Newly diagnosed

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Kelly O 6
New Member


Date Joined Feb 2010
Total Posts : 3
   Posted 2/23/2010 12:19 PM (GMT -6)   
Hi all.  I am a newly diagnosed MSer.  I have been suffering, what I think, are exacerbations of MS for a long, long time now.  I had a clear MRI brain last April 2009.  I had a clear MRI C-spine, lumbar spine this past month with the exception of cervical disc disease.  I am 41 years old, married 15 years with 6 children ages 12 down to 1 (born last Feb).
 
It is my opinion that after the birth of my youngest last Feb my MS has gotten considerably worse.  I spent 5 weeks in the hospital on bed rest before her birth and she was born 5 weeks early.  I underwent a 4 hour surgery with her.
 
I am being sent to a neurologist in a major city who specializes in MS.  It's weird because there's a part of me that just can't feel comfortable with the diagnosis since my MRI last year was clear.  They've run TONS of blood work and done the MRIs as well.  Everything has come back clear except the clinical symptoms.
 
My symptoms:
 
1.  Migraine sufferer since I was 12 which have gotten progresisvely worse through the years.
2.  Neurological symptoms worsening for about a year now - forget names, phone numbers, takes a long time to process if someone asks something of me, recall is horrible - can't think of the right words, slowed speech and sometimes slurry speech.
3.  Peripheral neuropathy - tingling in hands, feet and face.
4.  Horrible foot pain (sometimes I can't even walk on them they hurt so bad) and stiffness and wrist pain and stiffness.
5.  Left big toe goes numb quite frequently.
6.  Extreme fatigue.
7.  Lack ambition completely.
8.  Worsening depression.
9.  I failed the balance test in my GP's office.  Closed my eyes with arms extended and fell backwards twice.
10.  Constanly dropping things.  Grip stength is diminished greatly.
11.  Muscle fatigue.
 
Part of me thinks this may also be borderline Parkinson's as well, but I have never said anything to anyone about that.  I have had a slight tremor in both hands for years.
 
Anyway, I was wondering if you, who have been diagnosed have any thougts on this?
 
Thanks in advance,
Kelly

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3523
   Posted 2/24/2010 8:47 AM (GMT -6)   
You certainly share symptoms of MS.  Very often doctors won't give an MS diagnosis without those pesky lesions showing up on an MRI.  Is this doctor going to prescribe MS treatment?
 
Birth of children is often a trigger for a flare.  For some reason, pregnancy hormones seem to be protective and after birth, when those drop again, MS can rear its ugly head. 
 
We have a parkinsons board here.  You may want to post your symptoms there and see what opinions or suggestions you get. Good luck!!
 
6 kids!!!  wow!  You go girl!!!
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Kelly O 6
New Member


Date Joined Feb 2010
Total Posts : 3
   Posted 2/24/2010 10:43 AM (GMT -6)   
Thank you Grethchen.  I really do appreciate your response very much! :)
 
I have good kids and feel very blessed.  They are homeschooled too.

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 3/5/2010 10:30 AM (GMT -6)   
Hi there, it is not unusual for people to go for an MRI, and no lesions are present. It took three MRI's before the lesions did show up.
 
You mentioned surgery.....I recently spoke to my neurologist about this, and he advised that sometimes the MS is just sitting there looking for an excuse to raise its ugly head....and Ido beleive that this was the case for me, as although I di have some things occuring with me prior to surgery, it did not really come to the surface with full force until after I had gall bladder surgery, and then all hell broke loose...
 
Yes you could fo to a doctor and have them test you for Parkinson, to see if your dopamine levels have been depleted.....you did not mention tremors, resting tremors (unvoluntary shaking when an effected muscle is not in use, and then the tremors go away afer the same muscle is being use - early stages of PD)  about 80 percent of PD patients experience this...
 
Any how good luck with this, and hope they come up with a definate dx for u so that you can start treatment as soon as you can
 
Gary

stapes
New Member


Date Joined Mar 2010
Total Posts : 4
   Posted 3/19/2010 10:57 AM (GMT -6)   
hey all. i have just been diagnosed with ms. im convincing myself i can lead a normal life....is this possible?

betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 3/21/2010 9:40 AM (GMT -6)   
Kelly,

Have you been tested for lyme disease?
Has your nuerologist suggest getting a lumbar puncture to confirm MS?

Hard to believe the MS diagnosis without the evidence of lesions or lumbar puncture results.

Hope that you get some definitive results soon.
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Gabapentin, Vitamins B,C & D
 
 

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