How common is tingling hands and feet with MS? (and normal EMG)

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bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 5/26/2010 11:56 AM (GMT -6)   
Hi everyone, I am still looking for answers for my symptoms. I don't have many symptoms of MS but I do have tingling hands and feet, dizziness, numb cheeks, eye discomfort, get fatigued easily when stressed, and electric feelings. However, I also have aches and pains throughout my body which is more common of fibromyalgia. My mom has Fibro and my Aunt (mom's sister) has MS.

I initially started with hip pain-- that has lasted 7 months but it is not as bad now. THen just a month ago, started with the tingling hands and feet, also sore hands and feet at times and sore spots throughout my body. The reason I suspected MS and not fibro is because I am not sure how common numb cheeks and "electric" feelings is with MS. but that doesn't explain all the aches and pains, or is that common with MS as well? It's not shooting pain at all, just more like sore spots, but with aches in my hands is more like weakness.

I just had the EMG and nerve test and that was all normal.

I am still waiting on the blood test-- got tested for all the typical stuff- lupus, RA, hypothryoid, B12 deficiency, etc.

If I don't have any peripheal neuropathy, where does the tingling come from?

He did say if the blood test is normal I can get a brain MRI. So far, I just had a lumbar MRI and waiting on results from that.

I know none of you can diagnose me but just looking for some experiences and if you can relate.

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 5/26/2010 11:58 AM (GMT -6)   
meant to say not sure how common the numb cheeks and electric feelings is with Fibro

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 5/26/2010 12:03 PM (GMT -6)   
oh, I also get muscle twitches (not spasms) all over my body. seems to happen mostly when i am hot or stressed.

betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 5/26/2010 4:21 PM (GMT -6)   
Hi Bridget,

Welcome to the MS forum! I have all of the symptoms that you describe and am being treated for Lyme Disease. I suggest that you ask your doctor for a Western Blot blood test to rule out Lyme Disease. I know that MS, Lupus, Fibro and Lyme share many of the same symptoms, so it can take a while to get a diagnosis. I hope that you find out what is going on soon.
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Amoxicillin, Azithromycin.
 
 


Gretchen1
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Date Joined Jan 2007
Total Posts : 3032
   Posted 5/26/2010 5:42 PM (GMT -6)   
I was also thinking you needed to be tested for Lyme disease.  Your symptoms are right on for Lyme.  MS doesn't typically have general aches and pains or sore spots.  Pain is MS is usually either nerve pain or spasticity pain (overy tight muscles from dysfunctional nerve messages).
 
EMG is not a test used for MS.  EMG tests for peripheral nerve disfuntion.  MS is a central nerve disorder/disease.  MSers frequently have nerve pain that is similar to peripheral nerve problems but that is not what causes ours.
 
The most common test for MS is an MRI.  This usually is ordered after someone has seen a neurologist.  That neurologist should have given you a neurological exam that tests for certain reflexes and responses.  In addition to an MRI, other tests might be .............evoked potentials (this is the test of the central nervous system), a lumbar puncture, blood work, and a thorough check of symptoms.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 5/26/2010 10:26 PM (GMT -6)   
wouldn't I have some kind bump or rash if I had that? I looked it up and it said it is from a deer tick, but we live no where near any deers. I live in the desert.

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 5/26/2010 10:54 PM (GMT -6)   
okay, now I see some people never see a rash, however, I don't have a fever or headache, or a lot of of the symptoms mentioned. It is something good to think about though, thanks!

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 5/27/2010 12:51 AM (GMT -6)   
what about muscle twitches? isn't that a symptom of MS? I think if I don't have MS then I probably have fibromyalgia.

apeter
New Member


Date Joined May 2010
Total Posts : 12
   Posted 5/27/2010 1:21 AM (GMT -6)   
bridget10,

I'm gonna jump in with what betterhealth said:
I don't have an MS diagnosis, but I do have experience in dealing with Lyme so this is just my 2 cents.

It is a common misconception that you must have the rash and/or the joint pain in order to have been infected with Lyme. Lyme symptoms can be just about anything and they can hit you in any combination and have a tendency to change, even jumping around to different parts and systems in your body. And as far as exposure, don't forget any trips you have taken to regions where Lyme is endemic, and even if you don't spend much time outdoors its all to easy for one of those ****** ticks to jump from an unassuming household pet on to you. I would make sure you get the blood test for Lyme added to your list of tests. If you are in a position to make requests (and baring any insurance issues), I would ask to skip the often unreliable ELISA titer and have the Western Blot done. Keep in mind that even if the test comes back negative and you feel that you really might have Lyme you can seek a diagnosis based on your symptoms, its just a little harder. But you'll cross that bridge if you come to it.

Best of luck to you! I know how such multi-focal health issues can really make you feel crazy, and with so many illnesses with similar symptoms (all, it seems, cruelly lacking black-and-white diagnostic criteria) it can be a long road to diagnosis.

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 5/27/2010 9:17 AM (GMT -6)   
I haven't taken any trips to wooded areas. thanks, it is good to know but after reading about it, I really don't think I have that. I would think the neurologist would have mentioned that by now. I can ask, but it is just more money to spend.

and I already got my original question answered from an article which said tingling in hands and feet is common in MS.

thanks for your input.

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 5/28/2010 12:21 PM (GMT -6)   
just an update, blood test results were all normal but they didn't test for Lyme. however, I did find out I have a bulging disc. I still have a feeling though that there is more to it. unless I also have a bulging disc in my neck. The MRI was only of my lumbar spine.

Here are all of my symptoms:

tingling feet AND hands
electric feelings once in awhile
dizzy, especially when hot
aches throughout body (especially my hands, feet and left elbow, but also my shoulder and triceps get sore and sometimes my upper back)
a weird crawling sensation in my head. It is so noticeable that it distracts me from what I am doing
partially numb cheeks
partially numb mouth (that started last night, then went away and came back this morning)
get tired easily
bump into things easily (maybe because of light headedness)
feel like I have to squint my eyes a lot, seems like I am sensitive to light
chest pain once in awhile (not sure if that is related)
muscle twitches all over my body
face gets flushed easily also (although doesn't look red, just feels flushed, especially when i am warmer than usual)

I think that's it! I am glad the blood test was normal at least

would a bulging disc cause all of those symptoms? Maybe I at least need to ask about Lyme testing and also an MRI of my cervical spine. I am also not ruling outr MS just yet since my Aunt has it and she said I do have a lot of the typical symptoms, but I know that could be anything.

KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 5/28/2010 6:15 PM (GMT -6)   
Bridget if you find the answer on the buldging disk I would like to know too, I have a buldging disk and have some of the same things going on.

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 5/29/2010 10:52 AM (GMT -6)   
really? Do you have MS? I'll let you know.

KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 5/29/2010 1:44 PM (GMT -6)   
No I do not, do not really know what is going on was guessing fibro but it's only a guess. I been having skin feeling issues, twitches and muscle pain so I was wondering if the buldging disk could be a problem.

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 5/29/2010 8:58 PM (GMT -6)   
where is your bulging disc at, if you don't mind me asking?

KellieJo
Regular Member


Date Joined Apr 2010
Total Posts : 382
   Posted 5/30/2010 5:46 AM (GMT -6)   
I had a MRI 5 years ago, the only thing i was told it was higher up (?). All I know was that my right side neck muscles became so tight I couldn't move my neck.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3032
   Posted 6/1/2010 7:34 AM (GMT -6)   
Bridget10,
 
Have you posted on the fibro board?  They may answer your questions about the electric feeling as well as the numbness.  I know that your sore spots sound much more like fibro than MS.  I also know that numbness can be an issue with fibro, but I don't have any personal experience with fibro and they may be able to better help you. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


TC444
New Member


Date Joined Jun 2010
Total Posts : 3
   Posted 6/4/2010 6:24 PM (GMT -6)   
Bridget10-I have some of the same symptoms as you and am trying to figure this out. I'd like to give you my email but I don't want to post it here. Click on my profile and I think you can see it? I just joined HealingWell a few minutes ago. I go in for blood work next week. I've had muscle pain in my right shoulder, then it went into my shoulder joint, then spread to other shoulder, then my wrists and knees. I have tingling in my hands and feet ALL the time, muscle spasms, constant muscle twitches and had a weird electric pain that shot through the middle of my back and down into my biceps. Then my biceps hurt. I've had an MRI on my shoulder that showed a tear, then an MRI on my cervical spine that just showed bulging disks and bone spurs but nothing that would cause all these weird symptoms. I am taking vitamin D & magnesium supplements now and I think it's helping. I'm thinking maybe a magnesium deficiency or fibro. I'm afraid of RA or MS but I probably don't have that. I did an search on various symptoms and found this forum thread. I should probably go to the fibro one. :-)
Oh, I forgot, I have Reynaud's and my hands are turning blue constantly right now which is freaking me out.
Take care everyone.
Bridget10-I'd like to know how you are doing and if you have a diagnosis yet. I hope you are okay.

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 6/5/2010 12:17 PM (GMT -6)   
thanks for your reply, TC444.... I hope you can figure out w hat is going on with you as well! It's so frustrating! Although part of me wonders if I should just forget about anymore testing and assume it is all just from the bulging disc...... but then the cautious side of me wants to rule out all other conditions first. I guess I feel that way because my mom has degenerative disc disease AND Fibro...... and my Aunt has a bulging disc AND MS..... so it makes me wonder if finding out about the bulging disc was just all coincidence. I do wonder if I should just go ahead and see a Reumotologist, but I do want to rule out MS first.... it's hard since MS and Fibro share a lot of the same symptoms... however, it is the tingling and light headedness and muscle twitches that bother me the most..... I do have soreness but it is really pretty mild. I looked on your profile and it said unavailable for email.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 504
   Posted 6/9/2010 12:41 PM (GMT -6)   
hi all,   i have ms and i also have a bulging disc between c5,and c6. i have ppms for 20+ years.as i have progressed over the years,i fall more. around xmas time i took 2 bad falls, resulting in pain in my neck and shoulders. when i turned my head to the left ,i got numbness and tingling  from the neck  and radiating out to shoulder(left side only)and down my arm to the elbow. also headaches and pain in TMJ area. lastly it caused more mobility problems. my pain specialist treated me with trigger point injections and an epidural. this got rid of the bulging disc problem, at least for now. then i started ampyra+baclafen. i now feel like a new man.      all the best  ppm guy

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 6/10/2010 3:34 PM (GMT -6)   
Hi Bridget10,
Do you have tingling on both sides in your hands and feet?  I also have the tingling in both sides hands and feet.  It started slowly back in 2001.  I wasted alot of time going to a Neuro that told me it was from the bulging discs in my neck.  At a routine visit to my GP many years later I mentioned the tingling because it had gotten worse.  She told me that the tingling on both sides couldn't be caused from the bulging disc it would only affect one side not both, and that I should have it checked out.  It turns out I had Lyme, the one thing the Neuro wouldn't test me for.  She asked me if I ever had a Bull's Eye rash and I said I never saw one and she said then you can't have Lyme.  When I went back to be re-evaluated per my GP's suggestion she re-ran all the test she did the first time and I asked her to run a Lyme test (she didn't want to but she did).  It came back CDC positive!  I had Lyme all along.  I pretty much have all the symptoms you listed.  I would suggest you read all you can about Lyme, because most doctors don't know anything about it eventhough they act like they know everything.  Good luck and I hope you don't have Lyme.
KO
01 Tingling in fingers/toes both sides, not tested at that time for LD
07 Summer pos. WB, diag with LD, neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Dr. Zhang's protocol stopped after 6 months symptoms returned.  Started Buhner's protocol May 2009


Melbears123
New Member


Date Joined Jul 2012
Total Posts : 1
   Posted 7/6/2012 4:17 AM (GMT -6)   
http://en.m.wikipedia.org/wiki/Diabetic_neuropathy#section_1

catmommy64
New Member


Date Joined Feb 2009
Total Posts : 14
   Posted 7/7/2012 10:17 PM (GMT -6)   
Is this an MS forum or a Lyme forum, lol?
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