Liberization Treatment - Could this be it!!!

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Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/21/2009 8:52 PM (GMT -6)   
Hi everyone,

Thought I'd send this link to you all to check out. I was in utter shock watching the program on t.v. this evening. Not only could this be the cause of MS, but other autoimmune diseases as well. Very exciting, huge step forward in this battle!!!

Blessings,
Ginny

http://www.ctv.ca/w5/

jujube
New Member


Date Joined Nov 2009
Total Posts : 1
   Posted 11/21/2009 9:03 PM (GMT -6)   
Ginny; I just watched the W5 program, and am so excited! Anyone that wants info log into w5, they have an article by Dr. Zamboni
I hope that  you are right, and this is it!.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3523
   Posted 11/21/2009 9:28 PM (GMT -6)   
Well this is interesting, but even in the three short years since my diagnosis, I have seen this sort of thing.  So far, nothing has come of it.  I won't hold my breath but it does give you hope that there are doctors out there working so hard for decent treatment and or a cure.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3523
   Posted 11/22/2009 7:55 PM (GMT -6)   
More info.
 
http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=2206
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


sandfly
Regular Member


Date Joined Sep 2009
Total Posts : 27
   Posted 11/22/2009 8:23 PM (GMT -6)   
I am also praying that this could be it. But if anyone cares to ggogle Marie-Tooth-Charcot they will recognize that this is not something new. Seems like it's ages old only they didn't call our condition m.s. back then. I spent most of last evening delving into this only to find that all the symptoms back then are the same symptoms we are having today. Our m.s society is advising us not to ask our doctors for the doppler, I haven't been told why as yet though. I did read another part to the show where they were saying that the man playing the trumpet who was supposedly cured is still fighting his ongoing fatigue so I was a bit disappointed that W-5 didn't reveal this.
All I can do is pray the doctors here will accept this treatment and give it a shot, nothing to lose.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3523
   Posted 11/22/2009 9:58 PM (GMT -6)   
Sandfly,
 
You are right.  This is ages old.  It is interesting that they have just recently found ACE inhibitors to possibly be effective in changing the course of this disease.  Could this be because it acts as a vaso dialator and thus reduces that venous drainage problem in the brain?  Interesting possibility to be sure.  I was irritatedly skeptical but now............I hate to get my hopes up.  This almost seems plausible.
 
God  I hate this disease!!!!!


Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 11/23/2009 12:20 PM (GMT -6)   
Hi there and good morning...I did watch this, and yes it was very interesting, and certainly to the other side of the spectrum as far as possible causes....I am all for this to be the real thing, but the show did leave me with so many questions:
 
  • If this has been an ongoing thing for the last three years, including surgical methods to correct the probelm, why have we not been informed of this before now.
  • When u read publications ie.... MS magazines put out by copaxone, etc, this finding and the resulting results and or surgery has not even been mentioned.
  • This cannot have been a complete secret to the medical professionals here in Canada and the US, yet there has been no talk on the subject until now..  there is a high profile team of MS researchers working out of the University of Calgary testing and experimenting on various MS medication - they had to know that this was going on -
  • Both the MS Societies in Canada and the US certainly have been hush hush about this, well up to the time that they knew that this information was going to be broadcasted on W5 - but I don't see them jumping up and down either about this - and have indicated that this is actually old news/techniques of days past that has just surfaced again.
  • On the two or three MRIs that I had of my neck and head, Im wondering why the narrowing of my arteries, veins etc were not detected.  And I question as to why the MS societies are telling me not to go to my doctor to have my MS dopplers examined for this type of evidence.. I would think that if this was a huge finding, that the neurologist would be working day and night to go over all of these MRI results looking just for that...
  • I am on Copaxone, have been for two years, and it is working - how is that so?

Just too many questions floating in my mind to start the party - but I do think, that this might just turn the MS societies on their head, and send the MS world into a spin - and I hope that it does, cause the potential is there for this to be something big, lets not loose this just in case....but I am going to take the stand right now that this is a "just in case" situation ( of course with my fingers lightly crosssed)....

Gary


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3523
   Posted 11/23/2009 5:53 PM (GMT -6)   
When I heard about this, I went right to my local MS Chapter website.  It had an article on this from 6 weeks ago.  They did have this up prior to the W5 release.
 
The other thing is......this has to be studied just exaclty like med options.  It has to go through phase I, II and III before it is a viable option.   You can't just go putting vein stents into everyone with MS.  There must be risk associated with that as well as cost!
 
The imaging needed to detect venous narrowing is not a regular MRI.  It is very specific. 
 
Some of the theories are that it is the iron in the blood that causes inflammation that then causes an immune response.  If you can head off that immune response, then you are still helping to slow down MS. 
 
Please try to remember that the MS Society is a charity.  It is there to support those living with MS and not just here to support research.  The MS Society helps members by offering all sorts of support such as counceling, classes, rides, social opportunities, equipment etc. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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