Neurogoist from HE--!!!! Unbelievable...

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Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 12/15/2009 11:44 PM (GMT -6)   
I posted this post on the U/C forum as well.. I can't belive what I went through today:


OH MY GOSH... you guys won't believe what I went through with this "Neurologist".... I HATED her and I've NEVER hated a doctor of any kind in my life!!!!



She made me feel like the BIGGEST idiot~!!!!!!! First a bit of background.. I was tested for MS in southern california about 8 years or so ago.. I had a brain MRI back then and it came back clear.. I have had 2 more additional MRI's up here in Northern California, but neither one was related to my brain.. One was for a knee injury I suffered in Montana 3 years ago and the other was an MRI of my neck and spine done in 2005, and THAT'S IT...



Well, the first words out of her mouth when she came into the room were "SO, I'm the 4th Neurologist you've seen?" I was taken aback and replied to her.. "Well I'm not sure but I know I've seen ONE other one about 5 years ago..." I immediately got into a defensive mode and I could see my husband wasn't impressed either. Then she says.. "And I can see you've had MULTIPLE MRI's..." I didin't even know how to react to that one.., I mean, I've had only 2 MRI'S for my brain and one was 8 YEARS AGO... AND, she kept bringing it up how I've seen "Every neurologist around here, and had MULTILE MRI's.. " Why keep bringing it up??? It's not even TRUE~!!!!!



She made me feel like I was a "Doctor shopper" shopping around going to different doctors until I get the diagnosis I want.. OR a Hypocondriach... Either way, she made me feel like CRAP and hurt my feelings..



Then she's looking at my MRI on the light in the room with my husband and I.. and shaking her head every once in a while like she's not happy with something.. So I ask her what's wrong and she says.. "Well the Radiologist is saying he sees all this stuff in your report and I'm not really seeing much on these films.."



So she gives me a TOTALLY Thourogh neurological exam and says I pass... so she's not sure if I have MS or not.. she says I do have MS Symptoms but from HER exam and what SHE sees on the Films she can't be sure so she's has ordered me to have a spinal tap on January 5th.. that's the soonest she can get me in... Then I'll have to wait 2 more weeks after that for the results.. She even brought politics into things.. She was asking me who the presidents were from current time as far back as I could go.. When I mentioned George Bush, I called him 'Geoge Bush number Two" because his father was president first before him.. she said "Bush number Two.. that's how we like to refer to him around here" like he was a SH--- President... So she's obviously not a Republican...LOL...



The problem is I was supposed to have my Remicade day after tomorrow I don't know if I can wait 5 more weeks without either an infusion or surgery... I feel like I'm gonna be on borrowed time.... maybe I'll get lucky and my UC will stay in remisson for a while, but I just don't think she's pushing hard enough for me timewise considering my history with UC... Even my husband is pissed off... OH AND GET THIS.. I called my pharmacy when I got home because the owners are friends of mine and told my pharmacist friend the doctor I saw and what happened.. He told a girl who works there on the side who I saw and that I didn't like her and the girl replied.. "Oh my husband saw her a year ago and she is NOT a nice person.." Come to find out, this Neuro has a bad reputation around the hospital here.. My best friend is a nurse there and when I told her who I saw and what happened, she was not suprised.. she told me that she pisses off staff, patients and nurses all the time and has had complaints against her before because of her personality.. GREAT...



So I called my GP when I got home and had to leave a message.. I want to see a different Neuro ASAP!!!!! I don't think she trusts me and how can I trust her when she treated me like that....



SO.... I'm totally and completely disgusted.... Hmmph..... I don't feel any better now than when I woke up this morning... Unbelievable.. I can't believe I went through that.. I have never ever felt that way in a doctors office before.. even my husband is amazed... lol...



SOOOOO Sorry for the long post.. but I am just blown away and can't stop typing.... I could go on but I won't!!!!!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 12/16/2009 8:28 AM (GMT -6)   
Wow!  What a nightmare!  I would have walked out half way through after she said a second time that you have seen all the neurologists in the area. There are plenty of "rate your doctor" type websites.  I would find one and make sure you post your experience. 
 
Remember for right now, we are a consumer nation as far as medicine goes.  I would not waste my money on that doctor. 
 
As far as medical records go, you should have copies of all your MRIs.  Your insurance and you paid for those.  I have a copy of all of mine and I have to have one every year.  They put them on tidy little CDs for you with a written report for each one.  I also have all of my post exam notes from my neuro.  It comes in very handy when seeing another doctor that for some reason wants more info on your disease.  I recently switched PCPs and she was very appreciative of all my records being in order.  I keep all my MS stuff in one notebook huge notebook.
 
You should also know that getting an MS diagnosis evern for someone presenting very obvious symptoms can take a long time.  We have members state that it usually takes months and it can take YEARS. 
 
You may want to look into UCSF.......I have heard they have a well thought of MS center.  There is quite a lot of research going on over there as well.  You might be able to find a study to get into or other program. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 12/17/2009 12:29 AM (GMT -6)   
Hey Gretchen... Wow is right.. it was a nightmare.. I spoke to both my GI and my GP today.. My GI confirmed what I thought.. He said she has a reputation for not being so nice... It's amazing that she has a job with how many people she pisses off.. She's probably good, but I can find a good Neuro who is also NICE I'm sure! Also he said that if my U/C starts to flare up, I should more seriously consider surgery.. .ARGH.. that just terrifies me! I don't wanna go through that!!!!

My GP is referring me to another Neuro tomorrow, so hopefully I'll have better results then. Also I got my MRI report faxed to me today.. I tried to read it but it's so mumbo-jumbo to me.. lol.. He did say in his remarks at the end that it could be MS, Lyme encepalitis or vasculitis.. Whatever those other two are..

I'm feeling better tonight.. after the last few days, I'm just happy to be at home in my living room.. lol.. I bought a Christmas tree today and decorated it all up with lots of pretty lights.. It helps me feel relaxed to have the tree on in my room with my candles burning.. :)

Soooooo.. I'll keep you posted... I'm also glad it's not raining anymore now for a few days.. lol...

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 12/17/2009 7:58 AM (GMT -6)   
I am VERY picky.  My first neuro listened, and did test after test.  He initially diagnosed me with a stroke but went back to the drawing board 4 or 5 weeks later.  He was the one to give me the MS diagnosis.  He then sent me on to an MS specilalist for a second.  I switched to the neuro that gave me a second.  My first doc. was extremely bright and quick to look at things more than once but he had ZERO sense of humor.  He was like talking to a zombie!  He was not mean but his bedside manner was just not what I was looking for. 
When you end up with a life-long illness like MS you suddenly get very picky about the doctor you see.  I won't put up with anything less than the perfect doctor.  I want the whole package.  I also prefer a female doctor.  That's just a personal preference.  As far as I am concerned, since this is my body and my disease, I get to pay for whom ever I want.  I no longer put with with "well he's smart but........." 
 
There are plenty of wonderful doctors out there.  There is no reason to put up with someone that for any reason makes us uncomfortable. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


janereed
New Member


Date Joined Jan 2010
Total Posts : 3
   Posted 1/13/2010 9:37 PM (GMT -6)   
I am new here on the forum, but your nightmare is so similar to mine. I have seen two neurologists in the past three months because my doc is convinced I have MS, and so am I. The first neurologist acted like I was an extreme hypochondriac and sent me for an MRI, then without even looking at the MRI (he just read the impression the radiologist wrote) told me that the spots on my brain were old age spots (I am 38), so my doc sent me to a second one who came into the room asked why I was there, spent 2 minutes and 37 seconds looking at my MRI (yes I timed him) and cam e back in and told me you do not have MS, you do not have symptoms of MS and these are migraine spots ( I do not suffer from migraines), when I pressed him for more answers he leaned back in his chair, laughed at me and told me that he had no answers for me. They both made me feel like a total idiot for even being there. To paint a picture for you, when I went in to see the first neurologist I was in the middle of a flareup and was on forearm crutches and could hardly walk...and he brushed me off. For the first time I saw a neurologist while I was actually having a flareup...and I got ignored...I understand your frustration!! I am so sorry and I hope you find a great neuro that will listen to you and help you!

Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 1/14/2010 1:51 AM (GMT -6)   
Hi Janereed~!

Thanks for the reply... I've heard that Neurologists are so smart that they are just plain weird... lol... like the reeeeaaalllly smart people are almost "crazy"? Maybe that's part of it.. I'm sure that's not the case for all of them as there have to be a few GOOD apples in the bunch.. lol..

The funny thing is that I wasn't able to get in to see another Neuro and ended up going back to this one for my spinal tap.. I brought my friend who is a nurse at the hospital here in town so she could drive me home and she knows this Neuro very well as she sees her every day since she works in the stroke unit there...(sorry, long sentence).. lol..

Well once the Neuro saw me with my friend.. (I don't actually know if that really had anything to do with it) she was a lot nicer to me.. She did an awesome job on my spinal tap, I didn't feel a thing and never even got the spinal tap headache that everyone talks about.

So I guess I'll stick it out with her and see if my treatment continues to be nice. I go back on the 26th to find out the results of my spinal tap..

But heck.. I sure hated how she made me feel on our first visit, and I SURELY wasn't going to bring it up with her before she had to stick a needle in my back.. lol..
 Diagnosed with Ulcerative Colitis January 31st, 2005

Remicade, One infusion October 22nd, developed symptoms of MS 3 weeks later, Brain MRI showed multiple lesions.. eek!

MEDS: No more Prednisone as of 1/06/10!!!!! Started my taper as of 10/23/09..woo hoo!!!
Apriso 1.5gm once a day, Nexium 40mg once a day, Wellbutrin 150mg once a day. 
 
        http://www.myspace.com/77016897  


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 1/14/2010 8:14 AM (GMT -6)   
Hey Susie (any everyone else)
 
Make sure you have a copy of EVERYTHING!  Ask for copies of your lumbar puncture results.  You also need a copy of your MRI on a CD and the written report.  Put it in an notebook.  I know it sounds obsessive but it is really helpful.  I am in the midst of changing Neurologists and it was so easy to get the med reports that the new one has requested.  I didn't have to call any labs or doctors.  I already had it all.
 
It makes getting that second, third or ??? opinion much easier.  I know it is very hard for some to get answers.  Some go years without a reasonable diagnosis and all along the way, they are treated like head cases (anxiety, hypochondriacs, etc)
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 1/14/2010 10:36 AM (GMT -6)   
Friend or not that Dr would have been history!
SnowyLynne


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10404
   Posted 1/14/2010 11:18 AM (GMT -6)   
Susie, I guarantee your friend had an influence on how the doctor sees you. Probably that impression will follow you through your treatment with her from now on. For some reason, her presence validated your reports in the neurologist's mind. Now she sees you as a reliable reporter and a sincere patient.

It's a shame that had to happen, but now I'd use it. She may be a witch to everyone else, but if she respects you, that's the bottom line as far as I'm concerned. I care about how my doctor treats others, but if I've managed to get him or her straightened out in regard to me, I'm not starting over with another one.

And it could be she was just having a rotten day the first time.

Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 1/14/2010 11:32 AM (GMT -6)   
Wow is right, that just plain boarders on unethical patient procedure! I would probably take the time to write a letter to the AMA and report this. It may not do any good, but at least you will possibly get someone to take a look into this Dr. and stop it from ever happening to another person. I think to many people just don't want to ruffle feathers for whatever reason, so these types of Docs go at liberty to continue to make some of their patients quite miserable and left feeling very defeated.
I am so sorry for you having to go through that. I agree with what the others folks have suggested. Hopefully it will not take much longer for you to get the answers that you deserve, it is a long waiting game for most of us. Good luck and take heart, we are all here for you! ~Kate
Hugs~Katie

Diagnosed w/MS~2008
Diagnosed w/Celiac 2009
Casein allergy~since forever


joeysophie
New Member


Date Joined Jan 2010
Total Posts : 2
   Posted 1/25/2010 11:44 PM (GMT -6)   
After having been diagnosed with MS by two Neurologists who specialize in MS, I was unfortunate to have to select another neurologist when my very terrific doc moved to Los Angeles to head up their Neurolgy clinic. The only neurologist seeing new patients accepted me into her practice but over the next four years, she decided that I didn't have MS. She took me off Avonex and suggested that my symptoms were all psychosomatic - even when I had been paralyzed three times before I saw her. During the time I was seeing her, I began to have Grand Mal seizures. She decided, in her infinite wisdom, that I was having pseudo-seizures even after I bit through my tongue in one and broke four teeth at the gum line from gnashing my teeth together during another. I do have an odd presentation of MS, I only have two brain plaques and three in my spinal cord but I have had very severe exacerbations over the years. She was so insistent and convincing that I actually went to see a psychiatrist just to make sure I wasn't doing something to cause my symptoms and seizures. In his report to her, he stated that I was not malingering. That I showed no abnormal psychological symptoms except for some depression (geez, I wonder why!). His suggestion to her was to seek an organic basis for the symptoms because he did not find me to have the personality to deceive her or myself. When that report didn't change her mind and after one last pretty bad case of optic neuritis, I was lucky enough to find a neurological practice who added a new doctor. I grabbed him and all of a sudden, I have MS again and I am taking Copaxone. He sent me for a five day seizure study during which I had seven complex seizures and a grand mal so now I am finally on seizure medication and I don't have to fear every move I make being my last.

The lesson I learned is that no matter what the reason for your discomfort with your doctor, if it doesn't feel right, make inquiries until you find a doctor you can have confidence in and get on their radar - be it a waiting list for new patients or seeing another doc in the same practice as the doctor you like is in. If you have to wait a bit, just take as good care of yourself as you can until you can get into the practice you need and receivethe respect you deserve as a patient.

Sorry to go on so long but this is very important!

Diagnosed in 1987 but I am still walking!

Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 1/26/2010 12:36 AM (GMT -6)   
Thank you so much for your story.. I agree with you 100 percent! The fortunate thing is that when I had my spinal tap, she was a lot nicer to me and it was absolutely painless, so I know she was trying to do her best because I didn't feel a thing. I am going in tomorrow to find out the results of everything and I'll see how she treats me tomorrow.. if it's good, then I'll stick with her... I've heard she can be a BI*** from a lot of people, but I've also heard that she's a very good neurologist. So... Tomorrow will be the deciding factor for me.. It's supposed to be our first day with some sun in like 2 weeks, so hopefully she'll be in a good mood :)
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