back and i'm scared again.....please help !

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rm102691
Regular Member


Date Joined May 2009
Total Posts : 39
   Posted 9/25/2009 6:40 AM (GMT -6)   
hi
i am a 47 year old female and have been on this forum before with fear of having MS or even something worse...

a new symptom is baffling me - every morning after i get out of bed, i get a numbing sensation on the left side of my abdomen - it lasts maybe about 5 minutes, maybe less - i usually notice this once i get out of bed, or am standing - when i sit, i don't feel it as much.....it stays away sometimes for a while, but then sometimes it just comes and goes throughout the day - but like i said before, it doesn't last very long when it does happen. i am nervous; what do you think? in the past i've also had episodes of parathesia on my face/head, arms legs, etc....those symptoms have gone - but not completely; there are days i feel fine, but it doesn't seem to last - just feels like there is always a symptoms i'm worrying about. i've had an mri from the neurologist - that came out normal - i asked him about what the report meant, by saying " a demyelinating disease process could have this appearance" because it mentioned non specific white lesions......he said that statement about "demyeliniating" was incorrect because lots of radiologists have been using it, and neurologists said that statement was giving patinets unnecessary anxiety, so he apologized if it cause me anxiety, which it did. i haven't seen him about this new problem; i feel like a fool going back - but i did tell my PCP and she said sometimes your body acts in strange ways by having these types of symptoms - i don't know if taking a higher dosage of niaspan is causing this new symptom - i will ask the cardiologist today - this is the first time i had such a bizzare symptom. thanks for responding !

BobbyGrace
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/28/2009 9:01 AM (GMT -6)   
cool  t's so tough to be having these symptoms and not know the cause.  My Multiple Sclerosis was diagnosed in 2001, after a two year period of diagnostic tests.  I did have some lesions on my MRI, but they were thought to be attributed to TIAs (mini-strokes). After additional symptoms arose, my neurologist performed a spinal tap (lumbar puncture).  It came out negative.  The next year, my symptoms had not improved, so I had another spinal tap performed by a radiologist.  This one came out positive for M.S.  So, I had my diagnosis.  You might consider asking for a spinal tap, which can be definitive for M.S., combined with the symptoms you've been having.  (My opinion only).  Unfotunately, diagnosis for M.S. is difficult, and takes time.  I can tell you that I actually felt relieved when I received my answer.  I wish you well . . . I will never forget the period of time when I didn't have a diagnosis.  Yes, it was scary!  My heart goes out to you; hang in there.  If you do get a diagnosis of M.S., I recommend immediately taking a  disease modifying drug.  Many choices are available.  Your neurologist will likely discuss your options with you, making recommendations.  While M.S. has no cure, the treatment can be helpful in a life-changing way!  It's kept my symptoms at a minimum and has slowed my progression.  I am so grateful for the treatment I am taking!   turn   
I wish you well.  Please reply if you believe I can help you in any way.  After all, we're all in this together, and that alone has brought me some peace and assurance.  Blessings, 

dianna30
Regular Member


Date Joined Mar 2009
Total Posts : 90
   Posted 10/7/2009 10:22 AM (GMT -6)   
rm-
 
If you don't trust your doctor's reading of your MRI results, take a copy of it to someone else to read.  My second MRI showed cerebellar atrophy and I asked three different neurologists about it without getting a straight answer.  Four years later, after I was finally diagnosed with MS, a neurologist admitted to me that MS can cause cerebellar atrophy.  So if you think there may be something to your MRI results, ask someone else until you get a satisfactory answer.  Also, I went undiagnosed for so long because I didn't actually have lesions on my brain, but I do have them on my cervical spine...so you may want to consider trying to get a spinal MRI just to make sure.

Be joyful in hope, patient in affliction, faithful in prayer (Romans 12:12).

http://diannaschnabel.blogspot.com/


BobbyGrace
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 10/7/2009 6:48 PM (GMT -6)   

Hi, m -

I totally agree with the person who last responded to you. Do the "neurologist hop" until you get someone who makes sense and takes the time to order the tests that you NEED.  Don't give up . . . you deserve much better than what you're getting.  THere are scores of us who have had similar experiences.  The road to a definitive diagnosis is rarely without HUGE potholes, but eventually, if you keep on keeping on, you WILL get your diagnosis.  Stay strong, friend.  Love and prayers,  BG

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