do lesions not always show up right away?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 7/4/2010 10:50 AM (GMT -6)   
Hi, I go back and forth between the MS forum and Fibro forum. I have a lot of symptoms of MS, but also get the soreness like fibro. However, my brain scan came out clear- no lesions. And c-spine was all normal as well. i have not had the follow up appt. yet, just had the receiptionist call me with the results (whom I do not totally trust based on recent experiences, btw).

I have only had my current symptoms for 2 months now, so I guess my question is, was it too early to get a brain scan?

The thing that confuses me is that heat definitely makes me feel worse-- I get light headed, my pain is worse, and my left cheek feels partially numb. I don't know how else to explain that, unless it is also a symptom of Fibro.

I don't want MS, but I am wondering if it is just too early for a diagnosis for me.

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 7/4/2010 10:57 AM (GMT -6)   
I should add too that I get that L'Hermities or whatever it is called. WHenever i lower my head to my chest, my right foot gets the electric sensation. Does that not always point to MS?

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3521
   Posted 7/4/2010 7:15 PM (GMT -6)   
I have had others say they had symptoms for a while before the lesions showed up.  If you have L'hermittes, you might ask for a lumbar-spine MRI.  I have had that as well (I have since lost that symptom) and I do have a few lumbar lesions.  I don't have any cervical-spine lesions.  There is that theory that early MS may not show small lesions.  Have you had an evoked potentials test?  That is a good one to have.  That test is pretty reliable.  It was a very significant part of my diagnosis.  I had extremeties, vision and hearing.
 
For me, by the time I had symptoms, I had three lesions.  One was quite large and resulted in temporarily losing the ability to walk.  I was diagnosed very quickly but this is not usual. 
 
It is very difficult to get a diagnosis without lesions on an MRI.  Just keep at the doctors.  Good luck. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 7/4/2010 9:56 PM (GMT -6)   
thanks for the reply. I did have a lumbar spine MRI but that was oringially to check for a disc problem, which I did find out I have a bulging disc in my lower back. But two doctors told me that woudl not affect my upper body. C-spine I was told was normal- so bulging discs and no lesions. I feel like I am going crazy but I am not making this stuff up.

bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 7/4/2010 9:57 PM (GMT -6)   
meant "no" bulging discs in c-spine

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3521
   Posted 7/5/2010 10:40 AM (GMT -6)   
MRIs are run differently depending upon what they are looking for.  A lumbar MRI might not show MS lesions. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


bridget10
Regular Member


Date Joined May 2010
Total Posts : 200
   Posted 7/5/2010 11:00 AM (GMT -6)   
thanks Gretchen,
I looked that up as I don't know much about that test. One of the tests sound like the Nerve Conduction Test I had (which was normal) Also, the vision test sounds a lot like one of the tests I had when I had my eye exam, but maybe not as intense. That was normal for me. The only thing that stuck out to me when i had an eye exam was that my vision was blurry when I read the letters, but I could still make out the letters, so to them, my vision was not that bad. I told them my eyes were blurry but they didn't know what it was from because all tests came our normal.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3521
   Posted 7/5/2010 3:17 PM (GMT -6)   
Nerve conduction test does not test the Central nervous system.  It is testing the peripheral nervous system.  The nerve conduction test is not typically used to diagnose MS. 
 
Evoked potential for vision doesn't test for visual acuity (clarity of vision ).  It tests how quickly visual stimulation travels along the central nervous system to get to the brain.  You sit in front of a computer with electrodes attached to your scalp.  You must stare at the very center of a computer screen that is displaying an alternating checkerboard screen.  It is a critical test for many people.  It is a very objective test and can't be inluenced by effort or or lack of effort. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

Post Edited (Gretchen1) : 7/5/2010 3:27:21 PM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, August 19, 2017 4:41 PM (GMT -6)
There are a total of 2,857,573 posts in 313,525 threads.
View Active Threads


Who's Online
This forum has 155132 registered members. Please welcome our newest member, Payli Tuzu.
362 Guest(s), 13 Registered Member(s) are currently online.  Details
PeteZa, kernel.panic42, Hanana, Purrrsiankitty, Gear, Luvzminis, Girlie, KittyJ, apnesomo, Nana1988, mareish, Nervousnelly, tune


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer