Can I pick your brains about MS meds?

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WildRose
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/8/2009 9:24 PM (GMT -6)   
Hi everyone!
 
My sister was diagnosed with MS about 7 years ago, my mom has had it for at least 35 years--but neither seems to know much about treatments other than the ones they have been on for a long time. 
 
I know that autoimmune disease research has been booming with new meds these past few years, since one of my daughters has ITP and has gotten a 7 year remission with Rituxan.  So I'd thought I'd take a shortcut and find out from those of you who know:  what are the most promising meds for MS with a proven track record?  What about newer meds?
 
Sis is 47, has relapsing-remitting MS with relatively mild symptoms; she's mobile, but symptoms are mostly in her legs-tingling, prickling, tight-feeling.  Her most recent MRI shows many new plaques, and her ventricles seem to be getting larger which has implications for her memory functions, and she's scared.  I thought there was a new med that specifically and pretty successfully avoids these new plaques?  She's been taking Copaxone and the doc is thinking of switching her to Rebif.  She is getting quite tired of shots, but wants to know the side effects of Rebif before she signs up for it--anyone??
 
Mom has relapsing-remitting MS with relatively mild symptoms; she has foot-drop and had an episode with blindness years ago, but she lives independently, drives and is mobile with a cane (at 78) and still knits, though she avoids dropped stitches mostly by visual feedback rather than by feel.   I'm not real sure but I think she was taking interferon??  And steroids for exacerbations... 
 
Thanks for being here!              Ann, Susan's sister

dianna30
Regular Member


Date Joined Mar 2009
Total Posts : 90
   Posted 9/9/2009 8:57 PM (GMT -6)   
WildRose,
 
I was just diagnosed with MS in February of this year and my neurologist, who is on top of the new trends in medication, advised me to start on Copaxone.  It seems to be one of the preferred choices, but if your sister is getting more plaques/lesions, she may need to look into switching to a different medication.  Also, Copaxone is supposed to be coming out in a pill form in 2010.  Hope this helps, sorry I can't tell you anything about Rebif. 

Be joyful in hope, patient in affliction, faithful in prayer (Romans 12:12).

http://diannaschnabel.blogspot.com/

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