Numb from the Neck Down

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Bytemi
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/27/2009 11:23 AM (GMT -6)   
I have been diagnosed with MS since 1996 and have delt pretty well with the wonder symptoms that come along with it.  Start on Saturday, my entire body from the neck down has been numb.  I don't notice it that much when I am sitting or laying down, but when I get up and walk there is a great amount of pressure in my upper adbomen and ribs.  The numbness goes up into my chest and down both legs.  I have never experinced this before and I was wondering if it is normal.
 
The nurse that I have been working with for the last 13 year apparently retired last week and her replacement has me waiting for a doctors visit, this has never happened either.  Can anyone tell me if this is normal?

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3529
   Posted 7/27/2009 3:46 PM (GMT -6)   
Bytemi

This sounds awful!!! I can't imagine this being normal. I would either see or talk to your doctor asap. Good luck! Please let us know how you do with this.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Bytemi
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/27/2009 4:24 PM (GMT -6)   
I finally made it to the doctor this afternoon and apparently it is MSHugs.  All of the muscles in my body are in a perpedual spasm.  I start a course of steroids tomorrow.  At least I know what it is.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3529
   Posted 7/27/2009 7:08 PM (GMT -6)   
Well I am glad the doc is on top of this.  Good luck with the steroids.  I hope you feel better real soon.
 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Macs Mum
Regular Member


Date Joined Jun 2009
Total Posts : 46
   Posted 7/29/2009 5:11 AM (GMT -6)   
Hi Bytemi!

Just dropping in to let you know that around the first week of June, I experienced symptoms similar to yours, except I was experiencing numbness from just below my breasts all the way down. The pressure on my chest was unbearable, it felt like I was wearing a tight bra..even when I wasn't wearing one. I ended up going to the ER on night just to make sure my heart was OK, and thankfully it was. I found out it was the MS hug...but I had to wait for the confirmation that I had MS before I began steroid treatment.

I got diagnosed on July 1st, and I started my IV steroids the next week, and they made all the difference in the world! I hope your steroids kick in quickly and make you comfortable again.

MM




They're not brain lesions, they're 'BRIGHT IDEAS'


Bytemi
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/29/2009 6:55 AM (GMT -6)   
Are you relieved for the diagnosed? It is an interesting experience. Day two the steroids is down, don't really see any change but I am hopefully that it will kick in soon. :D Good luck and if you have any questions let me know.

Macs Mum
Regular Member


Date Joined Jun 2009
Total Posts : 46
   Posted 7/30/2009 4:09 PM (GMT -6)   
Hi Byemi!

The MS diagnosis did bring some relief, as I had suspected it for sometime, but the doctors ignored me. My numbness started about six weeks after spinal surgery, my initial thought was that the surgeon had nicked my spinal cord...luckily he didn't. My torso is completely numb free now, its just my hands, I have numbness in the pinky and ring fingers on both hands, that goes up the outside of my arms....annoying but I'm learning to live with it.
They're not brain lesions, they're 'BRIGHT IDEAS'


Bytemi
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/30/2009 7:04 PM (GMT -6)   
I was relieved when I got my diagnoses also. Unfortunetly 13 years later and it appears that the steroids are not working. I have had 3 treatments and I see no difference. I really hope this gets better soon. I want to feel my daughters and husbands hugs again. I know it seems like a simple think, but I really miss the human contact.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3529
   Posted 7/31/2009 9:41 AM (GMT -6)   
Bytemi,
 
It took several weeks for me to feel the anit-inflammatory effects of the steroids.  Are you taking any other treatment for MS?  My neurologist explained that the steroids don't lesson any disability or permanent symptoms we may be stuck with once a flare begins.  She says that by the time we start to flare the damage has already begun.  The steroids treat symptoms only and help us to feel better faster.  Where we end up after steroids is where we would have ended up eventually anyway, it just speeds that time up a bit.
 
I hated the steroids and so this conversations became the results.  I was asking if I had to do steroids.....did it really make a difference.  Again, she indicated that it can help relieve symptoms only.  It is not an actually disease treatment.
 
Disease treatments are currently Rebig, Betaserone, Copaxone, Avonex, Tysabri, and Novantrone. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Bytemi
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/31/2009 9:47 AM (GMT -6)   
I take rebif and I understand how the steroids work, I just have never had the MS fight so hard against them in the past. Usually by day 3 I am feeling 10 times better and ready to conqure the world, I guess that is just not the case this time. They have extended my steroids another 5 days, so I guess we will see if something changes.

Thank you for the input, I appeciate the information.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3529
   Posted 7/31/2009 11:36 AM (GMT -6)   
Wow!  Five more days!  That is a lot.  That should do it for sure.  I did five days total but I didn't really feel the relief until a couple of weeks after.  I hope you are feeling better real soon.   I am glad to hear you are on rebif.   Keep us posted.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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