I totally love my pump and it has given me my life back. I have a very low dose of baclofen in it (1/300 of the oral dose required) and it has stopped the intense continual pain I had from muscle spasms & also skin so sensitive I could scream. It has also improved the spasticity heaps so i seldom fall. Before I had the pump I could not move without pain and I could not sit or lie either because of the spasms. I did not know how to continue.
The pump is about
the size of a medium tin of tuna & is implanted in my abdomen with a catheter threaded under the skin and thru to the spine where it delivers the baclofen. Nothing sticks out - expect the pump a bit at the begining & it gradually gets sucked in and now mine is only visible as a round outline under the skin. You only have to be careful with doing repetitive twisting movements (might kink the catheter) & you cannot deepsea dive. I get a refill every 6 months & the pump lasts 6 years & then you have to get a new one. It took me a few months to titrate the dose to what suited me best. The nurses adjust the dose by first doing a calculation and then pointing a thing like a mobile phone at my tummy reducing or increasing the dose by 10% each time. I find a comprehensive continuous dose is the best for me whereby I get the minimum during the day (8.00am to 8.00pm) because the baclofen makes me too weak and shaky. At night the dose increases because that is when my spasticity and pain was always the worst. It is wonderful I can lie peacefully in bed for the first time in years.
Here I it is all done thru the Pain Clinic at a public hospital & I only pay $ 25 per refill and nothing for the drs. My hospital insurance covered the cost of the pump & the hospital stay. I have had no problems at all. But it seems it works differently in the US & every other country I expect. I belong to a group called firstname.lastname@example.org and they will give you all the gen. There are very few people with MS & just baclofen (which seems to be the most successful) in their pumps in the group and most of them have such complicated conditions that it makes me grateful that I only have MS.
If your drs recommended it I would look into it. If there is anything else you want to know ask away. I have had my pump a year and a half and am still euphoric to be pain free.
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.
"The past is history, the future is a mystery, the present is a gift."