Possible MS? Help

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ZacB
New Member


Date Joined Feb 2016
Total Posts : 11
   Posted 2/8/2016 2:11 PM (GMT -6)   
Here is my story. On December 15th, a week after starting on Prozac, I got really light headed while at home. The next day I had severe chest pains and pain in my right arm. The day after that, the chest pain was still there, but pain moved to my left arm and leg. On the 18th, I went to emergency. Had a chest xray, EKG and blood work done to rule out a stroke. They chalked it up to the meds and took me off. The chest pain went away, but since then, my pain in the legs and arms have gotten worse, but is not only in the left side anymore. Sometimes it is in both legs, sometimes in both arms, sometimes everywhere including hips and shoulders. I have taken Ibuprofen a few times to see what happens and it seems it feels like it helps at times, but since the pain is not constant all day, it is hard to determine if the ibuprofen is doing it. The pain goes from burning, to a nerve pain to just general discomfort.

I also have numbness on the left side of my face since 1/30/16... The face numbness is scaring me, but it does not affect speech or anything like that. Some tingling from time to time in my fingers and toes. I am a 26 year old male. I don't know what is going on, but we ran a brain MRI with contrast and it came back completely clean. Had an ELISA test for Lyme and blood tests for thyroid and diabetes.

Help... confused

Post Edited (ZacB) : 2/8/2016 3:09:27 PM (GMT-7)


Snoopy
Regular Member


Date Joined Sep 2015
Total Posts : 182
   Posted 2/8/2016 2:47 PM (GMT -6)   
Hello ZacB,

The good news is your brain MRI is normal, no indication of Multiple Sclerosis.

Nerve pain as well as other types of pain experienced with MS does not respond to over-the-counter pain relievers such as Ibuprofen, Acetaminophen, ect. Since Ibuprofen helps then your pain isn't due to a disease like Multiple Sclerosis.

Best wishes.
Diagnosed with Multiple Sclerosis in 1985
PTSD diagnosed Feb 2004 (PTSD since age 2), Anxiety/Panic attacks secondary to PTSD.

ZacB
New Member


Date Joined Feb 2016
Total Posts : 11
   Posted 2/8/2016 3:06 PM (GMT -6)   
I have been told that brain MRIs do not always show lesions. If not MS, what else could this be? This has been going on for 2 months. The last 2 weeks have been the worst though... I suffer from bad anxiety, so I am needing a diag.

Snoopy
Regular Member


Date Joined Sep 2015
Total Posts : 182
   Posted 2/8/2016 3:32 PM (GMT -6)   
It's true that lesions do not always show on MRI.

But, the fact that over-the-counter pain relievers help your pain and you have body wide symptoms makes MS unlikely.

Chest pains, as well as the other symptoms you are having can be caused by anxiety. Anxiety can cause body wide symptoms. If you are not seeing a Psychiatrist and/or a Psychotherapist to treat your anxiety that would be a good place to start.
Diagnosed with Multiple Sclerosis in 1985
PTSD diagnosed Feb 2004 (PTSD since age 2), Anxiety/Panic attacks secondary to PTSD.

ZacB
New Member


Date Joined Feb 2016
Total Posts : 11
   Posted 2/8/2016 4:11 PM (GMT -6)   
I understand. I am not sure how much, if at all the ibuprofen helps. Since the pain is not the same strength all day, it is hard for me to determine if it is actually causing the pain to go down, or if it's just part of the ebbs and flows.
The pain is pretty consistent as far as always being on the left side, but i just goes from only the left, to both arms only, to both legs. But the left side is always involved. It doesn't jump from left to right. My doc is stumped. I haven't seen a nuero yet, and not sure if I should.

Post Edited (ZacB) : 2/8/2016 3:14:46 PM (GMT-7)


Snoopy
Regular Member


Date Joined Sep 2015
Total Posts : 182
   Posted 2/8/2016 4:39 PM (GMT -6)   
ZacB,

If it would make you feel better then please see a Neurologist.

If you have a normal Neurological exam and the MRIs is normal then MS will be highly unlikely. There is no way to experience Neurological symptoms caused by MS and have a normal Neurological exam/evaluation and normal MRIs/testing.

Has any of your Drs. suggested MS as a possible cause? Did a Dr. tell you you're having nerve pain or is this what you think it is?

You might consider posting on the Anxiety/Panic Forum. They could help you deal with your anxiety.
Diagnosed with Multiple Sclerosis in 1985
PTSD diagnosed Feb 2004 (PTSD since age 2), Anxiety/Panic attacks secondary to PTSD.

ZacB
New Member


Date Joined Feb 2016
Total Posts : 11
   Posted 2/8/2016 4:45 PM (GMT -6)   
Within days of exiting the ER for the chest and arm pain, my Dr. recommended the MRI to rule out MS. She put this whole thing in my head in the first place. Then, me being paranoid, went to every site online to look up symptoms. I don't feel any weakness in my extremities, just discomfort. She never said nerve pain, but i notice it in my arms where the pain is, i feel a sensation shoot down my arm if i push on it. So I made the assumption of nerve pain. The slight numbness in my face also helped me point to nerves.

I have never had a panic attack or anything like that, but I do tend to break down if things go crazy at work or in the home, etc. But I never remember anything particularly stressful before this all started. As a matter of fact, I was off work for the remainder of the year when this all happened.

Snoopy
Regular Member


Date Joined Sep 2015
Total Posts : 182
   Posted 2/8/2016 5:22 PM (GMT -6)   
ZacB said...
Within days of exiting the ER for the chest and arm pain, my Dr. recommended the MRI to rule out MS. She put this whole thing in my head in the first place. Then, me being paranoid, went to every site online to look up symptoms.


I'm sorry. I really wish Drs. would be more cautious about what they say. It's also not a good idea to research something like MS, it can scare the crap out of a person. The problem is, the subconscious can create symptoms when there is no medical reason.

Multiple Sclerosis is a disease of the Central Nervous System(CNS) which include the brain, spinal cord and optic nerves. Lesions can be found anywhere within the CNS. If you see a Neurologist please ask if they will also do a MRI of the cervical spine (neck), if this is also clear (normal) and if your Neurological exam is normal then that with a normal brain MRI is a pretty good indication MS is not causing your symptoms.

There are many other conditions, medications and mental health issues that can cause the same symptoms as MS. There is no symptom unique or exclusive to Multiple Sclerosis.

Even though I have had MS for a very long time I still have a problem knowing if I am experiencing MS pain/discomfort or if it is from something else. My Neurologist told me, a long time ago, if I get even a little bit of relief from over-the-counter (otc) pain reliever it's not caused by the MS. When I experience any kind of pain or discomfort I will usually start out trying an OTC pain reliever, if that doesn't help, even a little then I know I am dealing with MS.

Please try and relax. If it would make you feel better then please see a Neurologist.
Diagnosed with Multiple Sclerosis in 1985
PTSD diagnosed Feb 2004 (PTSD since age 2), Anxiety/Panic attacks secondary to PTSD.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3491
   Posted 2/9/2016 7:44 AM (GMT -6)   
ZacB,

You've received some excellent advice and support from Snoopy. I agree with her that your symptoms and your clear MRI lead me to form the opinion that you have something other than MS going on. Certainly you could seek out a neurologist, and preferably one who specializes in MS. This may set your mind at ease. I do hope you are seeking aggressive treatment for your anxiety. This is a real and serious disease that causes so many to suffer greatly.

Good luck. You are always welcome to ask questions.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

ZacB
New Member


Date Joined Feb 2016
Total Posts : 11
   Posted 2/9/2016 1:42 PM (GMT -6)   
I understand which is why I am so hell-bent on figuring out what's going on with me. Like I said, I am not 100% sure that the Ibuprofen dulls the pain, as it kind of gets worse at time during the day then backs off. I am just not sure where else to ask my PCP to go. I just want to be back to normal, but if it is something, I want to address it and get it handled early.

While the pain sometimes presents on both sides at once, it is more on the left side so that is the part that scares me...

Post Edited (ZacB) : 2/9/2016 12:46:33 PM (GMT-7)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3491
   Posted 2/9/2016 3:06 PM (GMT -6)   
The fact that the pain moves also is not a symptom of MS. MS pain corresponds to damage to the brain or spine. For example, I have a spinal lesion and that has caused me to have numbness in my feet. That numbness never goes away or varies from place to place.

I hope you can make an appointment with a neurologist soon.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

ZacB
New Member


Date Joined Feb 2016
Total Posts : 11
   Posted 2/10/2016 4:39 PM (GMT -6)   
Hello, I have a small update.

I saw another doctor (second opinion) who has had many patients with MS that he has diagnosed. He did a neurological exam on me including reflex tests with the little rubber hammer, testing strength in fingers and toes, coordination, balance, etc. He said everything looked normal.

He recommended not seeing a neuro yet, and instead just seeing if I get better over the next few weeks to a month. He thinks going to a neuro is premature at this point., especially since my brain MRI and neurological exam seemed normal.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3491
   Posted 2/10/2016 5:17 PM (GMT -6)   
This is good news! I hope you find relief very soon.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

ZacB
New Member


Date Joined Feb 2016
Total Posts : 11
   Posted 8/12/2016 6:06 PM (GMT -6)   
Hello everyone. I wanted to thank you all for everything. It has been a while since I last logged on. I have had an ungodly amount of blood tests and even requested a neck MRI to rule out MS from my neurologist. My blood tests indicated that I have a very elevated ANA result. I was told that this is usually indicative of a rheumatology issue as these can cause the numbness and pain. The Rheumatologist determined I have a condition called "Undifferentiated Connective Tissue Disease". Which he called a "minor" version of lupus. I am on medication now and since being added to my daily routine, I am feeling a lot better and almost 100%.

Thank you for all of the support.

Teenaween
New Member


Date Joined Nov 2016
Total Posts : 4
   Posted 11/6/2016 8:16 AM (GMT -6)   
I am new and I have been sick since 2011. Diagnosis?? Nope. I have every symptoms of Ms but MRI was clean of lesions. Had emg no carpal tunnel or signs of nerve damage. I am worse with every passing year. I feel 90 at 45. My full time job zaps all energy so I'm exhausted. Never do much due to fatigue & pain.Could it be that the MRI in 2012 did not show?? Do you have to have lessions? I am now leaning to the left at sitting and I seem to be quick to anger....these are newest issues. Could it be parkinsons? I am sensitive to drugs so not seeking & I hate docs but it's been since 2011! Something is really wrong! bloodwork showed negative to RA & lyme as well. Any suggestions for me? I know something is very wrong & it's more than just fibromyalgia. Not that FM is not bad enough, but I just know...please help. No holding back any suggestions are helpful at this point
Thank you

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3491
   Posted 11/6/2016 2:25 PM (GMT -6)   
I'm sorry you've been in limbo for so long. Most doctors won't diagnose MS unless you have lesions. Even with lesions, you may not get a diagnosis. Brain lesions can be caused by many other illnesses and disorders.

MS is an extremely expensive disease to treat. You will want to be sure it is MS.

You may want to ask for a new MRI. It's been a few years. You may also want to ask for a lumbar puncture and evoked potentials (extremities, vision and hearing). Those are the standard tests for MS.

Also, you may want to revisit Lyme disease. The blood tests are very poor. You may want to post on the Lyme board here.

Best of luck to you. Keep us posted. Ask any questions you may still have.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Teenaween
New Member


Date Joined Nov 2016
Total Posts : 4
   Posted 11/6/2016 4:31 PM (GMT -6)   
Thank you

Gail534
New Member


Date Joined Dec 2016
Total Posts : 5
   Posted 12/20/2016 5:18 PM (GMT -6)   
Hi ZacB
Just curious if you had asked your neurologist if Undifferentiated connective tissue disease can cause numbness/tingling on your face? I think it's been 4 months since you posted hope you are doing better. I just signed up today and have been reading some old post.

Poseid0n
New Member


Date Joined Feb 2017
Total Posts : 2
   Posted 3/13/2017 5:35 AM (GMT -6)   
@gail534 I agree with u...
@ZacB I also curious if undifferentiated connective tissue disease can cause numbness/tingling on your face
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