This is my first post and I'm not completely sure of protocol, but here goes!
I rarely feel compelled to respond to any threads, but this one hits home...with a vengance! I was officially diagnosed in 2007, but had been mis-diagnosed for almost 10 years before that.
That being said, the monster that is MS is, unfortunately, no stranger to me.
The neuropathic pain in my legs is sometimes utterly unbearable! I feel like my feet, hips, thighs and legs are on fire!! It so severely affects my daily life that there are many days where I hurt so bad all I can do is cry and take pain medication - which may or may not even touch the pain! Unfortunately, I have been unable to find many people in my area who have MS, so I often feel alone. My husband of 20years is amazing, but, like someone once said, "if you don't have it, you don't get it!"
My neuro. is somewhat acceptable, but he won't prescribe medication for the pain. Thank heavens that I have an amazing family doctor who prescribes pain medication in the strengths and amounts that I need...without ever making me feel like a druggie! I can't even imagine what life would be like if I didn't have access to something that relieved the pain - even if it's only for a short time.
I apologize for the long, rambling rant, but please understand that it was the long way to say that I literally feel your pain! You are all in my thoughts!