nerve pain upon waking but by 4 pm I have icy-hot feet everyday.  I can have increases in my ever-present vertigo.  If I subject myself to heat for over 30 minutes or so can drive my vertigo way up.  My vertigo and balance can become much worse if I am stressed or anxious.   
 
MS causes permanent lesions.  Very small lesions may re-myelinate enough to no longer show on an MRI.  I have never had this happen although I am sure others have experienced this.  None of my lesions have disappeared.  Most people with MS just continue to add to their lesion load.  Since MS lesions tend to be permanent, so do their symptons. 
 
I have a friend with MS.  He woke one day to very poor vision in one eye.  This progressed to no vision over the course of a few days.  He had no sight in this eye for about 4 days.  Then it slowly got better with some cooling and re-myelinating that occurs after a flare.  He can see out of that eye but has very poor color vision.  This now is the permanent residual symptom.  It does not come and go.
 
Obviously if you have read an article or articles stating that MS symptoms come and go then by all means perhaps they do.  I have read no such article.  My symptoms do not come and go.  That is my best attempt at "unbaffling" you.  MS is an extremely poorly understood disease.  You may have to decide for yourself what is "right." 
 
There are many, many MS mimics.  Please don't think I am telling you that you DON'T have MS.  However there are many other diseases that cause the same symptoms.  That is why it is so hard to get a diagnoses.  Some literally go for years before getting a diagnosis.
 
 
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


babyk01
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/2/2009 11:43 PM (GMT -6)   
Hi... my vertigo lasts for days it starts off somewhat slow (spinning) and then gradually gets worse. I have memory loss and confusion and have trouble finding the correct words for things. you said there are other diseases that mimic MS what are they?

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3530
   Posted 6/3/2009 7:37 AM (GMT -6)   
I posted the link above in my last post to this thread.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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