MS symptoms are so much to take

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Jackss
Regular Member


Date Joined Apr 2014
Total Posts : 20
   Posted 12/22/2016 9:41 AM (GMT -6)   
OMG, MS is more than just dizzy and loss of balance. I had those symptoms come & go, but I also get a TON of other symptoms. Does anyone else get all these crazy symptoms? Those stupid commercials all make it look benign & like we are having a dandy time & it gets me steaming!
MS is HELL & not many "normal" people realize this!!!!


Can you write the numbers that apply to you, that would be awesome...thanks!

1) Head pain & brain fog/cog fog.
2) Eye disturbances.
3) Ear ringing.
4) Pins & Needles, stabbing. tingling, numbness and/or burning.
5) Tremors, and vibrations.
6) Muscle twitches & involuntary body movement (arms, legs, torso, face...etc)
7) Joint pain, all over my body, including my back & neck pain/stiffness, as there are tons of cartilage there. So much clicking & crackling at times and evens swelling sometimes.
8) Jaw pain, as the jaw is just another joint & has cartilage. With jaw clicking too.
9) Rib pain, as is tons of cartilage in our ribs.
10) Chest pain or tightness.
11) Below the rib pain, as if my pancreas or liver throb. Sometimes sharp stabbing pains, like a knife going through.
12) Fatigue, just always sooooo tired & exhausted!
13) GI issues that come & go.
14) Muscle pain, burning, or weakness.
15) Shortness of breath & like I cannot get a good enough breath of oxygen.
16) Night sweats & sometimes during the day I will just start sweating for no reason.
17) Disturbed sleep....uhhhhhh!
18) Heart palpitations or heart behaving weird & off beat or pulse skips.
19) Sometimes a sickly or deathly feeling that comes over me, like an unwellness and an uh oh feeling.

What hell on earth & nobody around you understands what I am going through!!!

Snoopy
Regular Member


Date Joined Sep 2015
Total Posts : 165
   Posted 12/22/2016 10:58 AM (GMT -6)   
By your "list" you don't have MS and are "fishing" for something.

This is the first time you have ever posted in the MS forum although you are not a new member.

I'm not writing any number by anything on your list because the majority of it doesn't apply to Multiple Sclerosis.

Jackss
Regular Member


Date Joined Apr 2014
Total Posts : 20
   Posted 12/22/2016 12:23 PM (GMT -6)   
Huh, my docs checked me for MS with MRI a few years ago & now it has gotten worst. My neuro thinks I have MS because my loss of balance & walking and dizzy. I will get scanned again next week.

What do you mean fishing? I want to know from others if they are experiencing the same thing I am.

Snoopy
Regular Member


Date Joined Sep 2015
Total Posts : 165
   Posted 12/22/2016 1:00 PM (GMT -6)   
If I misinterpreted your post I apologize.

At this time you do not have a diagnosis of MS. There is no symptom that is exclusive to MS. Many other conditions, medication side effects, vitamin/mineral deficiencies and mental health problems can cause the same type of symptoms as seen in MS.

The diagnostic criteria for Multiple Sclerosis (The Revised McDonald Criteria) requires all other possible causes for a person's symptoms must be ruled out. MS cannot be diagnosed based on symptoms alone.

Some of your symptoms would not be due to MS and even the ones that could be due to MS could also be caused by many other things.

Good luck with testing.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3482
   Posted 12/23/2016 5:25 AM (GMT -6)   
Jackss, I doubt you'll be diagnosed with MS since you've been diagnosed with Lyme disease. Since Lyme disease can explain your symptoms, MS can be excluded.

Best of luck to you in your Lyme treatment.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Jackss
Regular Member


Date Joined Apr 2014
Total Posts : 20
   Posted 12/29/2016 6:05 AM (GMT -6)   
I think one can have Lyme & any other damage that can produce the actual disease?

I few people responded to me in another website & some of them have either all the symptoms, all plus more, or the majority of the symptoms.

It is hard to tell which is the Lyme & which is the MS then.

mokeyho
Regular Member


Date Joined Aug 2009
Total Posts : 101
   Posted 1/23/2017 10:56 AM (GMT -6)   
In the list Jackss provided, I have 1-7, 15, 16 and 18. I have confirmed blood tests for Lyme and Babesia. I have multiple lesions on my brain and because of that my LLMD keeps talking about MS. Recently, I had loss of brightness and blurriness in one eye, but the eye doctor confirmed there was nothing physically wrong my eye - no optic neuritis.
DX w/ Lyme, Babs, Bart in Sept '09. On IV abx Nov '09 until Mar '09. Orals for a few months and I felt great so I just stopped. In Apr '16, things suddenly went awry... my ability to walk was affected, double-vision, it hurt to touch my bare belly with my bare fingers, but no problem touching through fabric. Started three oral abx in Apr 2016. New problems in Dec 2016. Back to 4 abx Dec '16.

Snoopy
Regular Member


Date Joined Sep 2015
Total Posts : 165
   Posted 1/23/2017 3:05 PM (GMT -6)   
Lyme disease can cause brain lesions and Neurological symptoms.

sulig
New Member


Date Joined Feb 2017
Total Posts : 3
   Posted 2/14/2017 6:50 PM (GMT -6)   
I have 14 of the symptoms as Jacks. Sitting not long and another new one sitting in a kitchen chair and muscles just drop for no reason. Been check for Lyme and all the other till M.S was diagnois. Ten plus lesions on the brain and one on my neck. Jackss it is not easy with those symptoms. It plays hell. Everyone has different symptoms with M.S. It is more torture to some people than others. How is your vitamin D and B12? I have problems with that too. I have some other problems also. M.S is sometimes a hard thing to get a diagnosis. What you are suffering is hell. I hope you can get to the bottom. No fun. Horrible. Some people suffer more than other with M.S anyway.

mokeyho
Regular Member


Date Joined Aug 2009
Total Posts : 101
   Posted 2/15/2017 9:19 AM (GMT -6)   
sulig said...
I have 14 of the symptoms as Jacks. Sitting not long and another new one sitting in a kitchen chair and muscles just drop for no reason. Been check for Lyme and all the other till M.S was diagnois. Ten plus lesions on the brain and one on my neck. Jackss it is not easy with those symptoms. It plays hell. Everyone has different symptoms with M.S. It is more torture to some people than others. How is your vitamin D and B12? I have problems with that too. I have some other problems also. M.S is sometimes a hard thing to get a diagnosis. What you are suffering is hell. I hope you can get to the bottom. No fun. Horrible. Some people suffer more than other with M.S anyway.


Hi sulig. I have a confirmed diagnosis of Lyme and Babesia. I have lesions on my brain and one on my spine. I also have had very low vitamin D and folic acid in the past, for which I took supplements. Getting checked for Lyme and coming up negative does not rule it out.
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