MS or Meniere's?

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daisybrown
Regular Member


Date Joined Dec 2010
Total Posts : 51
   Posted 3/11/2011 4:59 PM (GMT -7)   
Hello, I'm new to this forum. I have posted on the IBS forum before. I am a 40 year old female. A few months ago I woke up with a pounding headache, fullness and ringing in my left ear, neck ache and tingling in my left hand (pinky and ring finger)..some strange tingles on the outsides of my feet. I put off the tingling, I have neck and back issues, so I thought that was it. Anyway, I thought my headache and ear problem was a sinus infection, as I felt the pain in my sinuses....I went to the doctor and she prescribed an antibiotic. While my headache seemed to go away, my ear problem did not. All this time I am also having some dizziness, and nausea. After two weeks I went back to the doctor and she referred me to an ENT. I saw the ENT who thought *inner ear* could be viral, or benign tumor....or MS. I told him my mother has Meniere's Syndrome and we decided to test for it. My hearing test indicated I cannot hear low tones. He put me on a water pill and low sodium diet (which I didnt follow :-/ ) and told me to come back in a month, we would retest the hearing and then see if I needed an MRI.

During this month I have had terrible anxiety over this. Every little twinge my body gives me is scaring the hell out of me. I have had some headaches that seemed to ache in my eye (left or right), some visual disturbances like sensitivity to light, some shimmers of light, and floaties...(sounds like Migraine?). I also have TMJ which causes my neck and shoulder to go out, and some tingling in my hand...left side..I visited my chiropractor and have since seen the tingling diminish...it also goes away if i change positions.

The dizziness and nausea went away after i started taking the water pill, although the last few days I have had to be careful about turning around too fast. I dont seem to have "balance" issues....and if i did that could really be explained by the TMJ or Meniere's. But I also can get little waves of weirdness that I seem to only notice when I am sitting at the computer or watching tv....I have had that for a long time, and it comes and goes.....but generally I just have a weird vibe, a strange feeling going on in my body. Just off, I guess.....

Today I went to see my doctor and my hearing improved slightly, but not enough. He truly believes this is Meniere's, but he wants an MRI to be sure. I suppose it's protocol. It's how you diagnose ...you rule things out. I am very scared that something has invaded my body that I cant get rid of....I have my MRI next week.

I dont know if this is MS or not, but I just wanted to reach out to anyone who'll read this that might have words of encouragement or wisdom. Maybe someone who's had a story like mine, or heard of this kind of thing...just waking up with it one day.

Thank you so much for taking a look.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3208
   Posted 3/12/2011 12:23 PM (GMT -7)   
Hey Daisy,

I know you are scared. Having health issues is very scary. Please know we are here to support you while you go through this. Ask any questions you may have and we will try to answer them.

I was diagnosed a few years ago. While I hate having MS, I still find great joy in life.

The fact that things seem to be getting better is a very good sign. The other thing that sticks with me is the fact that your "waves of weirdness" come and go. My early symptoms came and stayed. Does that make sense? Some people with MS do have things that come and go, but most don't. The symptoms we have are the result of permanent nerve damage. Most of the time, things don't come and go.

It does sound like you are having a lot of anxiety about this. This could be the reason for those waves of weirdness. I love that discription, by the way. It's perfect. I have had that but mine have been related to anxiety or stress. It's just a thought. Please remember, I am not a doctor.

I hope this helps.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

daisybrown
Regular Member


Date Joined Dec 2010
Total Posts : 51
   Posted 3/12/2011 3:16 PM (GMT -7)   
Thanks Gretchen1. I really appreciate your post. You've lifted my spirits.

You're right. Things have improved or gotten better...all but the hearing....and the recent headaches...that could also be anxiety, tension headache, etc....I'm possibly doing that to myself....boy that makes me mad! no one else to blame! LOL devil

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3208
   Posted 3/12/2011 4:08 PM (GMT -7)   
No no no!!!!! Sorry! You are NOT allowed to blame yourself! Anxiety is a normal emotion. It happens. Too much anxiety can be a disease! It's not something you are doing......at least on purpose!

I hope I didn't make you feel like you did this to yourself! You are experiencing real health issues that can cause anxiety. Please don't feel like this is your own fault.

Please just take good care of yourself.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

daisybrown
Regular Member


Date Joined Dec 2010
Total Posts : 51
   Posted 3/12/2011 4:45 PM (GMT -7)   
Oh I know I was just kidding, i'm not blaming myself..... Just trying to throw a little sarcasm at my chaos! LOL I hope i didnt scare anyone!

I really do have serious anxiety issues that I have dealt with for years...I have yet to find medication to help....Thank you

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3208
   Posted 3/12/2011 8:51 PM (GMT -7)   
Ah ok.  Hehe.  I am sorry to hear about the anxiety issues.  That's miserable.  Most people have experienced anxiety from one time to another.  I have, and I can't imagine dealing with it long term.  It is a horrible feeling. 
 
I am glad I didin't give you a bunch of anxiety advice!  I am sure you know better on that than me!
 
Have you posted here on the anxiety and panic board?  I have heard it is very active and helpful, but please stay here (MS board) as well!  smilewinkgrin

Moosetrax
New Member


Date Joined Jul 2012
Total Posts : 1
   Posted 7/19/2012 6:54 PM (GMT -7)   
Daisybrown, I was wondering how you were doing and what your diagnosis turned out to be?
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