Others with Primary Progressive

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barbarann
Regular Member


Date Joined May 2008
Total Posts : 24
   Posted 12/5/2009 1:42 PM (GMT -6)   
I would like to hear from others who started with Primary Progressive and how they deal with it.  I have had this for almost 5 years (since age 57) and the only thing I have been prescribed is Baclofen.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1069
   Posted 4/25/2010 7:42 PM (GMT -6)   
hi barbarann,    i was diagnosed with primary progressive 14 yrs. ago, and probably had this , most of my adult life.I will be 60 years old in sept. I also recieve baclofen and vicodin to deal with this disease. nothing else. I can stillget around with a cane, walker or chair. I am waiting for my neuro to try and negotiate aprice for AMPYRA. This is the first therapy for ppms.             was wondering if anybody out there has recieved this drug yet.  Does it help. what kind of co payment applies   ppm guy
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