tysabri - brain infection 1st under my userna

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praying4acure
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 1/18/2010 7:11 PM (GMT -6)   
hello,
I'm sorry I have used my best friends username but i really didnt no what to do.  She's a great friend and please dont give her a hard time.
I will be diagnoised with MS for 21 years around the middle of September.  I have relasping remitting.  My oldest daughter was diagnosed 2.14.09.  She has been taking Tysabri for over a year now.  She has been having tremeous headaches with nausa with every headache.  She stopped taking Tysabri in December. 
She has a MRI tomorrow.  The Dr. says she may have an infection of the brain.  I'm very scared and so is my youngest.  She's away at college and is on her way home now.
Please be honest, is this serious?  Could she possiblly die?  Whats the worst?   I only no what I google.
 
Terri W  
(already taken)
 

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3524
   Posted 1/18/2010 7:24 PM (GMT -6)   
I am sorry to hear that both you and your daughter have MS.  Please know that the number one side effect of Tysabri is headache.  It is possible for her to have headaches with Tyasabri and not have a brain infection. 
 
The brain infection is called PML or Progressive multifocal leukoencephalopathy.  It is very rare.  PML is very serious.  It can cause death. 
 
I hope all works out for you and your daughter.  Hopefully this is just an ordinary side effect.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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