I'm a New Limbolander Too

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Ocotillops
New Member


Date Joined Jun 2006
Total Posts : 7
   Posted 6/21/2006 8:34 PM (GMT -6)   
Thought I would introduce myself as a new limbolander.  I had an "attack" in the middle of the night in August, 2005 (at the age of 42).

Here are the symptoms of my “attack”

BP 183/90 (something like that) – Elevated for 2 weeks
Vomiting - 6 hours straight (no stopping)
Extreme lower back pain – 8-10 hours
Felt like fireworks were shooting off in my brain (lights flashing) – 5 minutes
No Fever / No Headache (just weird sensation in head)
Severe (and I do mean severe!) Vertigo (could not get up from the bathroom floor)
Unable to walk for 3 days – wall hugger for 4 weeks
Double Vision for 3 days
Could not hold my head up for 4 weeks
Finally able to sit up and eat my meals after 4 weeks
Able to drive after about 6 weeks (needed my husband to go with me) very scared

Overall, I am doing OK now. I have constant R Leg pain, occasional numbing of the R foot and toes (all on the anterior side), and intermittent blurry vision. My BIGGEST problem is my eyes and my constant need to roll them upwards (like I need to stretch them upwards). Nobody understands why or can give me an answer. My vision did decrease by 2 steps in a matter of 3 months after my attack and my blind spots increased. I no longer have the extreme fatigue, but then again, I am only doing a fraction of the stuff I used to do. When dealing with stress now, I seem to develop R foot drop and start dragging my leg around and need to lie down and rest. So unlike the “old” me.

I did have a CAT Scan (Infarct found), an MRI (2 lesions in occipital lobe), an EEG, and blood tests (normal). I did not have an MRI of the spine or an LP.
 
All of my residual symptoms remain the same. I have not developed any problems with my arm or my L side. I have had 2 opinions from neurologist and they both say, “I don’t think you have MS”. For now, I think I shall play the “wait and see” game.  They can tell me what I don't have (Kidney stones, food poisoning, stroke, etc.), but they cannot tell me what I do have.  It is my GP who thinks I have MS.

In my CAT scan they also discovered that I have an osteoma (bony growth) in my Left frontal sinus. Ophthalmologist thought this might be causing my eye symptoms and sent me to an ENT. ENT was very concerned about the Osteoma and wants to monitor me every 6 months or so. The osteoma is in a position that cannot be extracted from going in through the nose and they would have to operate across my forehead (No Thanks!). I don’t see it popping out through my forehead, so I don’t think it is growing or doing me any harm as he did not indicate this is why my eyes roll up or get blurry vision in my R eye. This problem is a low priority in regards to my other symptoms, but I did let him treat me for my so-called sinus infection that was discovered in my MRI too.
 
Just wondering if anybody on this board has/had a similar attack.... :-)


Les


whtedragons78
Regular Member


Date Joined Jun 2006
Total Posts : 74
   Posted 6/22/2006 12:03 AM (GMT -6)   
I have not experienced much of what you are going thru, and am sorry you are having such difficulty.

My episode started on July 1st of last yr and after about 6 days of a constant headache and after taking a showr and almost passing out i went to the dr. The GP thought i was having a migrane and gave me meds for that and also ordered my first MRI. The meds did absolutly nothing. Then about 14 days into the headache a few days before the MRI, I was woken up in the middle of the night with a burning stabbing pain in the spot of the headache. Made me dizzy dissoriented and sick to my stomach. I then felt like i was going to vomit and ended up laying on my bathroom floor for over 4 yrs. Im not sure if I passed out, but do remember trying to call my husband only about 20 feet away and he never heard me. Maybe i dreamed it. lol.

I hope you find answers very soon.
cyndi

Ocotillops
New Member


Date Joined Jun 2006
Total Posts : 7
   Posted 6/22/2006 9:12 AM (GMT -6)   
Hi Cyndi,
 
Why do you think you have MS?  Was it your GP or your Neuros who made the suggestion? What was the result of your MRI?
Les


whtedragons78
Regular Member


Date Joined Jun 2006
Total Posts : 74
   Posted 6/22/2006 12:17 PM (GMT -6)   
I now have 2 lesions and my Mother was dx's with MS over 10 yrs ago.  The Neuro said initially when I only had one lesion that it couldnt be MS because i only hand one.  My GP told me that he feels that it is MS.  Depending on how the neuro apt goes on Tuesday, he is going to start me on meds if she doesnt.

Ocotillops
New Member


Date Joined Jun 2006
Total Posts : 7
   Posted 6/22/2006 12:36 PM (GMT -6)   
Best wishes to you!  Sounds like you have a very caring pro-active GP!
 
Keep me posted as to your progress....
Les


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 6/23/2006 8:18 PM (GMT -6)   
Hi Les,

Welcome to the board. I do hope you get some answers soon, so sorry you are having such problems. My husband has the numbness and leg pain also but nothing else that you are describing. Try to hang in there and let us know if you find out anything. Are they doing anything to treat your persistant symptoms til they figure things out?

Kimber
 
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