Balance question

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nursejenn1012
Regular Member


Date Joined May 2009
Total Posts : 104
   Posted 10/18/2009 8:47 PM (GMT -6)   
I still have no diagnosis. I have a very hard time with my balance, and an even harder time trying to explain it. Im not dizzy, I sort of feel like im on a boat trying not to fall. Other times my knees give out. So, my question is this: does anyone else experiance this?? My neurologist thinks im crazy!
God will Give me nothing i cannot handle--i just wish he didn't trust me so much


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3532
   Posted 10/18/2009 9:23 PM (GMT -6)   
I do have horrible balance but I also have chronic vertigo and three large lesions on my cerebellum.  I know that balance is a big problem with a lot of MSers, what I don't know is whether or not balance issues are always caused by damage to the cerebellum.  Most people with MS have over-all brain atrophy as well.  That must cause issues as well.  I know they believe things like cognitive speed and executive function are caused by that lovely brain atrophy.  That is something that a good neuro measures over time with regular MRIs.  Well I am sure my post was not very helpful.  Sorry. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Denjski
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 10/19/2009 9:48 PM (GMT -6)   
I also have balance problems...my balance was one of the first things to be affected. I use to be a downhill skier..I could not figure out why I kept going down. I then started losing balance on my mountain bike...I can still ride as long as I ride in a straight line on flat surface...my days on hills and quick turns is over, but at least I can still ride
It seemed like a good idea at the time


9147angel
New Member


Date Joined Oct 2009
Total Posts : 9
   Posted 10/20/2009 5:21 PM (GMT -6)   
ah i do not have a diagnosis yet either. just the probability of MS. I have many balance issues My legs just feel like jello and i either fall or it is really hard to walk usually have to have help, i walk funny too. many people including neurologists have seen it and say something is going on but just dont wanna diagnose MS because it is not in my spinal tap enough for them, its in my MRI's though. and the symptoms so i know how you feel.
Frustrated Angel


nursejenn1012
Regular Member


Date Joined May 2009
Total Posts : 104
   Posted 10/22/2009 8:22 AM (GMT -6)   
its bad..............cerebral ataxia is the medical term i believe, i call it the sober drunk walk..........lol
God will Give me nothing i cannot handle--i just wish he didn't trust me so much


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3532
   Posted 10/22/2009 6:19 PM (GMT -6)   
I have cerebellar ataxia.  Could that be what you mean?  Mine, luckily, is mild.  It was my presenting symptom. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


nursejenn1012
Regular Member


Date Joined May 2009
Total Posts : 104
   Posted 10/22/2009 8:38 PM (GMT -6)   
yeah thats what i mean, mine is not so mild, it was my first symptom too. Last night i had the heat on in the car and got way over heated, felt like crap, almost made a trip to the er. My balance has been terrible since then, along with other things
God will Give me nothing i cannot handle--i just wish he didn't trust me so much


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3532
   Posted 10/22/2009 9:38 PM (GMT -6)   
That is how I got my diagnosis.  Horrible vertigo---->wall walking----->ER------>MRI-------->diagnosis.  I was once at an Angels game and it was really hot.  I was staggering around and a security guy told me I needed to stop drinking.  "Ma'am, I think you have had enough."  I was nice when I explained that he was WAY wrong.   Hehe. 


Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

Post Edited (Gretchen1) : 10/22/2009 9:43:20 PM (GMT-6)


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 10/28/2009 9:57 AM (GMT -6)   
Hi there, and good morning.....my first symptom that struck me was vision, which went away after about 10 days, and then a year later, thngs started to go strange for me....It is the hardest thing for me to explain.  It was not really dizziness, it was more of a head fog thing, like Ihad a can of soupl in my head.  It just seemed that I was in another dimension, and everyone else was in another one.  Sometimes when I spoke, I was surprised that people could actually hear me....
 
And then I had a balance ting, where it felt I was walking in tilt mode for awhile.  But for the most part a lot of that is gone, with the help I am sure with the Copaxone and ai take Ativan too that helps with that head fog feeling, trembles, balance things etc....
 
 
And they thought you were crazy - don't they all at first. That all that I heard from my GP for two years, all of my symptoms were due to anxiety that for some strange reason started to take over my life.....once I learn how to control the anxiety, then all of the other things will go away too - the dizzys, the balance thing, the vision problems, etc etc etc etc.....
 
Well since my MS dx, hmmmmm, he is a bit humble and now of course in his eyes, I am no longer crazy as he had earlier suggested.....in fact whenever I go into see him, he actually listens to me now - except he still gets under my skin when he asks me "are u still on copaxone, and for how much longer will you take this medication  - oh dear God is all that I can say here....
 
Have a nice day
Gary

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 10/28/2009 10:24 AM (GMT -6)   
Well you know, I have learned some interesting stats as of late.  Out of all the GPs across Canada and the USA, only 27 percent of them are able to recognize or for that matter, know all of the symptoms related to MS.
 
Out of the 17 percent that can tell, 16 percent of the 17 percent still think that the only treatment for MS is steriods ...so am I totally surprised when he asks me this - but still, yes my hands do go into the grip mode!!!!  when ever he asks me this
 
Nice to hear from u too
 
Gary
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