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Macs Mum
Regular Member


Date Joined Jun 2009
Total Posts : 46
   Posted 8/13/2009 3:45 PM (GMT -6)   
Hi All

I saw my neurologist on Wednesday and he seems please with how I am going with the copaxone shots, and doesn't want to see me for another six months unless 'something' happens...which it won't!

He told me I can cancel my appointment with the neuro-psychiatrist as I am no longer experiencing chest discomfort after my shots. He was just worried that the shots were causing me some anxiety, and maybe they were in beginning, as everything happened so fast, but now I am injecting and handling them like a 'pro' LOL

Like everyone else, I am having good days and bad days, but at least I am starting to have more good ones, which I haven't had in a long time.

I am considering taking legal action against my neurosurgeon for performing spinal surgery that wasn't needed. I sent him a rather nasty letter telling him that I wasn't going to be pay the outstanding bill he sent me for my spinal surgery ($2800 AUD). He called me last Friday to tell me he was upset about my letter (I basically accused him of negligence) as he thought we 'had a good rapport' I told him I was upset that he missed my dianosis and I was also upset that I had a spinal surgery that could have been avoid. It the report that my neurologist sent him, confirming my MS diagnosis, he said ' she was investigated for disturbed sensation in 2006 and 2008, and on both occasions the neurologist suggested further investigation, but apparently these were never undertaken'

My neurologist said had further investigations been done, my MS definitely would have been diagnosed via MRI , and I would have started 'preventative treatment' back then. The MS society in Sydney has it's own lawyer, so we are waiting on the clinical notes from my neurosurgeon before we decide on how we want to proceed.

Well that's about all from me for now.

MM



tongue
They're not brain lesions, they're 'BRIGHT IDEAS'
Diagnosed with RRMS July 1st 2009


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3523
   Posted 8/13/2009 4:54 PM (GMT -6)   
He was upset because you wrote a letter??????  Oh man....what about that bill?  What about a surgery that was not needed?  You go girl!  This guy needs some sand in his swim suit!  Grrrrrrrr.  Let me know if you need help.  I will stagger on down under and help you kick some Dr. butt!  It might take the two of us, but we can do it. 
 
I am glad the copaxone is going well now.  It has really helped me a lot.  I just got my yearly MRI and I have no new lesions!  I am jazzed.  That is after nearly 3 years on it.  It can take a while to do its job.  Keep the faith!
 
Thanks for posting!
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Macs Mum
Regular Member


Date Joined Jun 2009
Total Posts : 46
   Posted 8/13/2009 8:23 PM (GMT -6)   
Hi Gretchen

Come on down, the more the merrier I always say! tongue

He wasn't mad about me not paying the bill, he was mad at the accusations in the letter. I told them they weren't accusations, as I backed up everything I said to him. He went on to say he thought I had 'this' or 'that' so I interrupted him and told him I didn't care what he thought I had because we now know what I have ....and I suggested MS to him 2 years ago. He said it would have been 'premature' to investigate for MS back then.... Whereas my neurologist thinks otherwise. I have a feeling this is going to get interesting.

He then said 'well how's your back pain?' I told him 'it's still there...I still get it, but I never complained to you about back pain, I complained about nerve pain in my legs and feet, there's a big difference' As if he was going to tell me he did a favour by removing the screws that never needed to come out.

Great to hear that your yearly review showed no new lesions!!! How many do you have, if you don't mind me asking? Approx how many flare ups, if any, have you had in the past three years while on copaxone?

Speak soon
MM
They're not brain lesions, they're 'BRIGHT IDEAS'
Diagnosed with RRMS July 1st 2009


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3523
   Posted 8/14/2009 8:43 AM (GMT -6)   
Hey MM,
 
I have 7 lesions so far.  I have four on my brain:  three are cerebellar and one is parietal.  I have three on my spine. They are all clustered around the T 7 to T 10 area.  I had three horrendous flares in my first year, actually in about ten months.  I have since had none. 
 
I had no symptoms early on.  My MS hit all of a sudden and it hit very hard.  My initial prognosis was not good.  My neuro was watching and suspecting very progressive MS.  I changed EVERYTHING.  Fear does that.  I lost over 40 pounds.  I now exercise regularly and eat well (with some slips of course).  I stay as active as I can, working full time and having lots of hobbies and passions for life.  I treat my symptoms as aggressively as I can with whatever I can so that I can keep going. 
 
I have an outstanding MS specialist and a very good PCP that work together.  I consider myself very blessed and I try to stay very postive.  I could stand to lose more weight and am working on that.  I take it one day at a time.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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