I don't have time to be sick....so am I really?

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blinkandimgone
New Member


Date Joined Feb 2010
Total Posts : 2
   Posted 2/5/2010 8:47 PM (GMT -6)   
Hi....this is my first post here as I'm trying to sort out what's going on with me. Apologies in advance if it gets long....


I'm 34, female, relatively fit and I feel like my body is falling apart. I was diagnosed a couple of years ago with bipolar. I've always been up and down and had extreme mood swings and a few other things here and there. Things have gotten much MUCH worse a few years ago, started to go downhill quickly about a year or so before I was told I was bipolar.

Here's my list of 'things' that are wrong with me or have happened to me, in no particular order:

- random blackouts dating back at least 10 years, no loss of consciousness just can't see and dizzy to the point of falling over
- constant sweating, only when I'm either cold or at a comfortable temperature, I rarely sweat when I'm hot
- depression, anxiety, fatigue - unrelated to any incident, it just comes and goes with no warning
- my body gets tired to the point where i just can't bring myself to do anything, too much work to lift my arms or legs
- i wake up numb, not just a bit, either one whole side or almost my entire body
- extreme reactions to cold, i'll stay cold for a couple of days after being outside for a short time in the cold, can't get warm
- i have to shower very hot because 'warm' makes me cold, but i feel exhausted afterwards. i'm always turning up the water because it's never warm enough, i don't know if perhaps i just can't feel it anymore?
- my arms or legs 'fall asleep' all the time. i've just about face planted at work trying to walk across the office after sitting for a few minutes
- my face gets numb, on one side beside my eye and my forehead. i can feel it when i touch it but otherwise it feels prickly
- i feel like i have a rope tied around my rib cage, about where my bra band would be. bought bigger bras, stopped wearing them...didn't help. it doesn't hurt or inhibit my breathing, it's just there
- i shake....a lot. not all the time other than my hands. somedays my whole body shakes, worse when i'm stressed but oftentimes just because, i was told it was 'essential tremor' and put on propranolol
- sometime my legs feel like jello, usually when i'm trying to do yard work or something strenuous they just don't want to hold me up
- my eyes get fuzzy and blurry, feels like there's something in them but no about of rubbing makes it better


I've had a few of the things as long as I can remember but only on and off and nothing that seemed too severe at the time. The last 2 years have been especially difficult, it seems like one thing after another and I attributed the anxiety and mood swings to the stress until they told me I was bipolar. It seemed to fit at the time.

I think my boyfriend has pretty much had enough of all of it though and he seems to feel I have MS. Is practically shovelling it down my throat in fact. He goes on and on about how every 'symptom' I have could be it and this CCSVI thing he reads religiously about all of a sudden.

He thinks it's all attributed to injuring my neck a few years ago. I was told I had a herniated disk after a fall in the winter. I did physio for 12 weeks and went to a chiropractor for 9 and then my insurance coverage ran out. It never really healed, it's pretty much been messed up ever since. He saw the news coverage on this CCSVI thing and decided this was probably what I had and if I get treated for it it would likely all be better.

So......I have a lot of symptoms, I haven't spoken to my doctor about it yet, partly because I don't like the idea of asking for a particular diagnosis. I'm not in denial that there's something wrong, I just literally have very little time to deal with it if there is.

Is this MS or am I barking up the wrong tree? I don't have time to be sick :(

dianna30
Regular Member


Date Joined Mar 2009
Total Posts : 90
   Posted 2/5/2010 11:17 PM (GMT -6)   
I hate to tell you, but none of us have time to be sick.  :)  Unfortunately we don't get to choose these things.
 
First of all, you should probably not pursue this issue until you have insurance lined up, because the testing and treatment for MS costs tens of thousands of dollars each year.
 
Once you have health insurance taken care of, you need to get yourself into a doctor and get started.  You may have MS, or something else, but chances are that it will take several months if not a couple of years for doctors to decide what's wrong with you.  Once you have a diagnosis, there are many treatment options available.  For MS there are treatments available that can help slow the progression of the disease, so this is an important reason to get things going as soon as possible.  Also for MS, if you are having a severe relapse, or exacerbation of symptoms, your doctor may order a short course of steroids to help your body snap out of it.  There are also treatments available to help alleviate many of the symptoms of MS, such as medicine to help with fatigue. 
 
For now, you should try to avoid temperature extremes, especially becoming overheated, because that could exacerbate your symptoms.  You should also try to find ways to get more rest and concentrate on prioritizing your activities.  Nobody wants to be sick, or to slow down their life, but fatigue and stress can both make your symptoms worse, whether you have MS or some other problem.
 
Last thing, that tightness around your rib cage sounds like a typical MS symptom, the "MS hug."  Good luck, I hope you can get things worked out.

Be joyful in hope, patient in affliction, faithful in prayer (Romans 12:12).

http://diannaschnabel.blogspot.com/


blinkandimgone
New Member


Date Joined Feb 2010
Total Posts : 2
   Posted 2/5/2010 11:42 PM (GMT -6)   
Thanks Dianna, I appreciate the reply.

I should clarify, I am in Canada so I expect most of the testing and some of the treatments for whatever this is would be covered and I also have private insurance that will pick up some of it for at least a while but it's pretty...skimpy.

I think it's quite possible I could have MS.....I just already have two very high needs kids as it is, a full time job and another at home part time job. Add in a less than amicable divorce on top of it and the timing just couldn't be worse.....not that I could think of a good time for anyone to get sick. I'm just hanging by a thread as it is.

In a way it would be a huge relief to at least know what the diagnosis is and get it treated - knowledge is power right? I didn't think it would take quite that long to get it figured out. My boyfriend and I actually argued this point, he seems to be under the impression I can walk in, tell the doctor that I think I have MS, get an MRI and everything will be on it's way. I do love him for trying and his optimism. I just worry as well that he'll be so dissapointed if it isn't MS because then it's back to square one trying to figure out what's wrong.

I have tried reading up on different forums on whether this sound like MS but there's so many posts that describe all kinds of medical speak that I have no idea what it means which can make it difficult to find info, lol.

*sigh*

I do have an appointment scheduled in a few weeks or so with the doctor, I will just have to figure out how to approach this with him I guess to get some things started.

Thanks for the suggestions, I will try those things and see if it helps or at least keeps it from getting any worse.

Post Edited (blinkandimgone) : 2/5/2010 10:57:28 PM (GMT-7)


dianna30
Regular Member


Date Joined Mar 2009
Total Posts : 90
   Posted 2/6/2010 10:52 PM (GMT -6)   
I feel your pain.  When I first got sick, it was only a month after the birth of my youngest daughter.  I have four kids and my oldest was only four years old at the time.  My husband also travels a lot with the military, so there I was in and out of the hospital with four babies and no husband.  I also had to drop out of nursing school.  It has taken some time, but my life is finally back on track.  It is on a different track than before MS, but a good one nonetheless.
 
I do think that many of your symptoms fit MS.  I suggest you keep a journal of symptoms until your doctor appointment.  Record what kind of symptoms you are having and also pay attention to whether they increase with fatigue or heat, because those are important clues.
 
Good luck!

Be joyful in hope, patient in affliction, faithful in prayer (Romans 12:12).

http://diannaschnabel.blogspot.com/

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