MS when it is too early for diagnosis

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healing4us
New Member


Date Joined Jul 2009
Total Posts : 9
   Posted 7/19/2009 4:51 PM (GMT -6)   
Hi I am 33 years old and I have been battling something for the last 10 years.  I will list all of my sypmtoms allthough I know they may not all be MS related.  I have IBS which is turning into colitis and getting more severe.  Neck pain from the lower part of my head down past my shoulders.  Severe lower back pain.  Numbness and tingling in my hands and the majority of the time this happens in my feet.  Sometimes it won't go away for a few hours although it is the same feeling when you sit wrong and your leg goes to sleep.  Lower part of my back started going numb about 1 year ago.  I just did an MRI of the neck and because of the vertigo and numbness I didn't make it through the last 5 minutes.  I get vertigo but most of the time I feel like someone is pulling me to one side.  The first time this started I was pregnant and I lost my equilibrium completely and could not walk.  The vertigo since then has not completely gone away although I do have points of remission where it is not as bad.  Sometimes I vision goes funny and I feel like I can not see clearly not sure if it is blurred vision or not  but on days that I can see clearly it feels so good!  I do get double vision and sometimes I see things like flashed that are not there.  When outside and not looking at the sun I do see sun spots for awhile.  sometimes it will last a few hours upon coming inside.  I get so easily exhausted and that seems to be getting worse.  I get (not sure how to describe this)  almost like headache flashes it becomes really intense on one side then just lets up and then comes back.  The first migrane I every had scared the crud out of me.  I saw a small ring and then it go bigger and bigger and bigger until it was gone and my head hurt so bad after the rings went away.  My job requires a lot of thinking and I have to fake it some days because I can not concentrate.  I am very blessed and I work from home which allows me to work later if I am not well in the morning.  I can not tell you how blessed I feel to have this opportunity.  Is seems like the complications and sypmtoms each year a new one comes a long or the original ones get more intense when I have a flare up.  My head started tingling a month or so ago this has happened before but has not lasted very long this time I decided to look it up on google and MS popped up.  When I talked to my doctor about MS and we have looked for so many other diseases like Lupus and I could go on and on, the sypmtoms fit and a lot of it made sense.  For a second I thought could I really get some help but then I am now anxious that just like everything else the results will come back (that I am just crazy) (which I know I am not crazy)  My step mom thinks I'm looking for attention my husband thinks I'm lazy (which I am not and with EBV I can get extremely tired and I have to litteraly every day fight for my life.  I am a survivor and I will not surrender to any illness.  My favorite saying is I'd rather live on my feet than die on my knees.  My dad broke down the other day and told me he believed me that I never want to talk about how I feel and I try to avoid questions asking about my medical status.  He said people looking for attention tell the world so they feel sorry for them and this is not what I want.  I want to live and play with my children and go on bike rides and so forth.  I want to live point blank and so now I hope you understand but I feel like praying for the test to come  back with lessions so they can help me.  I am already living every day with these symptoms and if there was a way to get help I would be so gratefull but I am so scared that like everything else it will just come back negative and people will still think I am crazy.  How do you explain to people you don't feel well when you look like your healthy as a horse.  Granted on days I feel horrible I try to avoid people and then wait untill I am having a better day.  Well I'm just looking I guess from people with experience dealing with this disease if I am crazy or if this sounds like MS.  My doctor is already doing the tests but before I get the results I just want to see if these symptoms are close or if I am far fetched on this idea. 

healing4us
New Member


Date Joined Jul 2009
Total Posts : 9
   Posted 7/19/2009 4:52 PM (GMT -6)   
Oh and one more thing if it comes back negative could it be that it is still too early to diagnose.  They used a 1.5T MRI machine so now I am a little worried since they say the 3T is more effective at showing the lessions. 

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3524
   Posted 7/19/2009 9:23 PM (GMT -6)   
You are not off base to think that you might have MS. I have all my MRIs with a 1.5 Tesla maching. I have lesions showing up just fine. The link I have attatched illustrates the diagnostic process very clearly. Good luck.

http://www.mult-sclerosis.org/diagnosingms.html


Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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