I am new and my husband has secondary progressive ms

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

sweetmickey2976
New Member


Date Joined May 2010
Total Posts : 2
   Posted 5/24/2010 8:13 PM (GMT -6)   
hello everyone!  how are you?  Trying to meet and learn from lifes experiences as to how to help someone with secondary progressive ms.  Looking forward to meeting people and learning.  Thanks

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 5/26/2010 7:14 AM (GMT -6)   
Hi and welcome.  You sound very loving and supportive.  That is wonderful!!  Please tell us more.  How is your husband doing?  What are his main symptoms?  How long has he had MS?  Tell us anything else you would like to.  How can we support you?
 
I am glad you are here.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


sweetmickey2976
New Member


Date Joined May 2010
Total Posts : 2
   Posted 5/26/2010 1:31 PM (GMT -6)   
Hello!  A lot has changed.  He worked as an EMT Cardiac and a volunteer firefighter.  He stopped working and volunteering 5 or 6 years ago.  I believe this was his livelihood.  His friends and familu do not call or visit.  I think they are in denial.  He gave up his driver's license so he would not harm anyone.  he has optic neuritis.  I have started taking him to Boston to the MS Clinic.  He had a period for a few months where he had no idea what was going on and I made all the decisions.  A few months later he said out of the blue Why is James riding the school bus?    Then I knew he was back.  He will never be the person I first met but I will do everything I can for him and my son.  Tell me how the disease affects you.  He is primarily wheelchair bound.  Happy Memorial Weekend 

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3518
   Posted 5/26/2010 5:32 PM (GMT -6)   
I am quite new to MS.  I have had it just about 4 years now.  I have only been very mildly affected.  I have numbness in my feet.  I have chronic vertigo and balance issues.  I have had optic neuritis.  I have spasticity in my left leg.  I have some fatigue.  I still work full time.  There are things I can't do or do well but for the most part I am pretty unlimited.  I am lucky so far.
 
MS typically hits men much harder than women.  I am sorry he is having such a hard time.  Does he see an MS specialist?  My doctor will do cognitive testing and has strategies and therapies to help with that sort of thing.  It seems like your husband could beneifit from that.  You may want to ask for that at the next appointment.......or better yet, call now about that sort of thing.  Let me know!
 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


sotiredoffibro
Veteran Member


Date Joined May 2010
Total Posts : 1556
   Posted 6/2/2010 9:09 PM (GMT -6)   
Hi sweetmickey, I just thought I would let you know that I my husband also has secondary progressive MS. He was a former bus driver and for the last 5 years he has been unable to even drive a car. He has severe bouts of depression due to the fact that he can no longer do the job he loved. I go with him to his psychiatrist appointments because he has a hard time getting out what he wants to say or he forgets things. I have fibromyalgia and I am no longer working which gives me more time for him. It is very painful to watch someone you love so much go from a strong workaholic to, too unsteady to carry a cup of coffee to the table. The best advice I can give you is just keep loving him and learn as much as you can about MS. That way when he does things you dont understand it will help you realize whether it is the MS or not.
Shirley
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, August 17, 2017 1:12 PM (GMT -6)
There are a total of 2,856,671 posts in 313,436 threads.
View Active Threads


Who's Online
This forum has 155075 registered members. Please welcome our newest member, Lgail8.
536 Guest(s), 18 Registered Member(s) are currently online.  Details
alephnull, kernel.panic42, MamaLama, EruditePaul, Woogy, Girlie, skimlatte87, Blessedone67, Faustmann, FlowersGal, Pitty, BDMX2, tune, Red Leg, WifeofPie, Dollco2, straydog, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer