Hi there Gretchen......thanks for your supporting comments on this thread......I have to agree with u completely on this one.....any neurologist that states that MS runs a favorable course (what ever that really means) and the fact that the neurologist is stating that he or she is going to defer treatment for a year to determine what course the MS is going to take is a decision that just boggles my mind.
In fact, Health Canada has recently approved the use of Copaxone for the treatment of CIS suggesting the possibility of MS. ie.....a single event like optic neuritis that does not meet the criteria for a MS dx.......so based on this and all the other things that we have learned over the years - a delayed treatment program (waiting a year) is just completely out of my scope of thinking...
Hope this post finds u well, and have a great day....
Well, as per all the other posts in this thread, and the reasons as stated before, I totlaly disagree - it just does not make sense to wait to see what will happen - and in fact Im no doctor but Im willing to take a guess - the MS will continue to gain speed and become more troublesome if it is not nipped as soon as possible..
So again, I totally disagree, but then, thats just me....
Post Edited (becky723) : 12/21/2009 6:28:25 PM (GMT-7)
I've really enjoyed the "should I get on ms drugs" discussion. I was diagonsed in 2000 & put on Copaxone & Avonex at the same time, 2 years later after feeling like a pin cushion stayed on Avonex until 2008 Insurance coverages I had to switch to Rebif ,I had a major adverse re-action to Rebif & stopped all med in March of 2009 also switched neuroligist .
I was always told you need to be on a DMT , well my new neuroligist who is the best in this area said after taking MRI' in March & again last week & comparing them to one in 2006 said since my lesions are "old" & show no progression of Ms that I was taken off all drugs for MS . If no new progression in 5 years the MS usually as he put it "washes out" now the damage it has done to my nerves will always be there the disability will continue because of old damage
I go back in 6mo re-do MRI's if the same no drug treatment if not he is looking at the new pill treatments that he says will be out late 2010
MS is a crap shoot, do whatever you feel is right for you This is right for me now only time will tell what the future holds If you like & most important trust your doctor the go with his opinion.