Frustrated. Make it stop!

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ktvtfan
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/14/2009 8:25 PM (GMT -6)   
I am new to this post and I dont normally participate in online chatrooms and the like but I feel like I have nowhere else to turn right now. I'm going through this testing stage and its driving me nuts. My MRI results from my neuro said "normal". However, when I reviewed the actual scans the MRI place gave me, there was a place on my spine circled and spots he idicated as "possible MS Lesions". I havent been able to discuss this with my neuro yet as her assistant advised me that they were normal. I have a VEP test on Monday and then a Nerve Conduction Test Thurs. It all started 2 1/2  wks ago with tingling and numbing in my legs, then after a few days it moved to my arms. Now, I have places that feel like icy hot on me, especially my chest and my right thigh. I have taken a hot bath two nights now and it's so much worse afterwards! I love baths and they have always made me feel better when I'm sick. Now, when I get out the tingling is worse. I feel like my limbs are so heavy and my vision feels delayed if that even makes sense. My neuro felt like definite MS when she first examined me after hearing my symptoms, finding out I had a severe EBV infection in the past and that I have a family history of MS. After reading peoples horrid experiences in reaching a diagnosis, I'm scared of all that lies ahead in actually finding out what is wrong and getting some help. I almost wish the MRI had shown something so I could start some medication or something to make this go away! Last night I almost went to the ER. The inside of my chest was burning like ben gay or icy hot but worse, then my torso and my arm not to mention the exhaustion. I felt almost drunk too. I was home by myself and was so scared. I finally fell asleep . Today when I woke up... the same thing just not quite as bad. That was of course until I made the mistake of taking a hot bath again and guess what... SAME THING as last night! I wish I knew what to do and what will make these awful feelings go away.  Is it MS?  I just want it to go away!

Lost and Lost
New Member


Date Joined Oct 2009
Total Posts : 19
   Posted 11/14/2009 8:50 PM (GMT -6)   
I am so sorry you are going through this confusion. I know the not knowing is hard. I am not a Dr by any means but I do have MS and I understand the tingling and the heat sensitivity. I hope they are able to tell you soon what you have and if it is MS I have found this is a great place to chat and vent. God bless you on this journey and I will pray for you. Hope to hear back from you and please keep us updated.
Regardless you can do it you can fight it and you can still have your life don't forget that!!

Lost and Lost

ktvtfan
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/14/2009 8:56 PM (GMT -6)   
Thank you so much for your kind words of encouragement. I hate these sensations I'm feeling and its rather scary to feel like you are losing control of your body. I too hope for some answers soon. My mother has had Lupus for many years. Sometimes her tests are normal and sometimes they arent depending on flareups. Even to this day, years later sometimes doctors try to tell her that she doesnt have it. She told me not to be surprised if the docs try to tell me its in my head. This is definitely not in my head and MS or not I just hope they can do something for me soon. I will be sure to keep this updated. I have a feeling this is about the only support I'm going to get since it's kind of hard to describe what all of this feels like and have people understand it. Thank you again.
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