Crushing Chest, Neck and Jaw Pain Non-Cardiac

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gagirl63
New Member


Date Joined Feb 2010
Total Posts : 4
   Posted 2/1/2010 8:43 AM (GMT -6)   
Hello,
 
Does anyone have crushing, excruitiating, breath taking, feeling like you are having a heart attack, PAINFUL SPASMS in your Mainly Chest, Neck, Jaw and sometimes your Shoulder, through to your Back and Arms.  Sometimes they start in my Chest and move up to the Neck and Jaw, sometimes they start in my Neck, sometimes they start in my Jaw, you get my drift???  Like I say below I have muscle spasms in everypart of my body.  I take two - 10 mg Baclofen four times a day and when the chest spasms hit, which are every day of my life, sometimes numerous times a day, I take one - 10 mg Diazepam also and after a while it takes effect and also puts me to sleep as well but when I wake up I still feel my muscles tight and very sore. Been to ER more times than can count, always the same, heart workup, normal, enzymes normal, lung workup normal, everything normal, they say Non-Cardiac muscle spasms, give me a shot, knock me out and send me home to sleep.  I have had 4 heart caths since 1999 last one in December 2009 all fine.  Docs baffled don't know, just say severe muscle spasms, well my heart is a muscle I quit going to ER a couple of years ago, because I can knock my own self out, without a shot and thousands of dollars on my insurance and pocketbook.
 
Does anyone have this problem, if so do you have diagnosis and even more important anything to keep this from happening?
 
I am new to this forum and website I was officially diagnosed with Fibromyalgia in 2000, The Drs flip flopped between SLE Lupus and Multiple Sclerosis from 2000 until 2004 when I was officially diagnosed with Multiple Sclerosis and took Copaxone injections for 2 years but quit on my own, now place left on body to inject due to knots under skin, but I have suffered from the symptoms since I was a child.  My old MS Dr left and the new MS Dr now tells me she DOES not think I have MS so here we go with whole battery of tests all over again and the mention that it could be SLE Lupus again, (GIVE ME A BREAK).  The symptoms have gotten stedily worse but in 1994, I developed the very disturbing symptoms I described above among so many other symptoms that have totally disabled me, my life and taken it's toll on my family and their lives.mad  I feel like my Doctors have left me high and dry, like they have abondoned me. 
 
When I try to go to a new Neurologist they see my record and act like they are gut shot and want no part of me, they shun me.  There are days I feel like I am litterally going to die!  I live in Pain, Fatigue, Heat Intolerant where even going into a hot kitchen or bathroom leaves  me sweating profusely and all my symptoms so bad that I have to wipe off or cool shower and then I usually an so exhausted I have to lay down and rest (or sleep) for a few
hours.  On the oposite side I can go outside in 30 degree weather in a t-shirt and don't feel cold until I've been outside for quite some time.   I have too many symptoms to possibly list here and some I don't know quite how to explain. BUT I AM DESPERATE AND IN NEED OF HELP!!!!!! 
 
Can anyone HELP??????  Please Let Me Know!!!!   gagirl63, Abandoned, Alone, Scared and Dying in Middle Georgia

Post Edited (gagirl63) : 2/1/2010 6:56:22 AM (GMT-7)


dianna30
Regular Member


Date Joined Mar 2009
Total Posts : 90
   Posted 2/2/2010 12:47 AM (GMT -6)   
Georgia Girl,
 
I don't really know where to start.  I can feel your pain, I too have been diagnosed with MS and Fibromyalgia, among other things.  I too have been tossed from doctor to doctor, unable to find anyone to help me. 
 
As far as the muscle spasms go, I am not sure what is causing them.  When you have more than one disease/syndrome, it is hard to figure out which symptom is caused by which disorder. 
 
I think right now your priority needs to be finding a good doctor, one who believes what you are saying and is skilled enough to treat you.  Ask anyone here, finding the right doctor can be a very long road, but you are not alone in this struggle. 
 
Do you remember what your previous MS diagnosis was based on?  If you can provide the new doctor with evidence, such as doctor reports and MRI reports, you may be able to cut through some of the guinea pig process.
 
I wish you luck, and remember...you are not alone!  We have all been through similar struggles and are here to provide support for one another.

Be joyful in hope, patient in affliction, faithful in prayer (Romans 12:12).

http://diannaschnabel.blogspot.com/


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 384
   Posted 2/3/2010 11:41 AM (GMT -6)   
HI there, at first glance, it sounds like MS hug to me.....it generally starts in the chest area, where the chest muscles spasm (tighten up - become shorter, etc) cause what feels like chest pain.  I get this and many others get this as well........symptoms can range frome being isolated to lets say just chest pain, but it can also create multiple sympoms similar to what you are experiencing..
 
I know that when I get MS hug, my chest feels tight and full, I get heart palps, I have problems breathing, and I do beleive during these times that my back ache and neck pain as well....
 
However having said this, I suggest that you do go get checked out - just to make sure tht something else is not happening to you, something that is not related to MS
Gary

becky723
Regular Member


Date Joined Feb 2009
Total Posts : 31
   Posted 2/5/2010 12:54 PM (GMT -6)   
it sounds strange, but i was very happy to see your post. i too have "fake heart attacks", not every day, maybe once a month. i don't have shortness of breath with them-just pain- usually midsternum, but also midback, jaw, throat and shoulder. for me they are short-lived(none longer than 15 min) and have no lingering effects. the docs once again have no explanation.they say it may be GERD or gall bladder related. i'm sorry yours is so intense, but glad i'm not the only one. i can live with mine pretty easily right now. hope you get some relief.

radpetey
New Member


Date Joined Feb 2010
Total Posts : 7
   Posted 2/16/2010 12:05 PM (GMT -6)   
I have not been dx with ms but have these chest pains with no shortness of breath, blurry vision, severe lower right back pain, frequent muscle twitching, tremor in right thumb-hand while holding fork or newspaper, and pretty much non-stop stiffness in lower back and legs without activity causing it............wasup?

Hurtin'
New Member


Date Joined Nov 2011
Total Posts : 1
   Posted 11/18/2011 7:34 PM (GMT -6)   
You're not alone. I was diagnosed with Fibromyalgia in 1992 and I can identify with the crushing chest pain that affects your shoulder, arm, ribcage, neck and jaw. In fact, am experiencing that at this very moment. I too, have been through rigorous cardiac screening and angiograms that show absolutely NO blockages. The chest pain is relatively new - 4 years now. I've had CT scans, MRIs, been assessed by Rheumatologists, Neurologists, Physiatrists, and a lot of other "ists" too numerous to mention. Along with the pain, I get the symptoms of sweating and dizzyness - which always brings the ambulance teams in record time. I'm getting tired of paying those bills so now I ignore the pain - much to the frustration of my friends who fear that someone is missing something in my diagnosis. So now I don't even tell them - I can't bear to have them worry along with me. It's terrifying enough for me when it happens, so I certainly don't want my children in constant distress.

The fact is, the medical profession does not know what to do with us. I'm from Canada - it's the same here. If you don't fit into one of their lists of symptoms, they throw their hands up in frustration and shake their heads. It will be up to us to figure this out. I have reduced my flareups to a great extent but still have lots to learn.

First of all - if you smoke or have any other unhealthy habits - stop. Do whatever it takes to give your body a chance to restore itself. Do not use sugar, or foods with chemicals in them - eat nothing you cannot pronounce the name of. The food you eat must be pure food - not processed. You wil notice a world of difference if you are consistent with this. One bacon and tomato sandwich can make me sick for days. First of all, I cannot tolerate wheat products. Secondly - I cannot tolerate pork and using salt is poison to me. Keep a food diary - and you will soon be able to tell what triggers your flareups.

The most help I have received is from massage therapists, physiotherapists, chiropractors, acupuncturists etc. Those are not part of our free health care in Canada and since I cannot work, I cannot access those services as often as I need to. Also, as much as it is painful - exercise is an absolute necessity for maintaining flexibility and mobility - also a challenge as our Canadian winters are not conducive to walking outside - therefore to keep up with that requires money to do it at the gym.

In addition to eating pure food - it's imperative to get rid of the chemicals most people use daily. Household cleaners and laundry products are among the most toxic and most use fragrances to cover their nasty smells. Fragrances are petroleum based - all of them! The off-gassing that occurs from fabric softeners, perfumes, hair care products etc all have an effect on our bodies. When you have FM. your body is super-sensitive and overloaded.

Is changing all of this easy? Absolutely not, but it does improve one's quality of life and if we change what we can, that's all we can do. This is an isolating condition. Friends sometimes disappear - families get tired of hearing about it - and often some people go so far as to say we are making it up. Who would choose to live with this? No One!!!

I just wanted to thank you for your courage in speaking up and sharing your symptoms - I wish I could wave a magic wand and make you feel better
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