It seems to me that you need to find a new neuro. Or perhaps a primary care physician who will not be afraid to diagnose the MS, and get you started on one of the disease-modifying treatments available. 2004 is a pretty long time ago -- I wasn't clear by your post if you've seen a neuro since then?
You say you had two bouts of optic neuritis...did you see an ophthamologist to confirm that, and does your neuro know about that? Sometimes they won't diagnose MS at the first visit, but when the patient calls or comes back in with new symptoms -- like optic neuritis -- then they're ready to move forward.
It might be time to get new MRI's, see if there are more lesions, or lesions in different areas, and then press for specific treatment (Avonex, Betaseron, Rebif, or Copaxone).
As for the bloating and constipation -- are you indeed constipated? This means: are your stools hard, in small balls, painful to pass? Or is it more that your bowels are sluggish -- you don't have daily bowel movements, or even bowel movements every couple of days...but when you do, they are loose; formed, but loose? The sluggish bowels are another possible symptom of MS (although there are other causes, too..but since you had the colonoscopy, most of that has been ruled out, or at least checked for.) You should probably tell your neuro about this, too.
If you are OK with your current neuro, then an appointment is in order. Get the records from the eye doctor about the ON, and talk with the neuro about that and the bowel problems, and maybe he'll take action.
But indeed if you're not confident in him, taking all this to a new neuro, and getting new and current MRI's, might be the best.
Post Edited (Neurotransmissing) : 7/24/2006 12:34:09 AM (GMT-6)
Post Edited (Neurotransmissing) : 7/24/2006 12:34:30 AM (GMT-6)
After all this time - all the tests - the doctors and specialists - the knowns and the unknowns, it's no wonder you still feel lost.
Please - I pray that you find a board certified neurologist in your area that specializes in diagnosing and treating MS - as well as working with a certified internal medicine physican. Both are needed to help you find your 'new normal' - whatever that might be.
I do believe that today's MRI's are the best and most efficient diagnostic tests available -- along with reviewing your own personal history of medical 'ups and downs' throughout these last years.
RUN - don't walk - to find a neuro who will listen to you -- treat you and your symptoms with respect -- and share their knowledge with you so that you can regain control of your life. You are 'the master and commander' of your life-- stay strong!
MS is not an easy disease to diagnose because it is NOT an 'equal opportunity' ailment....just ask anyone who has been diagnosed in the last 10+ years.
And, if after you've received the 'answer' and it is, indeed, MS -- then instead of feeling lost, embrace the knowledge that you now have the key that will unlock your future so that you can proceed to live your life with purpose, passion and perseverance.
A dis-ease does not define us. MS is NOT a death sentence. When you can finally and truthfully say, "Yes, it's all in my head"....then you can laugh and know that you can and will survive as a fellow traveler along the road of life. As the saying goes, "that which does not destroys us only makes us stronger" is absolutely, undeniably TRUE!
My prayers are with you - know you are loved. Namaste!
Monlynn in Montana