I originally posted this in the Fibro and Epilepsy boards and was told I should post this here too. Let me know what you think, thanks!
I get these weird episodes almost every day, it's very frustrating. I know I have fibro and reynaud's, my Rheumy thinks these might be seizures, but I've already seen a neuro for this and he says no. Not sure where to go from here.
(Keep in mind this is all on the left side of my body only)
-Temple pain, usually throbbing
-Eye pain, usually throbbing (connected with left temple pain)
-Eye Fatigue, feels tired and gets small
-Whites of eyes turn yellow or pink (goes away as soon as episode is over)
-Arm pain, shooting or stabing usually
-Leg pain, shooting or stabbling, sometimes throbbing
(Basically my entire left side has pain)
-Unable to think properly, can't get words out
-Extreme dizziness, head bobs around
-I am able to hear and understand everything
-Sometimes it feels as if someone has picked up my left side and dropped it down, if that make any sense. I feel the left side of my body lift up and then back down and it happens very quickly and only once.
I have tested my blood sugar to see if that is what is causing the spells, since they happen mostly when I get hungry, but my levels are between 77 and 90, not at a level for a typical hypoglycemic episode. I must eat between 2 to 3 hours to keep from having a spell, but I travel in my job and not always able to eat that consistently. These spells also happen when my body is stressed, i.e., running, walking long distances, after and sometimes during sex, etc. Does this sound familiar to anyone?
Fibromyalgia, Reynaud's Diseasecocktaildizeaz.blogspot.com/