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radpetey
New Member


Date Joined Feb 2010
Total Posts : 7
   Posted 2/15/2010 10:20 PM (GMT -6)   
Hello virtual homies! I am new to this forum so have mercy on me as I try too get this all out. I was led to this site by an unrelated search, Any way, I have not been feeling well for a couple years now, and have researched every disease known to man and I HAVE THEM ALL. No I really don't but the info on this site has troubled me. I am a 39 year old male. I guess in 2003 I noticed a change in my vision; not so unusual you think to yourselves, but to this point I have had literally bionic vision. I first noticed it as I was peering across the gym at my beautiful wife It was getting blurry. My eyesight has continued to deteriorate(especially my left eye) ever since. I have had headaches (mild) in the last two months. I have chronic lower right back pain, very serious at times, and feel stiffness in back and legs that resemble heavy weight workouts almost every day. Problem is I have not touched a weight since 2005. My most troubling symptom is a slurring of speech and always grasping for the right word. I have had the word problem for 5 to 10 years despite a 144 I.Q. My cholesterol has been 260- 280 despite being in a very fit state(1993-2005) also have a tremor in only my right thumb and hand when I hold a fork or a newspaper(5-10 years) It seems I have recently been suffering from a potential case of Raynauds. I have had trouble sleeping for the past 5 years despite higher levels of physical activity. forgive me for rambling, but my experience with doctors has been sketchy at best. Is there any feedback out there for my rambling self? Should I be concerned? Any comments, medical or from experience wold be greatly appreciated....... My prayers and sympathy go out to those of you suffering, and am encouraged by all the support I see on this website....LOL.......radpetey........P.S. I know my grammer/punc. sucks.

Post Edited (radpetey) : 2/15/2010 10:03:59 PM (GMT-7)


whatshername004
New Member


Date Joined Feb 2010
Total Posts : 1
   Posted 2/17/2010 8:58 PM (GMT -6)   
I can't answer your question but I can identify with the blurry eye.  It might be called Optic Neuritis.  I have it in my left eye.  It started slow and then got bigger and bigger.  I've had a MRI that said I do indeed have it, but don't have enough symptoms or enough lesions on my brain or spine or whatever to show that I have MS.  I think my doc is being a Hard you know what but I'm not sure about the medication yet.  And btw this is my third doc.  I also have trouble with words.  Most of the time I just give up and say the wrong one or describe it and someone can tell me what it is.  I'd say go to a neurologist.  Have an MRI to at least get a baseline for any lesions.  Keep yourself informed.  If it is MS there are tons of resources out there. 

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 2/18/2010 10:58 PM (GMT -6)   
Hi radpetey,

I have two purposes for posting this: first to let you know that you are NOT alone, second, to urge you to take action!

I can relate to your post VERY well indeed, except that my first troubling symptom was the lower back pain-stiffness-heavy legs thing. The blurry vision came along later.....and yes, I used to have vision that a fighter pilot would have envied. Now I have not only blurry vision, but also vertical double vision plus vertigo pretty much all the time. As for trouble with speech....sometimes it feels as though my mouth and tongue are extremely "clumsy"; I've actually bitten my tongue before while trying to talk.

Regarding the "forgetting words" thing....check out this post on the lupus forum that I just wrote about my "brain fog"! LOL! Trust me...you are not alone!

I have Raynaud's syndrome too. Plus every other autoimmune disease and related disorder known to man!

tongue

I too am exaggerating, but just barely.....please see the list of diseases (blue) and medications (red) in my signature at the bottom of this post. I am VERY well acquainted with doctors and the medical community at large and, just as whatshername suggested, I think you should get yourself to a neurologist ASAP! Do you have a primary care physician?? Ask him or her to refer you if you don't have PPO insurance. You may also need to see a rheumatologist....hard to say at this point.

There are several illnesses that could be responsible for your conditions, some that come to mind are MS, Lyme disease, lupus/UCTD/MCTD, and/or fibromyalgia. Or a mixture of a bunch of different things, like I have. But you need to see a doctor and let him/her diagnose you. I can tell you about my own experiences and give you my opinions but I'm not a doctor....you have to remember that!

You may possibly need to see more than one doctor, but take it one day at a time, one appointment at a time. As the previous poster said, keep yourself informed. Be your own advocate! If you have trouble with your memory, write down a list of questions to ask and make a list of your symptoms before you go. Be sure to get copies of all your medical records. Some people with memory issues even bring tape recorders with them to the appointments and tape them so that they won't forget what the doctor told them! If you see a doctor who won't listen to you, find another one! One of the most important characteristics of a good doctor is that they listen to you! And that they're willing to talk to you and explain things....

Good luck with everything!! Please keep us posted!!
JoAnn
Lyme Disease, AIH, Hashimoto's, "lupus-like" CTD?, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate

autoimmunediseasesgfliving.blogspot.com


AmyBoo
New Member


Date Joined Feb 2010
Total Posts : 5
   Posted 2/20/2010 12:29 PM (GMT -6)   
Radpetey - Reading your post was like looking in a mirror

I have been to the doctors and they have confirmed symptoms of almost every disease out there yet have no diagnosis and don't seem particularly motivated to find one. I'm tired of hearing "This is very interesting, we'll have to watch this and see how it progresses" I used to be athletic, energetic, strong ... my troubles started as nagging lower back pain and have progressed from there. I'm only 32 years old but the MRI and Xray's of my back reflect that of a 90 yr old. I was very glad to hear your alternate description of the odd pains I feel in my limbs... it does kind of feel like I worked out really hard yesterday and now Im all stiff and it hurts.. yet I haven't lifted anything heavier than 5 lbs in at least 2 years. I always describe it as feeling like I have had my arms and legs replaced with logs.

I can't give you any answers but hopefully you can find comfort in the fact that there are at least 2 of us out there! Definitely keep me posted with anything you find.

radpetey
New Member


Date Joined Feb 2010
Total Posts : 7
   Posted 2/22/2010 10:01 AM (GMT -6)   
Hey guys and girls out there! Thank you very much for taking the time to respond to my rantings. I really appreciate it. I am taking action and will post any thing I find out........lol........radprtey
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