family member of ms patient

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

tommy one tooth
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 7/13/2009 11:23 AM (GMT -6)   
  I hear alot of support for the patients with ms, but my wife would like to talk to someone who is a family member.  She is having a hard time dealing with the fatigue I am having.  I just can't do much of anything anymore.  I own a business and just doing that takes all the energy out of me.  Sunday's are my only day off and I am so exhausted I don't want to do anything.  So we pretty much stay home. I know she has projects that we could do but I just can't.  We use to go to the mall or a flea market and walk around.  I don't even have the strength half the time to go to the hardware store.
Is there someone out there that could tell us how they handle this same situation?  My wife really wants to understand what is going on with me.  She is extremely supportive of my ms but I can only imagine how she must feel.  I know she really tries not to push me about this.

popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 7/13/2009 6:11 PM (GMT -6)   
Tommy,

Here, in Oz, there is a support group for carers run by the MS society. Ring your local MS society and they should be able to help you.

That fatigue is awful I had it for some years. It seemed to improve when I stopped drinking the local water (ours has fluoride in it and some people with MS are very allergic to it). I also eliminated fat from my diet (dairy & red meat) & all fried foods and it seemed to help. You could try for a bit and see if it helps. Now I can managed more fat so I think if you hang in there it might improve.

Love & Light
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.

"The past is history, the future is a mystery, the present is a gift."


tommy one tooth
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 7/14/2009 7:55 AM (GMT -6)   
Thanks popsi.  I will try that.

Arfanna
New Member


Date Joined Nov 2008
Total Posts : 11
   Posted 7/14/2009 8:20 AM (GMT -6)   

Hi

I am in a similar position - my other half has MS and the main problem is the fatigue

So I can certainly understand what your wife is goin through.  happy to listen to your wife if it helps

contact me at anna@equipped4life.co.uk

love


Anna xx


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 7/25/2009 6:29 AM (GMT -6)   
Saturday a.m.
 
Dear Tommy:   Love the "one tooth" moniker.
 
a) Fatigue is THE #1 bugaboo for all MS patients.
 
I take the drug Provigil a few times a day to try to combat the fatigue.....it kinea helps...
 
The fatigue is the main reason I applied for SS disabilpity.
 
And no one can understand the depths of our fatigue...unless you are another MS patient.
 
Have you discussed this with your Neuro?  Great Luck.
 
Retired since 2002,  John
 
 
DX'ed June 21st, 1987
 


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 7/27/2009 1:51 PM (GMT -6)   
Hi there, I have not been around veery much for the last coupleof months, but I am here today, and seen your post and wanted to respond to it...
 
A couple of years ago, I was going thru the same thing as you - severe fatigue that really does crunch one's life style.  When I became tired, which seemed to be all the time, my vision would go, Id get dizzy, absolutely no energy, so I layed out on the couch for most of the day...oh and my hands would start to tingle and become numb as well...
 
So after starting treatment, and a considerable amount of time, I began to notice and monitor and become familiar with some things that did trigger the fatigue.  Now what works for me may or may not work for u, but they might at the same time...;so here it is..
 
Reduce the fat in your diet....
 
Drink plenty of water, etc, as well, whole grains etc...
 
Become aware when u are too warm. I have problems, as with most other people with MS, in regulating body heat...sometimes I am too cold, which is OK, but sometimes I get too warm....sometimes I do not even know that I have become too warm, until all of my symtpoms have surfaced. so I have to sit back and think to myself, what is causing these symptoms to surface....and more times than enought it's because I am too warm....When u become to warm, or overheat, this REALLY brings on Fatigue, big time....so when I am not careful and this happens, I eliminate my self from the heat by a variety of fashions, and then take a nap to kinda recharge the battaries....
 
I know that this will seem crazy, and I know what you will be thinking, as you stated that you get soo tired that you are just done - but some moderate exercise...a walk in the park....I found that even when I did not think I could muster it, I made my self go for a walk, or something, and I could actually feel the fatigue begin to lift....I find that if I do this at least once a day, the fatigue is not so bad, and then becomes managable....yes there are days when no matter what I do, what I eat, etc...the fatigue is there and I have to just ride it out...but it has been proven that a little walking or something like that will in fact help lif the fatigue...
 
Just some tips that have worked for me....so watch for food intake, that u do not get too tired (tiredness bring on tiredness) take naps if and when u can, and do not get too warm
 
regards,
Gary

becky723
Regular Member


Date Joined Feb 2009
Total Posts : 31
   Posted 7/28/2009 9:03 AM (GMT -6)   
i find swimming makes me feel a whole lot better

skyehigh
New Member


Date Joined Oct 2009
Total Posts : 2
   Posted 10/13/2009 11:01 PM (GMT -6)   
Hey Im also A Partner of a newly Diagnosed Ms Sufferer!!! Would Love to chat if anyone wants to e-mail me
skye-high79@hotmail.com

Cheers

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 10/28/2009 3:15 PM (GMT -6)   
H there Skye, it appears that we travel the same streets - nice to see your post here - how are u and your partner doing - better I hope, send me an email when you get a chance - thanks
Gary

mnsweetie
New Member


Date Joined Nov 2009
Total Posts : 5
   Posted 11/8/2009 7:01 PM (GMT -6)   
I too would suggest your local Ms society. They offer a lot of assistance for care givers (family mbrs) even if it's just an ear you want right now.

A year or two ago I was really having some difficulty with fatigue to the point of needing a nap or being in bed a good deal of the time. He looked at my meds and found them to be a big part of the problem. Provigil and others can help for some as well. I'd suggest speaking with your doctor as well.

Good luck :)
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, August 16, 2017 1:30 PM (GMT -6)
There are a total of 2,856,134 posts in 313,369 threads.
View Active Threads


Who's Online
This forum has 155032 registered members. Please welcome our newest member, IFEELGOOD.
528 Guest(s), 13 Registered Member(s) are currently online.  Details
Notam, fadedaway, PeterDisAbelard., Gemlin, ppm guy, Mrs. Brady, Scaredy Cat, mpost, KittyJ, SharonZ, Stewvlle12, straydog, Tommyc


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer