feeling overwhelmed and update on Avonex shots

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shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 6/9/2006 1:05 PM (GMT -6)   
Hi All,
I thought I'd fill you in on my Avonex.  I had my 5th shot yesterday, my hubby gave it to me in the arm.  I tried not to whince but it really hurt!  He is trying so hard to do this for me.  He gave me my shot last week in the thigh for his first time.  I am still having horrible side effects from the shot.
 
Last night and hour after my shot the horrible headache started then about 3-4 hours later chills, fever over 101 and intense body aches.  I do take alot of advil and learned today I need to take 4 in order to get relief.  I still had fever and horrid headache this morning but after taking the alotment of advil I am finally feeling better.
 
Do any of you just get overwhelmed with all you have to do some days and yet you don't have the energy or feel up to any of it?  I have been experiencing it, I just feel so rotten and don't know how on earth I can do what needs to be done.  My daughter recently brought home a 3-4 week old kitten that had been abondend and that is like having a new born baby!!  I want to care for the poor thing but I just don't know how I can add one more thing to my overloaded brain and body.
 
I am feeling down because I realize that I am not going to get "better", in fact, this may be the best I will ever be.  That makes me sad! eyes
Michelle ><>
 Some people go through life standing at the complaint counter.
Every time you want to grumble,
Think of others who have less;
Ask the Lord to keep you humble,
Grateful for each happiness.  —Marye

 

 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/9/2006 1:39 PM (GMT -6)   
Hey Michelle

O Michelle, don't feel so sad. Even tho i can't say i have ms, i can say i know what u'r speaking of. Overwhelmed and just not able to handle my already small load. All i have is my home and children (now that they're out) and often it's just such a burden. U'r not alone. Even 'well' people feel this way. Sometimes the 'now' feeling can overcome u..and u can feel that this is as good as it gets, but remember who holds tomorrow for u and who controls u'r every physical, mental and spiritual feeling. U'll get thru this, tho right now it seems so hard. Don't let the sadness overtake u friend. Grasp for u'r family's and friend's strength and rise up. I'll be here should u need me.

rhonda

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 6/9/2006 2:12 PM (GMT -6)   

Yes, we all feel overwhelmed at times, I think.  I think that, over time, you'll learn to manage to juggle all the balls in the air that you NEED to juggle..

and learn to set down those that aren't so important.  These are just generalities, and may not apply to you, but for example:

some folks think they have to have an immaculate house, and get overwhelmed when they just don't have the energy to clean every day like they used to.  Well, y'know?  dust bunnies never choked anyone. Sometimes it really IS OK to just not vacuum every day. Or make the bed, complete with comforter, bedspread, dustruffles, and all those fancy pillows. Or wash the kitchen floor EVERY day (like, I know there's the expression, "my floor's so clean you could EAT off it!!" When's the last time you served dinner off the floor???)

I don't know your schedule, so can't help you figure out what maybe you don't NEED to do, vs. what should be done regularly.  I can tell you this, though: your daughter will be much more grateful about your attempts to care for the kitten than she might notice that her laundry isn't done.  Or that her bureau is dusty. (And besides...how old is your daughter?  never too young to learn how to do some stuff for herself..and to help you!!)

 

As for the Avonex. I've never found advil or aspirin to do much to touch the side effects from the interferons.  I know they tell you to take advil or tylenol; you might try ibuprofen (you can get it generically, pretty inexpensively, at most pharmacies) and see if that doesn't work better for you.

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/9/2006 2:54 PM (GMT -6)   
Hey Uppity

Cute! Nope, i've never tried to serve supper off the floor before either...and can't say i want to! Very good advice that i think we could all benefit from...sometimes things just have to be let go for now. Every little thing doesn't have to be done every day...some things are done so regularly because we've developed that habit in our times of being healthy and well...and those old habits just have to go when we can no longer maintain them. I can tell u i used to iron EVERYTHING my family wore...now they get hung straight out of the dryer..and HOPEFULLY those wrinkles will fall out. The point is this...amend things that can be amended and make life easier for u'rself. Michelle, u have an aweful lot on u and as things get added to ur list of 'chores' and u feel obligated to perform ur normal tasks as well as any new...u can become overwhelmed and stressed to the point that none of ur efforts seem fruitful. Ur just spinning ur wheels and becoming more and more unhappy and stressed. Life is about living and enjoying it...not about trudging thru it. All this is so easy for me to say...as uppity said i don't know u'r schedule...but i can tell u that weeding u'r life is sometimes the only and best thing u can do...sick or not. I really hope the side effects of the Avonex improve. U sure are having a lot of fever and chills with it. Try to take good care of u...so u'll be the mom and wife they need. With all this said, u know i pray for u and hope for the very best for u and u'r family.

rhonda

Neurotransmissing
Veteran Member


Date Joined Dec 2005
Total Posts : 952
   Posted 6/9/2006 11:49 PM (GMT -6)   


~ Prayers & Shares ~
Finally, whatever is true, noble, right, pure, lovely, admirable
-  if anything is excellent or praiseworthy -
think about such things. 

Post Edited (Neurotransmissing) : 7/24/2006 12:39:22 AM (GMT-6)


DFC
Regular Member


Date Joined Apr 2006
Total Posts : 136
   Posted 6/10/2006 9:36 AM (GMT -6)   

Hi Michelle,

So sorry you are feeling overwhelmed. Has the doctor got something that he/she could suggest to help you over the hump? Also, Advil is a brand name for the generic drug ibuprofen, so you may have to try a new family of drugs. I went out and got a miniture dacshund (had them when I was growing up)...it was a rescue dog and I have my son help me with her...she has a bad back typical of the breed. Maybe your daughter can help with the kitten and you can provide the snuggling. Pet therapy is good for the soul and with 2 cats and a sick dog I know I will always be needed and not judged by these animals who do eat off my floor and  have never complained that it is not clean enough!! People who love and care for you will be the same. You will be okay and remember that you have your family and this too shall pass. Hope you are feeling better. :-)

Dale


my5cats
Regular Member


Date Joined Dec 2005
Total Posts : 67
   Posted 6/10/2006 10:14 AM (GMT -6)   

Okay Michelle,  I felt the way you do too before I started on Wellbutrin.  I also take Avonex and I didn't think I was "depressed" when I started on it, but after a couple of months my neuro told me she thought I was depressed from the start and put me on the Wellbutrin.  I guess she was right because I do feel better and the Avonex doesn't even make me that sick anymore.  I feel achy and tired, but it's hard to tell if it's the medication or just the way I feel.  Now doing the shot shouldn't hurt like you are saying it does.  My nurse "teacher" said to freeze the site with a blue freezer pack (like a cooler ice pack) for about 15 minutes before doing the shot.  I don't even feel the needle.  Mentally it's still a long needle and it still scares me, but I do not feel it in my thigh at all.  If you aren't already, try doing that and maybe you will do better with it.  Your body will get used to the Avonex.  Do you take a xanax or anything before you do the shot?  I find that it really helps me to be able to get past the fear and anxiety if I take one half an hour before I do the shot.  I hope you feel better soon.  No one should feel the way you are now.  Take care and don't worry about chores.  They will be there when you feel better.

 


Counting My Blessings
Regular Member


Date Joined Apr 2006
Total Posts : 53
   Posted 6/10/2006 12:15 PM (GMT -6)   
Hi Michelle - so sorry that it is all bringing you down. I, as many others, can relate to the Avonex side effects. I've been on it now since November of 2005 and for first couple of months were stinky for me but now they are much better. I still have an occassional shot that kicks my bum but that is rare. Now just get achy and such like others have mentioned. I hope you will come out of that stage soon as it is a relief when that first week comes and it doesn't knock you over like that.

The ice pack is definately a good idea. I use one of the ones that came in my Avonex delivery since they seem to be a lot colder than the ACE bandage blue ones and it numbs my thigh up in less than a minute. I think speed of injection is a factor also. When I first started doing my injections, I hesitated and it sure hurt a lot more where if I just did it really quick (think of snapping your wrist when you throw a dart) it just went straight in all the way so fast that it wasn't nearly as painful. That is why I have to do my own injections. I trust my hubby with all of my heart but I get worried that if he hesitates like I did in the beginning, it will hurt. Maybe I'm just a control freak - that' is entirely possible!!

I'll keep thinking of you and waiting to read that you have gotten past that initial yucky side effects stage.

Take care!
Karla

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 6/10/2006 6:17 PM (GMT -6)   
Hey Michelle

How are u feeling? I hope things are better for u today.

rhonda

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 6/10/2006 10:02 PM (GMT -6)   
Hi All,
Thanks so much for your words of wisdom and concern. I am feeling better...still a little overwhelmed. Yes, my hubby needs to be quicker at injecting, I"m sure that is why it hurt more. I think we'll stick to the legs and forget the arms for a while! I do have an icepack and may try that, I had to use one when i was on the Rebif but until this last shot, they really didn't hurt very much.

The advil I mentioned I take is actually generic ibuprofen. I tried Tylenol and Aleve and just think the 4 ibuprofen work better. I really wonder if the lupus is causing my reaction to the Avonex to be worst, I was on Rebif for over 5 mos. and had gotten to the point that my side effects were very minimal...hopefully the avonex will get better.

We have 4 cats now, including the 4 week old darlin' and they are very good therapy, I just have to watch the new baby like a hawk to make sure the 3 year old male doesn't eat him!!

Thanks again!

By the way, are any of you considering tysabri????


Michelle ><>
 Some people go through life standing at the complaint counter.
Every time you want to grumble,
Think of others who have less;
Ask the Lord to keep you humble,
Grateful for each happiness.  —Marye

 

 


sonny66
New Member


Date Joined Nov 2012
Total Posts : 10
   Posted 11/15/2012 5:35 PM (GMT -6)   
November 15, 2012
Hi
My name is Don. I have MS. I see that you use or think of using Avonex. I’ve had nothing but problems with it short and long term. I’m gone to starting a class action suit. Would you be interested? Don dsc4441@hotmail.com

sonny66
New Member


Date Joined Nov 2012
Total Posts : 10
   Posted 11/16/2012 1:26 PM (GMT -6)   
November 15, 2012
Hi
My name is Don. I have MS. I see that you use or think of using Avonex. I’ve had nothing but problems with it short and long term. I’m gone to starting a class action suit. Would you be interested? Don dsc4441@hotmail.com

Keckaroo
New Member


Date Joined Nov 2012
Total Posts : 8
   Posted 11/24/2012 9:50 PM (GMT -6)   
Oh boy, overwhelmed, smothered.....that's every day for me! Uppity is exactly right, you have to pick and choose what is important. I once was that person, that had an immaculate house 24/7! I had to clean every day, and before anyone could come in my house. With the progression of this disease though, that is no longer important. I save my energy for what HAS to be done. I make myself sit down and relax, and I do mean make myself! Life is too short, too busy, to now just throw your hands in the air, give in, and enjoy as much as you can. It's easy to get sad, I know. I have no friends, work and have my two kids, and 4 dogs. That's the extent of my interaction. And let me say, my dogs tend to give me an odd head nod when I attempt to have conversations with them, LOL :) Reach out to whoever you can, and just talk. Let it all out, that's the best thing to do. I wish you the best, and, it's good to know that we do have this chat room to talk in. I am glad that I've found it.
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