CCSVI followers (what a Interventional Radiology does and can do)

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Dave_NC
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 7/2/2010 11:49 AM (GMT -6)   
I have to laugh at all the Anti-CCSVi people saying the liberation procedure is dangerous and can kill you. Angioplasty has been around since the 1960's and is used EVERYDAY. It has all the same dangers as the rest.

Below is a link to a video on what a Interventional Radiology does and can do.

www.facebook.com/video/video.php?v=1497016233925
Learning and living everyday to the fullest. My MS blog http://mylifewms.blogspot.com/


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3530
   Posted 7/3/2010 9:32 AM (GMT -6)   
Wow dangerous?  It doesn't seem dangerous, but I wish it seemed more permanent!  I was told angioplasty is ususally more successful in muscular arteries.   Veins are so rubbery that sometimes they revert right back to their stenotic shape even in as little as two weeks!  Stents too are designed for arteries.  I want to see some technology used to keep those stents firmly in place.
 
There is a place two hours from me that can do this for me but I have pay cash.  I am saving my $$.  I just don't want to do this and have to do it again. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


sandfly
Regular Member


Date Joined Sep 2009
Total Posts : 27
   Posted 7/22/2010 7:02 PM (GMT -6)   
Dave_NC said...
I have to laugh at all the Anti-CCSVi people saying the liberation procedure is dangerous and can kill you. Angioplasty has been around since the 1960's and is used EVERYDAY. It has all the same dangers as the rest.

Below is a link to a video on what a Interventional Radiology does and can do.

www.facebook.com/video/video.php?v=1497016233925

 

 

Please don't laugh at people saying the Liberation procedure is dangerous and could kill you, not unless you have concrete proof that the procedure is safe. I can say with certainty that it is dangerous and can kill you because in my case it would and that information comes straight from my neuro. This procedure is not new by the way, it was called Marie Tooth Charcot ages ago and was part of my studies in my chosen field.

The prodecure itself might not be dangerous but what no one seems to ever mention is the isotope dyes that they need to inject to do the procedure. This is the dangerous part. Saying this I must add that it isn't dangerous to everyone but to those who cannot tolerate the dyes.

I found out the hard way that those dyes were not meant for me when I had a CT years ago. Nobody bothered checking if I could be allergic to the dyes. As it turned out I was severely allergic and the last thing I remember is trying to tell someone I felt ill. To make a long story short I flat lined almost immediately. Long details, not necessary to go into them but they were able to "bring me back" .

So, for anyone allergic or having a reaction to the dyes it is impossible to get the treatment. If I hadn't had the previous experienced and rushed out to have the procedure done I would never have survived because the dyes are injected so close to the brain itself.

I say if someone is looking into this treatment be aware and please get tested to see your reaction to isotope dyes.

 


Dave_NC
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 7/23/2010 5:31 AM (GMT -6)   
Sandfly,

The Liberation treatment is Angioplasty. The CCSVI procedure is the SAME and carries the same dangers as ANY Angioplasty procedures. Its that simple. Certain portions of the medical industry are carrying on about how dangerous the liberation treatment when in fact it is not.

The MRV carries the isotopes in the testing. Isotopes are also used everyday in other procedures like MRI's etc. Again this carries the same risk and dangers. Some people have adverse reactions, as you know there are always instances of people reacting to anything and everything. Nothing is 100%. Allergies are all over the place in the medical industry EVERY drug carries them.

While a warning is prudent and is always discussed by reputable facilities, calling CCSVI this big dangerous treatment and forbidding it in areas is just crazy talk.

Prescreening the isotopes great idea (is done)... classifying the CCSVI Liberation Treatment (angioplasty) as this big dangerous treatment is ridiculous.
Learning and living everyday to the fullest. My MS blog http://mylifewms.blogspot.com/

Post Edited (Dave_NC) : 7/23/2010 6:54:27 AM (GMT-6)


sandfly
Regular Member


Date Joined Sep 2009
Total Posts : 27
   Posted 7/29/2010 11:46 AM (GMT -6)   
Dave_NC.

I don't like to make issues out of certain things but there have already been four deaths from this procedure. As for checking the isotopes from what I was told they don't bother checking anyone for that, which is wrong IMO. But what about the two patients that died of heart attacks when the shunts inserted into the arteries became displaced and travelled to the heart? As for MRI's requiring the isotopes that is false, never have they used the dyes in MRI's. It's a totally different test than a CT and doesn't require dyes.
Any new discovery in medicine usually has had double blind studies before being marketed and exposing patients to it. This procedure has had no such testing.
One lady who did rush out to have the procedure done at a cost of $18,000 (paid for by herself) since it hasn't been recognized as a safe treatment was ecstatic when she returned home. This was last year...now, 8 mos later she's exactly at the same point she was before having it done. I would say she is worse off because after relapsing she became so depressed that she is now on antidepressants.
I would love to see this treatment be the miracle we are all looking for, if not for us, maybe for someone close to us in the future. But if our doctors and neurologists have no faith in the treatment then I would play on the safe side for now. After all, no doctor or neurologist wants to deny anyone the chance of a cure for this horrid disease, their hesitation comes from leading facts about many untruths about the procedure.
And no, you can't compare this procedure to the common angioplasty that doctors perform routinely, this is a very different procedure. But even heart angioplasty can be done with different dyes and rest assured that the doctors have everything on hand should you run into a problem.
When the untruths and lies have been cleared maybe the medical field will look into this procedure, for now they owe us the assurance that they will continue treating us with the utmost safety....after all..we are not guinea pigs , do the testing reqired first and then present the facts to the medical assoc. and don't sell it to the media to make big $$.
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, September 21, 2017 4:38 AM (GMT -6)
There are a total of 2,871,126 posts in 315,074 threads.
View Active Threads


Who's Online
This forum has 156584 registered members. Please welcome our newest member, raeesbab.
291 Guest(s), 9 Registered Member(s) are currently online.  Details
RedLabel, Dahlias, Wilderness, Loutucky, Skypilot56, Saipan Paradise, mjw11, halbert, ljimd


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer