body aches & ringing in ears

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aquaholical
Regular Member


Date Joined Mar 2011
Total Posts : 115
   Posted 3/15/2011 5:33 PM (GMT -7)   
Hey there,

I was wondering if body aches and ringing in ears are ever prevalent symptoms of MS. I'm having a brain MRI (MS protocol) tomorrow, had blood work last week (that hasn't come back yet) trying to get to the root of this mystery illness that has been afflicting me for the last 6 weeks.

It started with this shoulder pain I've been having for 8 months. I'm a triathlete and thought I pulled a muscle in a vigorous swim workout one day. Ended up seeing over 6 doctors over the course of the last 8 months and pain keeps returning (regardless of rest, meds, therapy). 6 weeks ago it got unbearable. Headaches followed. After a few days they got completely debilitating and I was rushed to doctor. Cortisone helped for a few hours, but the headache from hell eventually returned. Ringing in ears came back with it. The next day my left arm went numb/tingly. My GP doc suspected a herniated disc in my cervical spine. Cervical MRI, x-rays showed nothing and by the time those results came back the entire left side of my body was heavy/numb & tingly.

With new symptoms arriving every day, GP sent me to the neuro-dork. By the time I could get an appointment to see her my symptoms had quadrupled.

Shoulder/kneck hurt often in the beginning, not as often now. Stomach is always rumbling, sometimes cramping. Muscles all over body constantly spasmming, boyfriend says I twitch and jerk violently in my sleep. Confusion. Vertigo. Dropping things. Right arm went paralyzed for a few hours one night. Tingly needles all through my right leg for 3 days straight. Crippling exhaustion. Ears aching like I have swimmer's ear. Ringing in ears getting louder and louder. Sensitivity to heat/humidity..

The past two days have been the worst. I suddenly feel like absolute death. Left arm and leg have been consistently numb/needly for the last 4 days. My trunk is flu-like achy and I'm incredibly dizzy. This morning I could barely walk and had a lot of difficulty talking–was slurring my speech.

I know quite a few of these are MS symptoms, but I wasn't sure about the body aches & ringing ears. They have been kicking my ass yesterday and today and was just wondering if that's among the myriad of symptoms of MS.

Any insight would be appreciated! Thanks!

aquaholical
Regular Member


Date Joined Mar 2011
Total Posts : 115
   Posted 3/16/2011 2:51 PM (GMT -7)   
bueller?

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3208
   Posted 3/16/2011 4:32 PM (GMT -7)   
Bueller?? Good one. So cognitively, you are still with a sense of humor. Obviously, I can't say whether or not you have MS. I am not even going to guess. You certainly share some of the symptoms. MS is very difficult to diagnose and it can take quite some time to rule it in or rule it out. There are many, many diseases that share these symptoms.

I personally don't have body aches. I do have nerve pain and pain from muscle spasticity. I also have occasional ringing in my ears. I have this weird thing where, when I am listening on a phone in one ear, the other ear will register strange noises. The noise seems to be a bit like paper rustling. It only happens when I am on the phone or if I listen to an ipod ear bud in just one year. It seems like nerve confusion.

I wish you the best of luck. Hopefully you can find a doctor who will figure this all out. Hopefully it won't be MS and something more treatable. Please stay and keep us posted.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

aquaholical
Regular Member


Date Joined Mar 2011
Total Posts : 115
   Posted 3/16/2011 5:41 PM (GMT -7)   
haha, thanks for the response, Gretchen. I appreciate it.

MS was officially ruled out today as my brain MRI came back normal. My Doc's response: "We're doubling your chronic pain medication and advising you to keep a positive attitude." Which is superb, but does nothing for the super loud ringing in my ears, body aches, dizziness, tingling left side limbs, etc etc etc.

This is all so frustrating! I know something is really really wrong and they're trying to dismiss it as stress and treat the symptoms.

Luckily though when I rattled off other possibilities (autoimmune, lymes, etc) my mom suddenly remembered me being bit by a tic when I was 10 and getting giant rings on the back of my leg. We can't remember how it was treated so that might be the next avenue of exploration as LD and MS share many similar symptoms.

The most annoying for me right now is not being able to exercise. Before this (6 weeks ago) I was out doing 15 mile runs. Now about 10 minutes into a run my form crumbles apart, I get super dizzy and feel like I'm not attached to my body (if that makes any sense). When I slow to a walk that eventually becomes increasingly difficult with each step to pick up one foot and put it in front of the other. Then for the next two days following the attempted run I feel like I'm dying with flu-like aches, dizziness, nausea.

Being an athlete I know my body very well and I know something is very wrong. Not going to rest until I find a doc who will help me find the answer instead of just trying to treat my myriad of symptoms.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3208
   Posted 3/16/2011 7:02 PM (GMT -7)   
Be sure and post on the Lyme Board here. They are super friendly and helpful. I hope you can get to the bottom of this. Good luck and keep me posted.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

aquaholical
Regular Member


Date Joined Mar 2011
Total Posts : 115
   Posted 3/16/2011 7:04 PM (GMT -7)   
I will :) Thank you again, Gretchen!

CDlady
New Member


Date Joined Dec 2011
Total Posts : 1
   Posted 12/1/2011 9:59 AM (GMT -7)   
Aquaholical,
 
Did you find out what is going on?  I have exact same symptoms, have had testing and no "bands" but two lesions and now going to start treatment for MS.
 

aquaholical
Regular Member


Date Joined Mar 2011
Total Posts : 115
   Posted 12/2/2011 3:19 PM (GMT -7)   
Yessum, we finally got it figured out: lyme disease. Have been treating for that (herbal protocol) and am improving by leaps and bounds. Good luck to you!
aquaholical.blogspot.com

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3208
   Posted 12/2/2011 5:15 PM (GMT -7)   
Aquaholic,

I'm sorry you have Lyme!!! I'm very glad to hear you are being successfully treated. Best of luck to you!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2563
   Posted 12/17/2011 7:49 AM (GMT -7)   
Aquaholical,

Giving up your exercise must be very difficult. I have lupus and am very tired and achy much of the time and am fighting to lose the weight I gained while on prednisone for many years. 9 months ago I started taking yoga with a kind, talented, and very supportive teacher and it's made a world of difference. The weight is coming off, my clothes fit better, and most importantly, I always feel better after a class, regardless how I feel when I start the class.

Have you given any thought to Restless Leg Syndrome? I take neurontin to control mine and it has made a world of difference, both in the quality of my sleep not to mention that of my husband!

Pangier
New Member


Date Joined Dec 2011
Total Posts : 1
   Posted 12/17/2011 8:40 AM (GMT -7)   
Did the ringing in the ears go away with treatment?

The ringing in my ears has gotten worse each day.

My symptoms all within the last 6-months:
Flu like muscle aches all over (not in joints). Dull strong pain, though.
Both kidneys or glands in abdomen hurting uniformly on both sides.
Excessive tiredness.
Massive hair loss within the last 6 months.
Dull but strong pain in muscles. Pain floats around.
Blurred vision (seems much worse in the last month).
Ears ringing and not repairing after a loud concert. I seem over-sensitive to sounds.
Painless skin abscesses inside mouth. All on left side.
Excessive skin shedding in mouth.
Temple veins alternating on getting bigger. One gets big and then the other one gets smaller
Twitchy muscles. Left side of body, only.
Muscle weakness.
Possible popping sounds in muscles.
When strained, muscles twitch somewhat like you'd see someone with Parkinson ’s disease.
Urine stream sometimes slow and almost has periods of pausing.
Heartburn after lying down and after eating spicy foods (never had this problem before).
A mold called Stachybotrys tested positive in home. Not sure the percentage of it though/ My doc says not possible test on a human for this.

aquaholical
Regular Member


Date Joined Mar 2011
Total Posts : 115
   Posted 12/17/2011 12:52 PM (GMT -7)   
PattyLatty,
So glad to hear you're having such positive experiences with yoga! I've always loved yoga and it's definitely a big part of my treatment now. The twitching muscles have naturally resolved with the herbal protocol I'm following (along with a million other symptoms! It's crazy how powerful herbs are.)

Pangier,
Your symptoms all sound very, very familiar. Like I said above, most of mine have resolved with a ton of herbs, but I do still have the ringing in the ears, though not as intense. It gets louder at times but has mostly detained to a dull hum.
aquaholical.blogspot.com

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1489
   Posted 12/18/2011 10:13 AM (GMT -7)   
Hi Aqua,
I was just looking in on the MS forum to se if anyone was dealing with MOLD
exposure and the first post I saw was your's.

I usually post on the lyme forum.

I think it is very interesting that you had the bite when little girl.
I think I was bittten around 10 yrs old also and then a few more times
over the years growing up on Long Island.

I was wondering what herbal you are taking that are making you feel better.

You're welcme, of course, to come share over on Lyme posts.

Good luck on your journey to better health
20 yrs of doctors . DEC. 2009 tested positive for lyme, bartonella, ehrichiosis, HHPV6, chlamadyal pneumonia .
parasites :strongylides, diaoebia fragialis, hook worm.

Hep C ....fibro, rhumatoidal,depression,

aquaholical
Regular Member


Date Joined Mar 2011
Total Posts : 115
   Posted 12/18/2011 11:37 AM (GMT -7)   
Hey Bucci :) I recognize your screen name from the lyme boards, where I poke around more these days. (Haven't posted in awhile on there but I get on every day and read)

I'm following Stephen Buhner's protocol:
www.amazon.com/Healing-Lyme-Prevention-Borreliosis-Coinfections/dp/0970869630

It's been nothing short of a miracle. I was bedridden before I started it and upon starting just the main herbs I felt 9,000x better and was able to go back to work. I've been steadily getting better and better with each month that passes. The flare ups are getting shorter and less intense (in fact, right now is the longest I've gone between flare ups!) and upon re-testing my CD57 last month my levels are back to normal (200) (When diagnosed it was 37).

I also follow the diet as closely as I can: no gluten, no sugar (even fruit), minimal dairy, etc etc.

I go to acupuncture weekly and that has helped completely resolve several pesky symptoms (IBS, searing shoulder pain, night sweats) and also helped keep me centered and relaxed. And to that same effect I try my hardest to have bi-weekly massage, but because of cost it sometimes ends up only being once a month. In Buhner's book he has an entire chapter dedicated to the importance of massage/stress relief. I highly recommend you check it out! :)

Good luck with the mold issues :/ My parents just found mold in their house and my mom is having severe problems with it. I know how awful it can be and I hope you find relief.
aquaholical.blogspot.com

Jewels2970
New Member


Date Joined Jul 2012
Total Posts : 5
   Posted 8/20/2012 7:54 PM (GMT -7)   
Hi all I realize this post is a little old but I was hoping someone would still be reading it.

I just want to say a couple things one is I've been sick for 4 months with very similar symptoms to yours Aqua. My symptoms are a little bit different and some wre much the same, but the one thing I know that's different for me is it began five days after getting two vaccines so that's the only thing that makes me think that it might not be lyme for me. But I did have one symptom before the vaccines and that was palpitations perhaps it was just the beginning and my shots were Coincidental?

all tests have come back negative but on western blot I did show four bands so Im going to see an LLMD but I really like the idea of herbs better. Thank you for following up and leaving information for others to look into.

Also I wanted to mention about the mold my daughter got very sick last summer when she moved into an apartment that had mold growing under the carpet. When she moved and got very sick I kept telling her must be something in your environment finally move back in with me and took a few months she finally got back to being healthy. When It first started she was having all kinds of blood drawn and having all kinds of tests and nothing was ever found out. They did MRIs and they checked her heart checked herr for lupus couldn't find anything. When we found out about the mold I told her to ask her doctors they all seemed stumped they didn't have any clue if it could be mold they never said they thought it was mold all it took was simply moving out of the environment she was able to get healthy again.

aquaholical
Regular Member


Date Joined Mar 2011
Total Posts : 115
   Posted 8/21/2012 2:53 PM (GMT -7)   
Hey Jewels! :)
Sorry to hear you've been having a similar myriad of awful symptoms. I would most definitely follow up with an LLMD. I'd do some research and see if you could find one like mine who's more of an "integrative" doctor (relies on both pharmaceuticals AND herbs) if you're leaning more towards wanting to follow an herbal protocol. (Which I could not recommend more--Stephen Buhner's protocol just about saved my life.)

and just a note--I used to subscribe to the fictional Dr. House's stance on coincidence: that there is none with illness. But the onset of my Celiac symptoms coincided with me getting off birth control. So for the first few months of bloating/mood swings/cramps/etc I thought were related to hormones/birth control. It turned out just to be a coincidence with timing. It was very much only the Celiac causing all those symptoms.
aquaholical.blogspot.com

mcb618
New Member


Date Joined Oct 2012
Total Posts : 7
   Posted 10/13/2012 6:47 AM (GMT -7)   
I have MS and my legs ache a lot more and i have ringing in my ears seems like for  years. DS in 2008. Had first attack at 18.  Did not know at the time that i had it then. Is there anything out there to help with my legs aching and my ringing in my ears? Can someone please help. I take Avonex Pen once a week, but i am finding that i still hurt.Please help!

Ccbrunk
Regular Member


Date Joined May 2013
Total Posts : 49
   Posted 5/16/2013 5:23 PM (GMT -7)   
I hope this thread still gets checked. If so, I hope someone has enough time to read what I'm guessing will be a very long post. Thanks in advance!

I'll start by saying I've had problems for over a year, but the recent joint pain and ringing in my ears brought me here today. I actually typed the exact title of this forum into Google, and I'm surprised and excited that I found this! I'll start with my symptoms/back story, and then I'll go into what doctors have found and said.

I've been having neurological issues for about 16 months now. It started with numbness and tingling in my extremities with migraines, blurred vision (trouble focusing my vision, and "shaky" vision), dizziness, and muscle weakness/tremors. All of my symptoms peak if I get hot (physical activity or just being out in the sun). At the peak of the migraines I lost vision in my right eye (vision narrowed and grew dark, saw flashing "shapes"). I haven't lost vision since last February (2012), but I continue to have migraines, usually preceded by sensitivity to sound. My ears are so sensitive that touching any part of my ear shoots pain through the ear and into my neck. Within the past 4 months the ringing in my ears has increased to the point that I can't hear people in other rooms of my house. All of my joints hurt, but my left shoulder and both of my knees get to the point of not wanting to move at all by the end of every day. It's hard for me to eat because I always feel like something is stuck in my throat. Within the past 2 months I have woken up vomiting 4 times. I mean, when I woke up, the vomit was already in my mouth.

My neurologist thinks I have MS, but no MRIs have shown that. He said it can take 5 years or more for MRIs to show the white spots he's looking for. Has anyone else waited that long for a diagnosis?

MRIs did show a growth on my pineal gland. I'm told this is a very common place to have a "growth" in your brain. At first it was measured to be 7mm, but now (a year later) they're measuring it at 8mm. I thought that one millimeter could be a picture clarity issue, but my neurologist said the scanners can measure down to the tenth of a millimeter, so one full millimeter is cause for concern. Even with that, he wants to repeat the MRI in 6 months to see if it grows more, or if white spots show up. Also, my doctor said the cyst is adjacent to the area of the brain that controls body temperature. This could explain why I sweat from eating a bowl of cereal. If it grows more, I'm supposed to see a neurosurgeon.

EEG/QEEG results showed that I have level 3 seizure activity, so I have been put on multiple drugs to combat that, but all of them caused other serious side effects. I am not currently on any seizure medication.

Evoke potentials recently showed something wrong with the nerves between my brain and my right leg. My neurologist thinks this is yet another sign of MS.

My lumbar puncture came back "clear." That was a year ago.

I was diagnosed with sleep apnea. I’ve been using a CPAP machine for a couple months now. I do sleep better, but only after I finally fall asleep, which takes a long time.

A Neuro-ophthalmologist checked for delineation of my optic nerve to support theory that I have MS, but didn’t find anything. That was almost a year ago.

My endocrinologist evaluated the growth on my pineal gland, and isn’t concerned with it but will continue to monitor with MRIs. She said I have hypogonadism and dyslipidemia.

My rheumatologist said I have fibromyalgia.

Does anyone have any thoughts on all of these symptoms? Right now I'm not sure if I have MS, of if I'll be seeing a neurosurgeon in 6 months because of the pineal cyst. My primary care doctor wants me to return to work, so I don't know if he believes me when I say I can't eat, I can't hear, and I have to use crutches to get around my house.

I hate that anyone is going through this, but it is slightly comforting to know I'm not alone.

-ccbrunk
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