What's really going on?

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nikchick
New Member


Date Joined May 2010
Total Posts : 10
   Posted 5/26/2010 6:33 PM (GMT -6)   
Hello, while this is not my first time to the forum, it is my first post. I have a few questions and hope someone may be able to answer. I am 32 years old and have been experiencing odd symptoms since I was 19. It started when I was in beauty school and sat down for about 2 minutes after doing a perm. I stood up to walk to the desk and my foot drug and I fell to the floor. This happened several times after that. Being that I was young and dumb, I did not do anything about it and just went on with my life. Since that time things have only gotten worse. Left side weakness, numb patches on my legs, fingers, and head, cant get the right words out or will be thinking of something and in the same instant cannot remember what I was thinking about, trouble with balance, dizziness, constant headaches which feel like I am being stabbed with an ice pick, a ripping type pain all over, horrible fatigue,( I am taking Nuvigil for that), tingling in extremities, confusion, trouble swallowing, eye issues, (when I look straight on at something my eyes kind of jump around or shake), flashing light in my right eye, horrible heaviness in my legs causing me to have walking issues, and the list goes on and on. about seven years ago I was seeing a neurologist because of balance issues. I had a lumbar puncture which they said was normal. I had 4 MRI's during that period which were positive for lesions. Quite a few if I remember correctly. I was going to the Neurologist regularly but eventually stopped because nothing was being done. Here I am today and the symptoms are worse than ever and affecting my life negatively. I am not asking for a diagnosis but rather suggestions of what I should do. I go to the Dr. so much that I am sure he thinks I am crazy. Does anyone have similar experiences? What would be the best thing for me to do? Thank you so much!

SillyMe2
Regular Member


Date Joined May 2010
Total Posts : 110
   Posted 5/26/2010 8:28 PM (GMT -6)   
It's been 7 years since you've seen a Neuro? Think you should find a new one and make sure you have your MRI's in the very least to bring with you. Did they say the Lesions were consistent with MS? Many have Lesions and no O bands in the spinal so then they have to take other circumstances before they make a diagnosis. So they would look for flairs that are consistent with MS. To me it sounds like MS but I'm not a doctor. Have you seen an Eye Doc? Did they check the Optic Nerve? I tried to see If I could email you but it doesn't let me. But please see another Neuro. and get your Primary involved as well.

nikchick
New Member


Date Joined May 2010
Total Posts : 10
   Posted 5/26/2010 10:31 PM (GMT -6)   
Thank you for your reply. It has been seven years since I have seen a Neurologist and I know I should have kept up with it. They did four MRI's and each time I had to pay a large amount of money. It got to a point where I couldn't afford it. The Neurologist I saw told me that the lesions could mean MS. He tested me for everything under the sun and everything came back negative. You mentioned my optic nerve and I should say that when I was around 18 I went to the eye doctor for a regular check up. She kept looking in my right eye and finally dilated my pupils to take a closer look. She said that my optic nerve looked frayed? Not sure what that meant. But this is the same eye that I see light flashes in and I also have floaters in this eye. Do you think I should start with an eye appointment or with my PC? I am sure by now he thinks I am nuts. Thank you again!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 5/27/2010 6:55 AM (GMT -6)   
Go see an MS specialist.  Go see a neurologist that specializes in MS.  Contact your local MS society for a list.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


SillyMe2
Regular Member


Date Joined May 2010
Total Posts : 110
   Posted 5/27/2010 5:10 PM (GMT -6)   
I'm not sure what insurance you have but you should see someone who knows MS and you should see an ophthalmologist. IF you can't afford to see an ophthalmologist then see what Pearl or Eye centers by you that will dilate and take a picture of your eyes. Tell them that's all you want done and see if that works. After 7 years they will probably want another MRI done. Did you know that different hospitals have different fee's for that? Call up and shop around? When it comes to treatment review all treatments before you decide including LDN.

nikchick
New Member


Date Joined May 2010
Total Posts : 10
   Posted 6/10/2010 3:51 PM (GMT -6)   
Hello, and thank you for your replies. I went to my PCP on Tuesday, and during the conversation he stated that I have MS at least four times. I was not sure what to think since I knew he had never seen an MRI that I have had done. He sent me to get an MRI which I had yesterday and also referred me to an MS specialist in Dallas. I got my results back from my MRI today and it is of course very confusing. What stands out to me is that it states, I have scattered rounded flair and T2 hyperintensities about the ventricles and deep white matter of the centrum semiovalve. It states they are somewhat prominent with age. It also states that several are oriented perpendicular to the long axis of the ventricular system and there is mild involvement of the under surface of the corpus callosum consistent with provided history of ms. Anyone have any clue what this means? Thank you again for your replies.

nikchick
New Member


Date Joined May 2010
Total Posts : 10
   Posted 6/10/2010 4:09 PM (GMT -6)   
By the way I am going to see Dr. Elliot Frohman. I had never heard of him before but upon doing some research I see that he is one of the worlds leading authorities on MS.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 6/10/2010 7:02 PM (GMT -6)   
Yay!  I am glad to hear this.  Let us know how that goes.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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