Newly diagnosed

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newly diagnosed in Arkansas
New Member


Date Joined Nov 2009
Total Posts : 4
   Posted 11/30/2009 7:52 PM (GMT -6)   
Good evening!
 
Well, I recently changed my primary care dr and since then, I got someone to look at my whole medical record. She was not convinced at first that it was MS but wanted some tests done. She ordered an MRI and sent me to the optomologist to confirm the muscle weakness in my eye. The eye Doc came back and said that there was not any weakness, but there was optic neuritis(sp). I took that info back to her along with a list of symptoms and she said that it is early onset MS because there are no lesions on the brain.
 
I see the Neurologist for the first time next week and I am scared.
 
I do not have blindness in my left eye, however it does hurt on occassions. I also have massive muscle twitching, tingling, numbness in feet and face and spasms. I also left school temporarly because of consintration issues and memory issues. It is getting really bad. I went to the store and then went home and forgot my groceries in the car for a few days. I lost my 8 year old at a football game and he was sitting in front of me the whole time. I get numbness and tingling in my toes and feet and lately I have a painfull limp that came out of knowhere. I get really tired all of time and find it hard to do anything. I also get these bursts of pressure in my head. It is not like a typical headache.
 
When it comes to the memory loss, I have to write everything down. If I dont, and I take a nap in the day (which I always do) I completely forget everything that I did earlier that day. I am so confused. My husband is due back from iraq in a few weeks and I am afraid that he is coming home to a new person. I am afraid that he could leave me because I am not the same person anymore.
 
A.H.

newly diagnosed in Arkansas
New Member


Date Joined Nov 2009
Total Posts : 4
   Posted 12/5/2009 9:14 PM (GMT -6)   
Well, Monday is the big day and I am nervous. I am going to see the Neurologist Monday and my hubby isnt hear to hold my hand. I wish he was here, back from Iraq to go with me. Im sure this visit is going to be an initial consult but I am still nervous.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 12/6/2009 9:51 AM (GMT -6)   
I am sorry!  This is a scary process you are going through.  You have a ways to go before your diagnosis is official.  This could still be something else; hopefully something treatable and temporary.  I know you are nervous.  The fact that you have no lesions is the thing that is the most hopeful.  Most neurologists won't give a diagnosis of MS without lesions on either the spine or brain.  I know the optic neuritis makes it sound like MS is looming but I have a dear friend that has had optic neuritis several times and she has not developed MS.  Optic Neuritis can be just Optic Neuritis. 
 
Please don't lose hope.  Your husband loves you and I am sure has no intention of leaving you if you are ill.  Make sure you take advantage of of couples counseling.  That may help ease his transition back home. 
 
Good luck and keep us posted. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


newly diagnosed in Arkansas
New Member


Date Joined Nov 2009
Total Posts : 4
   Posted 12/8/2009 6:32 AM (GMT -6)   

I went to the Neuro. yesterday. What a sweet Lady she was. She listened to everything I had to say and ran with it. She said that although my symptoms to present as early onset MS, she is not convinced that it is. We are doing a series of muscle tests and blood tests and I will not know anything until March. She is also sending me back to the Optomologist to do more eye testing. She is baffled at the cause of my symptoms. She has also recommended that I see an Endocrinologist for an adrenal gland that was removed some years back.

As of now, she is treating it like it is Fibromyalgia. She has put me on Cymbalta to help with the consintration issues and memory loss. I am in school full time so I hope this helps.

Far as my hubby, I think that it is all anxiety issues that I am dealing with. He is a sweet man, and Im sure it has crossed minds before of spouses leaving because of changes. Hes a good man, he wont leave me. I need him to help take care of me!smilewinkgrin


half-full
New Member


Date Joined Dec 2009
Total Posts : 3
   Posted 12/8/2009 7:31 AM (GMT -6)   
Good luck to you. March seems like a very long way from now, but it sounds like your doc is doing all the right things in the meantime. Hopefully, some of the things she is trying will relieve your symptoms as well as your anxiety. Keep us informed!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 12/8/2009 8:21 AM (GMT -6)   
Hi Arkansas,
 
Thanks for posting again.  I am glad to hear you are on your way to answers.  I am also very glad to hear that your anxiety level is lower.  It is a very scary thing to be facing illness.  Please remember we are all here for you.  You are welcome to post anytime.  We have many members who are in limbo.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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