Does this sound like MS?

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jeleigh07
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/22/2009 1:14 PM (GMT -6)   
Hi Everyone,
 
I have recently been dealing with burning/prickling (paresthesia) in my hands.  I was doing research to figure if I might have carple tunnel, tennis elbow, etc. and I came across MS.  As I was reading the symptoms I started realizing that I had ALOT of them.  I have had the paresthesia in my feet over the past few years.  I had a back surgery to relieve my sciatic nerve, but the Dr's could never figure out the paresthesia.  In January I lost my ability to push out my urine.  What I mean by this is I can let it trickle, I just can't make my bladder constrict and force it out.  I just assumed that was related to my back problem by way of a pinched nerve.  I have been struggling with hot flashes for about a few years as well.  I am 23.  The Dr's have run every test imaginable, including early menapause, and have come up empty.  I have noticed that I get them whenever I am in a high stress situation.  For example, I was driving yesterday and it started raining so hard I couldn't see at all.  It was a wreck waiting to happen.  All of a sudden my legs felt really heavy and I was having HORRIBLE hot flashes.  I have been struggling with fatigue, indigestion, and sexual dysfunctions as well.  Pregnancy and Birth control pills have been suggested as culprits, but my husband has been deployed for 3 months and I have been off of the pill for 5 months and I still have the symptoms.  Lastly, over the last four months I have noticed that my eyes are starting to get blurry, and if I have been looking at something for a long time I get eye pain.  I sound like a hypochondriac =).  I do NOT want it to be MS, but yet I am so sick of having random issues and Dr's thinking I'm crazy.  My biggest questions is does it sound like too many symptoms to be early MS? Also, the military does not have the best health care for dependants, so are there any military spouses out there that have some experience with MS and the military? Any feedback would be great.  Thanks

tkeys
Regular Member


Date Joined Jun 2009
Total Posts : 31
   Posted 8/22/2009 7:31 PM (GMT -6)   
I am also 23, a military spouse, and they thought I had MS at one point. (I since have been diagnosed differently). My suggestion would be go to your PCM and push for a referral to a neurologist, but do your research before about who is in Tricare network and make sure it's a good neuro or an MS specialist. I am near KS and there is an MS specialist here that takes tricare. My first neuro they sent me to was a QUACK! He said I had anxiety and put me on paxil. (My husband was gone too) Within a week I was in a wheelchair being taken into the hospital nearly on my deathbed. Just look into who you want to see, then tell them your neuro symptoms and they will most likely give you a referral and when you go to the referral office tell them who you want to see. With Tricare you have to be very forward about your care or else it will suck. I got lost in the shuffle and disregarded at first, now they take me serious bc it nearly killed me!! If you need help there are usually patient advocates that are more than willing to help if you go through the proces and you don't get what you want or you don't feel like you are being taken seriously. I just had to stop trying to be nice and stand up for myself when I was really sick and say hey I NEED this and I NEED it done NOW! It usually gets done faster then :) Good luck. If you need any help, I've jumped through the hoops of the system and I can help. God bless!
23 years old;
Dx: Acute Disseminated Ecephalomyelitis (ADEM) Feb 2009
Meds: Provigil, Nexium, Lexapro, Adivan, Lopressor, Baclofen, Topomax
Did 1000 mg IV solumedrol for 8 days then weened for 1 and a half months from mid Feb-late March
 

A merry heart does good like a medicine; but a broken spirit dries the bones.

Proverbs 17:22

 

"This too shall pass."


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 8/24/2009 10:58 AM (GMT -6)   
jeleigh07, I don't know if you have considered Lyme disease as a possibility, but I would strongly suggest that you look at the forum here for Lyme under newbie near the top for a list of symptoms.  You should know that if you have been tested and it was negative, the test are VERY unreliable.  Take Care, KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009


dianna30
Regular Member


Date Joined Mar 2009
Total Posts : 90
   Posted 8/24/2009 2:12 PM (GMT -6)   
jeleigh07,
 
I am sorry that you are going through this.  You may have a long journey ahead of you.
 
I am a military dependant, recently diagnosed with MS.  Everyone's experience with MS is different, but mine hit me really hard from the beginning.  I skipped the mild phase altogether, and had many symptoms right away. 
 
You do need to see a specialist in order to be investigated for MS.  You need to keep going back to the doctor and be persistent until they refer you to a specialist.  It's a pain to have to get referrals for everything, but nice to have Tri-Care foot the bill.  Also, you should ask Tri-Care whether you can switch to a civilian primary care physician.  I was able to switch because we live 35 miles from the base clinic.
 
I know your husband is military, but have you ever served?  The reason I ask is because if you are diagnosed with MS within 7 years of being discharged, you are eligible for disability through the VA.
 
Good luck with your search for answers, and God bless.

Be joyful in hope, patient in affliction, faithful in prayer (Romans 12:12).

http://diannaschnabel.blogspot.com/

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