tysabri - brain infection PLEASE HELP!

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loudog
New Member


Date Joined May 2008
Total Posts : 6
   Posted 1/18/2010 3:13 PM (GMT -6)   
my 24 yr old daughter has been taking tysabri for over a year.  she is has stopped taking tysabri.  December was her last treatment.  She is having awful headaches.  They say she could have a brain infection and is having an MRI in the morning.  What does this mean?  What is a brain infection mean.  What can happen to my daughter?

loudog
New Member


Date Joined May 2008
Total Posts : 6
   Posted 1/18/2010 8:22 PM (GMT -6)   
Hello everyone, earlier today my best friend posted under my screen name . I joined this gruop a couple of years ago when her daughter was diagnosed with ms. I only made a few posts and they were about my best friend and her daughter they both have ms. I was really looking for answers. I have always found the topics to be very helpful. Tonite my best friend has joined this group, her screen name is praying4acure. I hope this clarifies everything. That is what is going on. thanks kim

loudog
New Member


Date Joined May 2008
Total Posts : 6
   Posted 8/8/2012 4:47 PM (GMT -6)   
hello everyone,  my best friend and her daughter have ms , her daughter is now 26 and tysabri was her treatment she tested postive for the jc virus ,she passed away july 25, 2012 at home in her favorite chair , she had treatment a week before , please pray for us , we are having a hard time dealing with this

nana68
Regular Member


Date Joined Mar 2011
Total Posts : 474
   Posted 8/8/2012 9:06 PM (GMT -6)   
that is terrible,praying for strength to get you through this. I am new to ms and I don't think I will ever take that.
treacheal stenosis,fibromyalgia,panic disorder,ptsd and who knows what else

lefty2g
New Member


Date Joined Aug 2012
Total Posts : 3
   Posted 8/19/2012 6:34 PM (GMT -6)   
No two patients are alike, consequently, we seek specialists who have more contact with problems seen by a GP. Doctors want to help patients and confer with each other as they look for a treatment that will help their patients. Things they look for include genetics, age at onset, other conditions the patient has, They look at other medications the patient may be taking as sometime there is a conflict between medications.

If the patient has as a proven brain infection they will look for the antibiotic that is best for this bacteria. The brain has a special protective phenomenon called the "blood brain barrier". They have to locate the antibiotic that can penetrate this "barrier" that is also effective to erase the infection IF THAT IS WHAT SHE HAS.

Therefore a disgnosis has to be made first before they start a treament.
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