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nursejenn1012
Regular Member


Date Joined May 2009
Total Posts : 104
   Posted 10/2/2009 6:31 PM (GMT -6)   
So, working at a hospital I see drs every day.....I saw a neurologist and asked him if there was any correlation between migraines and ms, he does not know my situation, and i had asked him about some other symptoms, not telling him i had all these symptoms. He told me migraines have no association with ms, and when people come in with many symptoms its because of anxiety, thats all. I was sooooo irritated. I felt very upset, i know my symptoms, i dont feel as i have any anxiety. So hes telling me, im falling, having muscle spasms, flashes of light, migraines are all anxiety and self caused........................??? So glad im going out of the area for a good dr.....
God will Give me nothing i cannot handle--i just wish he didn't trust me so much


dianna30
Regular Member


Date Joined Mar 2009
Total Posts : 90
   Posted 10/2/2009 10:15 PM (GMT -6)   
I began having migraines about two months before my MS symptoms started, and I tend to get them more on days that my MS is flaring.  As for the 'anxiety,' I think you will find that many of us have fought against that accusation before receiving an accurate diagnosis.  Sorry, I know the process is a pain.  I hope you get some answers soon. 

Be joyful in hope, patient in affliction, faithful in prayer (Romans 12:12).

http://diannaschnabel.blogspot.com/


michele17
Regular Member


Date Joined Jun 2009
Total Posts : 21
   Posted 10/3/2009 8:43 AM (GMT -6)   
I have migraines as well. They started with my diagnosis of m.s. in 2002. They usually accompany a seizure, which is my m.s. flare! m.s. with epilepsy is not very common.( lucky me) It is initiated by fatigue,stress, a raise of body temp.-usually during exercise.
My m.d. has prescribed Relpax for my migraines. As soon as I start to seize I take both Relpax and ativan.

diagnosis 2002
avonex -7 years
copaxone- since march

your m.d. should call mine-Dr. Brian Apatoff- in N.Y.C.

mmichele17

tkeys
Regular Member


Date Joined Jun 2009
Total Posts : 31
   Posted 10/3/2009 9:35 AM (GMT -6)   
Nurse Jenn (and all others who have been told they have anxiety),
 
I have my own anxiety story to share, I think it is a gross negligence of patient care.  The first neuro I ever saw (granted I did not know what a neuro exam consisted of, nor what I should expect out of this visit) told me within 5 minutes the I had anxiety and prescribed Paxil. He told me I should look at myself everyday in the mirror and say "I am normal and healthy!" HA! I brought in a hand written list of symptoms (barely legible at the time) that consisted of: my entire left side of my body was numb, motor skills were bad, gait was off and I was nearly falling when I would walk, could not drive, had a low grade fever, handwriting had changed, emotional lability, slurring speech, questionable bug bites on my left side (later determined to be shingles), and I'm sure there are others I have forgotten by now. Anyways, he did NO neuro exam, he looked at passed blood work I had done and said I was stressed and that I was normal and young and healthy. HA! Within 3 or 4 days I was unable to walk unassisted and my mom drove from IN to MO to get me.  I had quite a few falls before my mom could get me to my family doctor and he said get her to the ER that neuro did not take her serious. This girl needs an MRI. He looked at me and said "I don't know what you have, but it's not anxiety so I will find out what it is." After an MRI, I was initially thought to have MS, then went to a NEW neuro, and he diagnosed me with ADEM.  I spent a month in a rehab hospital because at that point it had gotten so bad that my brain stem was covered in lesions. I had to re-learn to walk and the everyday things. I spent the next 4 months in outpatient therapy after the hospital.  I just recently saw another neurologist who is an MS expert, and she re-diagnosed me with brainstem encephalitis. She said I had very severe lesions that hosed my brain stem.  She said it was amazing that I was sitting in her office doing what I was doing.  She expects me to be recovering for up to two years from the attack.  She said if in two years I have no symptoms I could be considered the luckiest person on the planet.  I still can't help but wonder if it would have gotten to that point if the first neuro would have given me an MRI instead of diagnosing me with anxiety and letting the lesions eat up more of my brain... Still I just thank God for bringing me through the ordeal how he has! He is awesome!  Good luck to all you!
Be completely humble and gentle; be patient, bearing with one another in love.
Ephesians 4:2
 
23 years old;
Feb 2009 Dx: Acute Disseminated Ecephalomyelitis (ADEM)
Aug 2009 Dx: Brainstem Encephalitis August
 
Meds: Provigil, Nexium, Lexapro, Adivan, Baclofen, Topomax
 
Did 1000 mg IV solumedrol for 8 days then weened for 1 and a half months from mid Feb-late March
 

A merry heart does good like a medicine; but a broken spirit dries the bones.

Proverbs 17:22

 

"This too shall pass."


nursejenn1012
Regular Member


Date Joined May 2009
Total Posts : 104
   Posted 10/5/2009 4:24 AM (GMT -6)   
So, i've had 5 migraines since sept 2. Thats more then i've gotten in the last 3 years put together. Theses are different. The one i had last night didnt give me a real bad headache. But my mouth started hurting.....like my teeth went numb at first, then they hurt, not just a tooth, the whole right side hurt, i dont have cavities so im not sure what happened. Currently im having a muscle spasm in my right leg. When it squeezes my foot goes numb...........im doomed.......
God will Give me nothing i cannot handle--i just wish he didn't trust me so much


michele17
Regular Member


Date Joined Jun 2009
Total Posts : 21
   Posted 10/5/2009 6:39 AM (GMT -6)   
Hi again, I think that what you are experiencing one migraine. Min last one week. From my eye,to my sinuses,gums,teeth and accross to my right ear! WHEW! I take Relpax and within one half hour I feel better. After the first day, I usually feel like someone has taken their fist to my right eye. This could last for as much as a week. For me this could be preceded by humid weather, increased body temperature, and for me a seizure.
Except for the seizure all this is invisible. Hence, when people see me, they say, -"you look great."

You'll feel better after seeing an m.s. specialist.

Good luck and feel better.
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