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swim mom
New Member


Date Joined May 2010
Total Posts : 1
   Posted 5/2/2010 12:45 PM (GMT -6)   
Scared and confused......last year I went to the Dermatologist   because my face was tingling.  She thought it'd be a good idea to apply ointment (it's like a chemo....I've had melanoma so I have to be careful) to take care of any sun damage that could have been there although there was nothing obvious..... It's been over a year and  I keep getting that tingly feeling more often and more noticeable.  I finally called derm last week thinking it was effects from the ointment and she said that I need to call my dr..  2 days later my ear started to hurt and after an hour a so I couldn't tell what was more numb my ear or my hand. Facial numbness on the internet kept bringing up MS....it was like putting a puzzle together when I did even know I had one........I've been getting this spasm thing around my ribs....almost takes by breath away....It's really uncomfortable thot it was from gaining some weight.......I get a feeling from time to time like someone is touching the back of my head....maybe I have a ghost......my left hand just plain feels weird all the time....can't explain   Long story short.....
Went to Doc Tuesday and she was very concerned and wanted to do a MRI asap.....(I'm closterphobic) I asked that we do blood work to rule out other stuff 1st.  Blood work was perfect but B12 was low on the normal side.....decided to try shots. Went in for shot  wed and talked to doc #2 (other was off)  asked what he thot, he said it couldn't be MS because my vision is fine  and my b12 isn't that low. My sis is a MRI tech and said a woman was dx last week and she woke up and couln't talk......every patient she's seen had headaches and vision problems......Now I feel like a idiot
Problem for last 2 days is I feel like I got hit by a train......I ache from head to toe and my limbs feel like concrete.....I really don't feel right......I'm concerned....any advice? 
Is there always vision problems?   Am I a hypochondriac????
 

Post Edited (swim mom) : 5/2/2010 2:22:36 PM (GMT-6)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 5/2/2010 3:22 PM (GMT -6)   
While vision problems are common (some say 50% complain of this symptom early on in the diagnostic process) it is certainly NOT something that all MS patients have experienced.  Your doctor doesn't know what he is talking about.  You need to see an MS specialist and unfortunately, you are going to need an MRI to get anywhere in this.  I don't have any headaches beyond the occasional stress or sinus headache.  I didn't have vision problems to start with.  You will only have vision issues with MS if your optic nerve is affected.  This is not always the case.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 5/2/2010 7:48 PM (GMT -6)   
What you are describing sounds like fatigue.  That is a very common MS symptom.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 5/2/2010 9:06 PM (GMT -6)   
Try the neurologist but if you get no answers, then do make an appointment with an MS specialist.  You may need to be willing to travel for answers.  Once you get a diagnosis, whatever that may be, then you can keep it close to home. 
 
I know one lady that after her diagnosis, she had her GP manage her MS just fine.  Many neurologists just aren't familiar with MS.  I have heard the strangests things from regular neurologists "You can't have MS since your eyes are fine"  "You have lesions, but they aren't in a typical MS pattern" "You are too (young, old, healthy) to have MS"  "I see lesions but we are just going to keep an eye on things"............these would all be huge red flags!  None of those statements are accurate.
 
Best of luck to you.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 5/3/2010 5:56 PM (GMT -6)   
Hehe.  You will start hearing that from doctors as well.  Stop reading the internet, stop self-diagnosing.  If it make you feel better, keep a symptom journal. Write whatever you want that you think is relevant.  Try to do it as a log and not an emotional diatribe.
 
Monday @ 5pm - during a short nap, arm twitched hard enough to wake me.  Felt like an electric shock. (that sort of thing)
 
Then if you want, you can share these with a doctor.  He/she can decide what is important and what is not.  By the way, it is extremely common to twitch just as you fall asleep.  It is called myclonic jerk (google it, just don't tell hubby;).  It is just a weird thing that happens and it usually means nothing.  I have done this off and on for a long time.  It seems to have nothing to do with my diagnosis.  I was doing it way before I had any MS symptoms. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 5/3/2010 10:06 PM (GMT -6)   
MSers are typically very sensitive to heat.  Before MRIs, a doctor might use the hot water test to help diagnose MS.  They would do a neurological exam (reflexes, responses etc) then put you in a nice hot tub of water for 20 minutes.  They would take you out and do those same exams again. 
 
When I am over hot, I walk like a drunk, slur my speech, lose coordination, and generally feel awful.  I am fine as soon as I get cool again.  I am also 47 and I do have the hot flashes of periomenopause.  In my opinion, they are probably two seperate issues. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


SweetnSour
New Member


Date Joined Oct 2009
Total Posts : 10
   Posted 5/6/2010 12:59 AM (GMT -6)   
Gretchen
I am 48 and also get the hot flashes...would love to talk (write) with you..can I have your email address?

Pennye

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 5/6/2010 7:05 AM (GMT -6)   
My email adddress in in the little square just below my name on the side "profile".  You will also find it if you click directly on my name on the profile. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 5/9/2010 6:49 AM (GMT -6)   
Hi swim mom,

I have lyme disease and suffer from all the numbness that you describe, especially in my face. Last summer I had Bell's Palsy which resolved quickly after a few weeks of antibiotics. I now have numbness over most of my entire body. The intensity seems to vary from day to day but I always have it in the same areas. Caffine and Stress directly stimulate the intensity of the numbness.

In your persuit to find answers, I recommend continued testing for MS. Get an ELISA or Western Blot blood test to rule out Lyme.

I have read that some medications can also cause neuropathy.

Hope you get some answers soon.
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Amoxicillin, Azithromycin.
 
 

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