I need some desperate help. I was just diagnosed with possible MS based on the horrendous nerve pain that I have been experiencing. It came on suddenly a month ago and has been unrelenting since. It is honestly on a scale of about a 9 without pain meds. I have been subsisting on narcotics for the last month but they are not helping and I am having a lot of breakthrough pain. I have a six-month-old daughter that I have been unable to care for because of all of this. This has been a nightmare of the most epic proportions. Honestly, it is sapping my will to live.
Now, I am not sure that I have MS. The symptoms that I am experiencing don’t seem typical with the disease. I have no other symptoms, no loss of coordination, blurred vision, cognitive impairments, etc. All of motor function tests were completely normal. I only have the nerve pain. The strange thing is that I was put on an anti-depressant for postpartum mood disorders after the birth of my baby and it caused me to have nerve pain, in the same areas that I am experiencing it now. The pain went away immediately after I stopped taking the medication, but came out of the blue about a month later and has not ceased since then. I am wondering if that wasn’t the catalyst for causing serious problems with the neurotransmitters in my brain, in addition to having wacky hormonal things going on, and that is why I am in so much pain now.
I had an MRI done without contrast and the neurologist believes that there are some miniscule lesions. However, the radiologist marked the MRI as totally normal. I am not sure if the neurologist is really seeing lesions or if it is due to a poor MRI scan. The neurologist doesn’t believe that I had an adverse reaction to the anti-depressant and another medication in the past that caused nerve pain and believes that these were all MS episodes. I don’t know what to believe… I have never been so terrified and in so much pain in my life. I have tried Elavil, but it caused a dramatic increase in the nerve pain and I have decided that I will not be taking anymore. I was also on Neurontin and while it helped slightly with the nerve pain, the other side effects were severe.
Has anyone ever experienced MS symptoms of only excruciating, burning, and constant pain that started in your face and radiated everywhere? It is my arms and legs now and I don’t know how to function in this state.