What does MS leg pain feel like?

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daniJav
Regular Member


Date Joined Jan 2010
Total Posts : 82
   Posted 11/7/2010 6:56 PM (GMT -6)   
I dono if my leg pain is from MS or something else, what does your MS leg pain feel like?

rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 11/7/2010 8:05 PM (GMT -6)   
Hi
I am a person who does not know where she belongs, except that I am with Christ. i started out with lyme disease in 1996 pretty obvious because i had the em's/  Now they say fibromylagia but i am having leg pain SOOOOOOOOOOO bad I honestly think about cutting them off .  it is so  hard to explain they just acheeeeee and weigh 100 million pounds and this is with neuronotin and darvicot.  My brothers are sick too the one closest to me in symptoms was diagnosed ms from a catscan or an mri, i have never had one nor will as i don't have insurance.  what do your legs feel like?

daniJav
Regular Member


Date Joined Jan 2010
Total Posts : 82
   Posted 11/7/2010 9:19 PM (GMT -6)   
I so feel you, I have Lupus and Fibro. My leg pain is in my Calves, thight and butt and hips. I would give just about anything for a Epidural!!!! My pain feels almost like I am stretching beyond my flexablity limit but it wont relise. Stretching does relieve the pain but only for a second or less. I am also on neurtain and it hardly helps.
Dani,
SLE (lupus), Fibromyalgia, and a solitary kidney

Iwillfind
New Member


Date Joined Jan 2011
Total Posts : 3
   Posted 1/12/2011 3:16 PM (GMT -6)   
I have found that the only thing that helps my leg pain is cannabis either in cookie form(a couple bites) or just a few smokes! This is why I can not wait for North Carolina to become legal for Medical Marijuana. It is the only thing that helps me!!
And yes...you do feel like cutting them off! Terrible! yeah

brnsug0945
New Member


Date Joined Jan 2011
Total Posts : 17
   Posted 1/13/2011 5:16 PM (GMT -6)   
I have no idea if I am doing this correctly. I have MS and my legs feel like they are asleep and waking up with the tingly feeling on good days. On bad days it feels as if someone has lit a lighter on big toe and my legs are in flames!

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 384
   Posted 1/17/2011 12:22 PM (GMT -6)   
Hi there, as far as I can see brnsug, you have described nerve pain perfectly.  I get nerve pain in my neck and my hips, and I describe it as someone holding a lit cigarette to these areas, or another example that I use is it is like getting stung by a wasp....it comes and wow, really stings, and then it goes away, and then a few minutes later it hits again....
 
Gary

fanatical liberal
New Member


Date Joined Mar 2009
Total Posts : 2
   Posted 2/1/2011 1:41 PM (GMT -6)   
This is my first post and I'm not completely sure of protocol, but here goes!
I rarely feel compelled to respond to any threads, but this one hits home...with a vengance!  I was officially diagnosed in 2007, but had been mis-diagnosed for almost 10 years before that. 
That being said, the monster that is MS is, unfortunately, no stranger to me. 
The neuropathic pain in my legs is sometimes utterly unbearable!  I feel like my feet, hips, thighs and legs are on fire!! It so severely affects my daily life that there are many days where I hurt so bad all I can do is cry and take pain medication - which may or may not even touch the pain!  Unfortunately, I have been unable to find many people in my area who have MS, so I often feel alone.  My husband of 20years is amazing, but, like someone once said, "if you don't have it, you don't get it!" 
My neuro. is somewhat acceptable, but he won't prescribe medication for the pain.  Thank heavens that I have an amazing family doctor who prescribes pain medication in the strengths and amounts that I need...without ever making me feel like a druggie! I can't even imagine what  life would be like if I didn't have access to something that relieved the pain - even if it's only for a short time.
I apologize for the long, rambling rant, but please understand that it was the long way to say that I literally feel your pain!  You are all in my thoughts!
Take care!

rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 2/1/2011 2:58 PM (GMT -6)   
You poor thing, I cannot imagine your neurologist not giving u meds we live in the United states. Thank God u are getting some from another source. Do your legs consistentlty hurt all of the time? (god I hope not)

I'm the moron who doesn''t know what she has, my legs hurt so bad too the only releif is if i can sleep i think the pain meds help if u take it before the pain gets to a certain level and if u take enough BUT mine do not always hurt, oomes and goes. I am lucky in that regard.

You gave a good description of your leg pain Mine don't feel like they are on fire they just ache, hurt like crazy i do not want to walk and they feel like they are very very heavy,


I have tried neuronotin tramadiol nothing, darvicot in a double dose would help, I never got addicted as I don't use them when I am not sick mine comes and goes like a cycle/ But lately its been pretty persistent not so much the legs the overwhelming fatigue, so I am going to try doxy again ( i am probably a late lyme) I only know one woman who has ms and she told me there is no pain, later I read that is highly variable. and the pain can be life damaging.

Im glad u posted, i like your euphamism if u don't got it u dont get it (or something like that) my hubby and kids are supportive BUT it seems like they would do more of the work i have to play catch up on when I get a break from being sick. Another thing among lymies is they often look "normal" which makes people doubt their validity, I look like crap when Im sick I scare myself. anyway thank u for the description while i didn't ask I have often wondered. And good luck I hope it isn't always.
lisa

littlehutton
Regular Member


Date Joined Aug 2010
Total Posts : 96
   Posted 2/1/2011 5:16 PM (GMT -6)   
Roseinjanuary

Are you not being treated for lyme or have been in the past?

rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 2/1/2011 10:12 PM (GMT -6)   
Well, I kinda gave up after about I don't know how many years of the lyme doc, he thought i would always re? what is that word, it means fall back and get sick and need abx then go off then on, a cycle because i was quite dissemanted and I have no spleen which is important for fighting any infection.

So I started just high vitamin c and homeopathic stuff. I am officially back on doxy as of today and I am going to make dr.appt. I really think i have late lyme whether its active or residual i have no idea. MS and old or late lyme are quite similar but I just remembered another difference, I was sicker than a dog during my pregnancy with my daughter I think I had it then, while I believe I was told pregnancy with multiple sclerosis will often get rid of the symptoms whereas lyme exacberated them. who knows? my brother is double diagnosed ms and lyme, poor guy on top of it he has spinal bifada real bad.

I feel bad complaining I have it so much better than some, I am just going to have to try to get back to where I had some good days, Its just hard when u are so tired maybe i'll go to the doc in mi robe!

Mommyof5
New Member


Date Joined Feb 2011
Total Posts : 5
   Posted 2/2/2011 6:00 PM (GMT -6)   
The burning sensation is my latest symptom. I was wondering is it was part of my MS and I guess I can now assume it is. My feet and legs feel like they are on FIRE. Is there any medication that can help this? I am in not in "pain" just on fire!
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