This is my first post, and I'm hoping to gather your wisdom.
I've got a bunch of very weird neurological symptoms. Have had since my 20's, but have ignored them until now (now in 50's). They come and go, but have gotten significantly worse over the last year or so (off and on).
What's frustrating me is the slowwww way my neurologist is approaching this. It's been 2 months and still no diagnosis. I'm starting to get highly impatient with this. I've had an MRI done of my brain (but not spine). There were two white spots. Blood tests fine. She did a neurological exam.
And now wants to send me for psychoneurological testing. It's going to take a month to get in! She thinks it's head injury. I don't. That wouldn't come and go, and probably wouldn't be getting much worse 7 years after the injury occured. Should I be insisting on a spinal tap now rather than later? (ugh!)
Your advice, please.
FYI... symptoms... some sound like MS, some don't. Or maybe they do, and just don't appear on the "most likely symptom" lists. (your opinion appreciated)
Sometimes hard to breathe (like my lung muscles were exhausted). Horrible migraines that sometimes last days, charlie horses in left leg & foot, extremely stiff neck, blurry vision (left eye focuses in and out), hard to think like there's cotton stuffed in my head, mean to say one thing but something else completely comes out of my mouth, it's been reported I've said some wacky things but I sure don't remember them, blackouts and losing time, short term memory loss and some really bad judgement, not knowing where I am for a few seconds, alternating constipation and diarrhea, a feeling like ants crawling on me, incontinence, stiff painful neck, clumsy bumping into things and sometimes falling, and completely and utterly exhausted.
Does anybody have any ideas for me? Is it usual for Dr's to do tests one at a time, until they reach a conclusion? Should I be more proactive in asking for certain tests? Is a psychoneurological exam usual during this process? Thanks, everybody...