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nursejenn1012
Regular Member


Date Joined May 2009
Total Posts : 104
   Posted 10/6/2009 12:25 PM (GMT -6)   
I saw my primary dr today.....since my neurologist refuses to call me back.. He is so good to me, I called him yesterday, told him i've been having migraines and there making my neurological symptoms worse. He told me to come in today, that he would accomodate me :). He started me on depakote as well as my inderal for the migraines. He said what i have is not anxiety, and that its def. neurological and still feels it is ms. Its comforting to know he believes me :) In the mean time, i will give the new medication a chance to work on my migraines and wait for my appointment with the specialist in november :)....
God will Give me nothing i cannot handle--i just wish he didn't trust me so much


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 10/6/2009 6:04 PM (GMT -6)   
I am very glad you have such a supportive GP.  Is the specialist you see in November an MS specialist?  Sorry I can't remember.  I also can't remember if you have lesions on an MRI.  Good luck and keep us posted.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


nursejenn1012
Regular Member


Date Joined May 2009
Total Posts : 104
   Posted 10/7/2009 9:44 AM (GMT -6)   
Hey, the specialist i am going to is a ms specialist. No lesions on brain with contrast, but i havent had c-spine with contrast yet, i had a regular c-spine in june of this year. I got a cold, just a little one, and im down for the count, starting to recover slowley. It difficult to explain the muscle spasms. They cramp--when they do, they make that extremity go numb. I feel very dehydrated even tho im drinking pleanty of water. I feel like im in a boat and trying to balance, fell in the dr's waiting room yesterday. If a little cold does this to me, what happens if i get a big cold.............sorry, just frusterated....thanks for listening :)
God will Give me nothing i cannot handle--i just wish he didn't trust me so much


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 10/7/2009 7:27 PM (GMT -6)   
Shoot!  I am sorry about that cold.  If you had any lesions, they would have shown up with or without contrast.  I don't do the contrast as it is so extremely toxic.  My lesions show up just fine........sigh.  You do need a t-spine however, if you haven't done that one. 
 
Well, hopefully you will get some answers soon. Feel better!  This is going to be a hell of a cold and flu season. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


nursejenn1012
Regular Member


Date Joined May 2009
Total Posts : 104
   Posted 10/7/2009 8:58 PM (GMT -6)   
Can you have lesions on your t-spine?? Its been a number of months since my c-spine. Never had a t-spine. The actual cold isnt so bad, its what it does to me. Is this typical?? I find it strange how I just get a little cold then bam, migraines, decreased motor function. My sight is still not 100%--its far from that, kinda scary, its off, hard to describe, i have to be looking directly at something to see it, reading the computer screen is very difficult.. Im having a hard time recognizing weather or not im getting an aura for a migraine...I am not new to migraines, had them all my life, they are now different. I have to go to the eye dr to get more contacts. My eye sight is getting worse too i think. when i look at a clock or a neon sign, i see double. Just when you say to yourself it cant get worse, it gets way worse.......As far as flu season, hopefully people have been scared into getting the flu shot. As far as getting the cold/flu/stomach bug, very rarely do i get it. This cold that i've got currently, everyone had at work, they had to call in, fevers. I just got a runny nose and sore throat--I def made up for that with the neuro symptoms...hahaha.
God will Give me nothing i cannot handle--i just wish he didn't trust me so much


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 10/7/2009 10:54 PM (GMT -6)   
I have  three t-spine lesions.  So I guess you can!  ;) 
 
When I get colds, they are pretty typical.  I just get snotty and stuff.  I do have a bit of a symptom flare when I run a fever due to a secondary infection. 
 
I don't get migraines.  I have never had one.  I do get the occasional tension type headache.  I have heard that migraines are more prevelant in MSers. 
 
 
 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


nursejenn1012
Regular Member


Date Joined May 2009
Total Posts : 104
   Posted 10/8/2009 6:49 PM (GMT -6)   
I used to get migraines once or twice a year. Since Sept 3rd i've gotten 8 :(.. Im exausted, I know i have my appointment in November, but im not sure how much more I can take, im nervous now because my vision is affected, i see bright lights, double vision if i look at a neon clock, and kinda like tunnel vision, hard to descripe, have you heard of this??
God will Give me nothing i cannot handle--i just wish he didn't trust me so much


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 10/8/2009 9:49 PM (GMT -6)   
I have heard of double vision and nystagmus and trouble tracking.  I have heard of blindness.  I suppose it could cause any number of vision problems.  I have not hear of your particular symptoms, but that really doesn't mean much.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


nursejenn1012
Regular Member


Date Joined May 2009
Total Posts : 104
   Posted 10/25/2009 8:27 PM (GMT -6)   
ended up going to the walking today. My right hand went numb---not a little, i mean i could have shut it in the door and not felt it numb, then got another headache, couldnt balance myself, temors were terrible. My mom wanted to take me to the er, but who really wants to go there with a full blown headache, not to mention swine flu. So we took a trip to the walk in. She said i had a "wicked nystagmus". i was telling her about my symptoms, she said i have dead on symptoms for ms and should go to an ms clinic---i do have an appointment to go to one in a week and a half. I still have some residual numbness in my hand, but i can feel alot now, but my eye still hurts and i keep seeing white flashes of light in the corner of my eyes, as if someone was taking my picture..............
God will Give me nothing i cannot handle--i just wish he didn't trust me so much

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