how many stages of MS

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krystal7337
New Member


Date Joined Jun 2010
Total Posts : 4
   Posted 6/21/2010 11:43 AM (GMT -6)   
Im new to this whole thing and I was just  woundering if their really are stages of MS and how can I tell what stage Im in

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 6/21/2010 11:10 PM (GMT -6)   
I have never heard of stages.  I have heard of 4 types.  There is relapsing remitting MS (RRMS); this is when you have quiet periods followed by relapses or flares.  There is secondary progressive MS (SPMS); this is when there is steady progression with or without periods of acute flaring.  There is primary progressive MS (PPMS); this is when a person starts with steady progression with or without flares.  There is also progressive relapsing MS (PRMS); this is when a person has a more aggresive progression with flares but never remission. 
 
85% if people are diagnosed with this form.  After ten to twenty years, many people with RRMS will transition to SPMS (could this be what you mean by second stage MS?).  about 10% if people are diagnosed with PPMS.  The last form, PRMS is a rare form; only about 5% are diagnosed with this one.
 
Your doctor should be able to tell you what kind of MS you have.  Most treatments to slow progression are targeted for RRMS.  If you are taking avonex, rebif, betaseron, or copaxone, then you are probably RRMS.  If you have times when your symptoms are stable (even the permanent ones) then you are RRMS.  If you constantly progress with few flares then you are one of the more progressive forms.  The progressive forms are marked by no remission.
 
 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 6/22/2010 9:35 AM (GMT -6)   
....I agree with Gretchen.....for me, for the first 15 years of my MS life, I was syptom free....classified as "benign".
 
But... over the last 5-7 years.....I have gone from using a cane...then a walker...to now, an elctric whelchair....
 
Every case is diffent...check  with your state MW Society ...for info and brocures on the subject....
 
Great Luck....John
DX'ed June 21st, 1987
 


DFC
Regular Member


Date Joined Apr 2006
Total Posts : 136
   Posted 7/16/2010 8:50 PM (GMT -6)   

Hi Folks

I have heard of a newer theory and some evidence relating to a two-stage disability progression in multiple sclerosis. I thought that you might like to read it. The following is a link to that discussion:

http://brain.oxfordjournals.org/cgi/content/full/133/7/1900

I was told by many MS specialists, over the years, that I probably wouldn't have too many disabilities, although to this day, I can't understand how they thought that they could predict the progression of my MS, when the disease by its very nature can  be unpedictable. I started with what I will refer to as "benign" MS (as does Motown John). This is only in hind sight that I realize this now. This went on for many, many years until 1997 when I was diagnosed with RRMS at age 45. This also went on without too much disability even though I had some very big relapses. I was fairly sick each time, but would bounce back with only small disease progression. Two years ago the progression of my MS was upgraded to SPMS as I wasn't having the flareups as before. I didn't really see too much progression of disabilities until last winter, when I lost total control of my right leg through stiffness and drop foot. I used a cane on occasion but now use it always. Incontinence is a constant problem now rather than an occasional one. These are just a few examples. In less than one year I have gone from fairly normal to being on disability pension. I am wondering if progression may be as suggested in this article.

Any thoughts or ideas?

Dale confused

 
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