What does MS leg pain feel like?

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Regular Member

Date Joined Jan 2010
Total Posts : 82
   Posted 11/7/2010 7:56 PM (GMT -6)   
I dono if my leg pain is from MS or something else, what does your MS leg pain feel like?

Veteran Member

Date Joined Oct 2007
Total Posts : 748
   Posted 11/7/2010 9:05 PM (GMT -6)   
I am a person who does not know where she belongs, except that I am with Christ. i started out with lyme disease in 1996 pretty obvious because i had the em's/  Now they say fibromylagia but i am having leg pain SOOOOOOOOOOO bad I honestly think about cutting them off .  it is so  hard to explain they just acheeeeee and weigh 100 million pounds and this is with neuronotin and darvicot.  My brothers are sick too the one closest to me in symptoms was diagnosed ms from a catscan or an mri, i have never had one nor will as i don't have insurance.  what do your legs feel like?

Regular Member

Date Joined Jan 2010
Total Posts : 82
   Posted 11/7/2010 10:19 PM (GMT -6)   
I so feel you, I have Lupus and Fibro. My leg pain is in my Calves, thight and butt and hips. I would give just about anything for a Epidural!!!! My pain feels almost like I am stretching beyond my flexablity limit but it wont relise. Stretching does relieve the pain but only for a second or less. I am also on neurtain and it hardly helps.
SLE (lupus), Fibromyalgia, and a solitary kidney

New Member

Date Joined Jan 2011
Total Posts : 3
   Posted 1/12/2011 4:16 PM (GMT -6)   
I have found that the only thing that helps my leg pain is cannabis either in cookie form(a couple bites) or just a few smokes! This is why I can not wait for North Carolina to become legal for Medical Marijuana. It is the only thing that helps me!!
And yes...you do feel like cutting them off! Terrible! yeah

New Member

Date Joined Jan 2011
Total Posts : 17
   Posted 1/13/2011 6:16 PM (GMT -6)   
I have no idea if I am doing this correctly. I have MS and my legs feel like they are asleep and waking up with the tingly feeling on good days. On bad days it feels as if someone has lit a lighter on big toe and my legs are in flames!

Regular Member

Date Joined Apr 2006
Total Posts : 386
   Posted 1/17/2011 1:22 PM (GMT -6)   
Hi there, as far as I can see brnsug, you have described nerve pain perfectly.  I get nerve pain in my neck and my hips, and I describe it as someone holding a lit cigarette to these areas, or another example that I use is it is like getting stung by a wasp....it comes and wow, really stings, and then it goes away, and then a few minutes later it hits again....

fanatical liberal
New Member

Date Joined Mar 2009
Total Posts : 2
   Posted 2/1/2011 2:41 PM (GMT -6)   
This is my first post and I'm not completely sure of protocol, but here goes!
I rarely feel compelled to respond to any threads, but this one hits home...with a vengance!  I was officially diagnosed in 2007, but had been mis-diagnosed for almost 10 years before that. 
That being said, the monster that is MS is, unfortunately, no stranger to me. 
The neuropathic pain in my legs is sometimes utterly unbearable!  I feel like my feet, hips, thighs and legs are on fire!! It so severely affects my daily life that there are many days where I hurt so bad all I can do is cry and take pain medication - which may or may not even touch the pain!  Unfortunately, I have been unable to find many people in my area who have MS, so I often feel alone.  My husband of 20years is amazing, but, like someone once said, "if you don't have it, you don't get it!" 
My neuro. is somewhat acceptable, but he won't prescribe medication for the pain.  Thank heavens that I have an amazing family doctor who prescribes pain medication in the strengths and amounts that I need...without ever making me feel like a druggie! I can't even imagine what  life would be like if I didn't have access to something that relieved the pain - even if it's only for a short time.
I apologize for the long, rambling rant, but please understand that it was the long way to say that I literally feel your pain!  You are all in my thoughts!
Take care!

Veteran Member

Date Joined Oct 2007
Total Posts : 748
   Posted 2/1/2011 3:58 PM (GMT -6)   
You poor thing, I cannot imagine your neurologist not giving u meds we live in the United states. Thank God u are getting some from another source. Do your legs consistentlty hurt all of the time? (god I hope not)

I'm the moron who doesn''t know what she has, my legs hurt so bad too the only releif is if i can sleep i think the pain meds help if u take it before the pain gets to a certain level and if u take enough BUT mine do not always hurt, oomes and goes. I am lucky in that regard.

You gave a good description of your leg pain Mine don't feel like they are on fire they just ache, hurt like crazy i do not want to walk and they feel like they are very very heavy,

I have tried neuronotin tramadiol nothing, darvicot in a double dose would help, I never got addicted as I don't use them when I am not sick mine comes and goes like a cycle/ But lately its been pretty persistent not so much the legs the overwhelming fatigue, so I am going to try doxy again ( i am probably a late lyme) I only know one woman who has ms and she told me there is no pain, later I read that is highly variable. and the pain can be life damaging.

Im glad u posted, i like your euphamism if u don't got it u dont get it (or something like that) my hubby and kids are supportive BUT it seems like they would do more of the work i have to play catch up on when I get a break from being sick. Another thing among lymies is they often look "normal" which makes people doubt their validity, I look like crap when Im sick I scare myself. anyway thank u for the description while i didn't ask I have often wondered. And good luck I hope it isn't always.

Regular Member

Date Joined Aug 2010
Total Posts : 96
   Posted 2/1/2011 6:16 PM (GMT -6)   

Are you not being treated for lyme or have been in the past?

Veteran Member

Date Joined Oct 2007
Total Posts : 748
   Posted 2/1/2011 11:12 PM (GMT -6)   
Well, I kinda gave up after about I don't know how many years of the lyme doc, he thought i would always re? what is that word, it means fall back and get sick and need abx then go off then on, a cycle because i was quite dissemanted and I have no spleen which is important for fighting any infection.

So I started just high vitamin c and homeopathic stuff. I am officially back on doxy as of today and I am going to make dr.appt. I really think i have late lyme whether its active or residual i have no idea. MS and old or late lyme are quite similar but I just remembered another difference, I was sicker than a dog during my pregnancy with my daughter I think I had it then, while I believe I was told pregnancy with multiple sclerosis will often get rid of the symptoms whereas lyme exacberated them. who knows? my brother is double diagnosed ms and lyme, poor guy on top of it he has spinal bifada real bad.

I feel bad complaining I have it so much better than some, I am just going to have to try to get back to where I had some good days, Its just hard when u are so tired maybe i'll go to the doc in mi robe!

New Member

Date Joined Feb 2011
Total Posts : 5
   Posted 2/2/2011 7:00 PM (GMT -6)   
The burning sensation is my latest symptom. I was wondering is it was part of my MS and I guess I can now assume it is. My feet and legs feel like they are on FIRE. Is there any medication that can help this? I am in not in "pain" just on fire!

New Member

Date Joined Aug 2013
Total Posts : 1
   Posted 4/18/2016 5:32 PM (GMT -6)   
I have had known I had MS since 1986, and in 2000 it won the inning and 8 ended up dosabled. What I have found is in the areas where the MS attacked (nerve damage) I get cramps just like I worked out really hard. I lost my ability to walk in 2000, and with drugs I can walk without any aids. I still do not have feeling from mid thigh down, and my back and right leg hurts all the time. The one thing I found that helps is exercise,but I had Calmare treatment that worked well, but I haven't gone back to get a booster so I will need to start from square one again. Acupuncture worked well, and the guy that gave me that treatment was not very experienced so I would imagine a true acupuncture doctor could make a difference. I would love to get off all drugs, but having MS as long as I have had (30+ years) the MS drugs ruined my organs so I unfortunately can't expect miracles to happen again.I caught ulcerative colitis and had a complete colostomy which the drugs they put in my spine for pain caused my MS to go crazy. Try to find humor now matter how bad you feel since this disease will take you down if you can't handle what it does to you. It is hard, but my recommendation is not to blame everything on your MS and get to know your bad since it's up to you to take care of yourself

Regular Member

Date Joined Feb 2012
Total Posts : 56
   Posted 4/19/2016 10:51 AM (GMT -6)   
I do not have MS. In case it could help though, an aunt of mine has MS, and so out of curiosity to learn more I read Mary Boyle Bradley's book about MS and the medication low dose naltrexone (LDN). In the book Mary went into great detail on her husbands first symptoms of leg numbness, how it effected him, and how the disease progressed in his legs. The book can be seen here:

"Up the Creek with a Paddle Beat MS and All Autoimmune Disorders with Low Dose Naltrexone (LDN)"


New Member

Date Joined Apr 2016
Total Posts : 5
   Posted 4/29/2016 10:09 AM (GMT -6)   
I have had MS for 24 years. Burning in my legs occurs but rarely. Pain down the sides of my legs is a lot more frequent. Enough to wake me out of a sleep. Pain meds seem to do the trick short term but this is a recurring problem. My most recent problem is feelings of electricity shooting through my breast. I haven't heard of anyone else with a similar complaint

New Member

Date Joined May 2016
Total Posts : 1
   Posted 5/6/2016 1:55 PM (GMT -6)   
I was diagnosed with peripheral neuropathy after flying many hours from Americas to Europe and back.
Leg pain like you describe in MS / similar.
First I was under the suspicion of blood cloths.
There is a test for that ,thank god and so it was excluded.
I was prescribed GABAPENTIN which made so drowsy,that i almost fell down the stairs.
Fortunately I live in Canada where Valeant makes ZOSTRIX HP
(High Potency) Capsaicine topical analgesic cream.
..( comes from hot peppers)
I use it for nerve pain with a good success.
Just a suggestion for trying,
Sold in Canada withot prescription

New Member

Date Joined Aug 2016
Total Posts : 1
   Posted 8/8/2016 3:13 PM (GMT -6)   
I'm new to all this, supposed to see Dr soon for ms testing. There are times when my ankles feel like they are swollen and have weights on them and times when it feels like my legs are breaking. Anyone else experience these things?

Forum Moderator

Date Joined Jan 2007
Total Posts : 3450
   Posted 8/11/2016 12:28 PM (GMT -6)   
Hi Mama,

You may want to start a new thread. You've posted to a very old (2010) thread. Start a new one and tell us a little about yourself. I'm sorry you find yourself dealing with the possibility of an MS diagnosis.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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