Muscle Stiffness and Pain

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dianna30
Regular Member


Date Joined Mar 2009
Total Posts : 90
   Posted 7/26/2009 1:41 AM (GMT -6)   
I have been having a lot of trouble the last year or two with stiffness and pain in my muscles.  I have been mostly ignoring it, thinking it was just normal to have so many aches and pains, but lately I am not so sure.  I am only 30 years old, and I cannot sit for long periods of time without getting very stiff and sore.  If I sit through a whole movie without getting up, it takes me a couple of minutes to stretch out my muscles before I can stand up all the way and walk.  I am also constantly changing positions due to soreness and sometimes I have trouble walking because my feet hurt so bad.  Does anyone else have this problem?  And is it just another symtom of MS?
 
Thanks.

Be joyful in hope, patient in affliction, faithful in prayer (Romans 12:12).

http://diannaschnabel.blogspot.com/


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 7/26/2009 9:34 AM (GMT -6)   
Hey Di,
 
I would sure mention that to a doctor.  That sounds miserable.  It could be MS.  Do you take anythying for spasticity?  That might be the way to start.  Good luck.  I hope you are feeling better soon.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 7/29/2009 7:14 PM (GMT -6)   
Hi Di,

I have that problem with sitting and have found that sitting on a cushion really helps!!!! I sit on a cushion in the car and have one with air in it on the chair at my computer. I have started taking a liittle inflatable cushion when I go out and for the first time in years I can sit through lunch or dinner at a restaurant. In the past I had to get up and leave after about 1-2 hrs because I was too uncomfortable and thought it was due to spasticity. Even though I now have a baclofen pump which has taken away all the intense pain & somespasticity I still need the cushion if I am going to sit comfortab for any length of time.

Try it. Hope it helps you too!!! smilewinkgrin
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.

"The past is history, the future is a mystery, the present is a gift."


Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 8/6/2009 1:47 PM (GMT -6)   
I'm on RX Baclofen which only works if you work with it. Yoga or stretching is recommended while you are on this, it does not treat it helps YOU treat.
DX with Multiple Sclerosis June 16 2005
Tysabri August 07
Provigil/Baclofen


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 8/6/2009 7:35 PM (GMT -6)   
Thanks Buckeye,

Since the pump I have been told not do yoga anymore - too much twisting which can damage the catheter in the spine (which is at waist level).

Do you have an exercise that can stretch the legs & pelvis (with no twist). Do you think the warrior pose would help?
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.

"The past is history, the future is a mystery, the present is a gift."


Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 8/7/2009 3:40 PM (GMT -6)   
Oh ok just saw it listed. well I would go to a PT they would be able to tell you I wouldn't suggest anything I don't want to mess you up.
My dogs suggested a pump for me. Do you adminester drug yourself? Is it sticking out of your back?
I turned it down just because I don't know enough
DX with Multiple Sclerosis June 16 2005
Tysabri August 07
Provigil/Baclofen


Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 8/7/2009 3:43 PM (GMT -6)   
My dogs? No my docs is what I ment to say. ITouch it's great but picks words sometimes to make me look silly :-)
DX with Multiple Sclerosis June 16 2005
Tysabri August 07
Provigil/Baclofen


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 8/8/2009 12:37 AM (GMT -6)   
Buckeye,

I totally love my pump and it has given me my life back. I have a very low dose of baclofen in it (1/300 of the oral dose required) and it has stopped the intense continual pain I had from muscle spasms & also skin so sensitive I could scream. It has also improved the spasticity heaps so i seldom fall. Before I had the pump I could not move without pain and I could not sit or lie either because of the spasms. I did not know how to continue.

The pump is about the size of a medium tin of tuna & is implanted in my abdomen with a catheter threaded under the skin and thru to the spine where it delivers the baclofen. Nothing sticks out - expect the pump a bit at the begining & it gradually gets sucked in and now mine is only visible as a round outline under the skin. You only have to be careful with doing repetitive twisting movements (might kink the catheter) & you cannot deepsea dive. I get a refill every 6 months & the pump lasts 6 years & then you have to get a new one. It took me a few months to titrate the dose to what suited me best. The nurses adjust the dose by first doing a calculation and then pointing a thing like a mobile phone at my tummy reducing or increasing the dose by 10% each time. I find a comprehensive continuous dose is the best for me whereby I get the minimum during the day (8.00am to 8.00pm) because the baclofen makes me too weak and shaky. At night the dose increases because that is when my spasticity and pain was always the worst. It is wonderful I can lie peacefully in bed for the first time in years.

Here I it is all done thru the Pain Clinic at a public hospital & I only pay $ 25 per refill and nothing for the drs. My hospital insurance covered the cost of the pump & the hospital stay. I have had no problems at all. But it seems it works differently in the US & every other country I expect. I belong to a group called pumpsters@yahoogroups.com and they will give you all the gen. There are very few people with MS & just baclofen (which seems to be the most successful) in their pumps in the group and most of them have such complicated conditions that it makes me grateful that I only have MS.

If your drs recommended it I would look into it. If there is anything else you want to know ask away. I have had my pump a year and a half and am still euphoric to be pain free. smilewinkgrin smilewinkgrin
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.

"The past is history, the future is a mystery, the present is a gift."


Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 8/14/2009 2:28 PM (GMT -6)   
Wow I had know idea what was involved with pumps. I'm so glad you feel so well with it too.
I'm not sure if he was serious or not. I have spasicity but I'm on a low dose of bac. And asked to increase my dose up but that is when he informed me that you have to stretch to see any benefit that doesn't work on it's own. It's not my biggest problem. Being tired all the time it my biggest issue.
Yup US healthcare is terrible. You got a good deal in AU
DX with Multiple Sclerosis June 16 2005
Tysabri August 07
Provigil/Baclofen


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 8/15/2009 6:06 AM (GMT -6)   
Yes, I am grateful every day for the pump but you are right, it is not something to get unless you are desperate. Especially as the guys on pumpsters say it costs US$36,000,00 to have it put in plus US$200.00 a visit for refills. Also you must be happy with your PM dr as you land up "married" to him. Still it is nice to know its there if you really need it. I think that my spasticity went thru the roof when a dr told me to stop exercising as that was making the spasms worse. Well I stopped for two weeks and could never do the exercises again cos I had got so stiff and just went on getting stiffer and stiffer. It was like I was on a rack. If you are doing exercises just keep doing them as long as you can.

I was also told that if you try the high dose of Baclofen (for spasticity) you must do PT as well. But I was allergic to even a low dose of oral baclofen hence the pump. It is particularly recommended for people who are allergic as I was told I am getting 1/300th of the oral dose. It is more effective because it goes direct to where it is needed and does not flood the whole system with the drug. I am now taking LDN which I have found to be helping the spasticity a lot (though I still need the baclofen as well). My MS is worst on my left side and since I started on the LDN I have noticeably less spasticity in my leg, spine and my left hand is more dextrous so I am excited where I go.

I found I lost that terrible fatigue when I went on a low fat diet. I do have some dairy now but fried food is the real killer for me. Others on this site have mentioned a drug that helps them.

Hope you find somthing that helps.
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.

"The past is history, the future is a mystery, the present is a gift."

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