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bbeegun
New Member


Date Joined Jun 2006
Total Posts : 2
   Posted 6/29/2006 8:13 PM (GMT -6)   
confused Hi everyone. Im hoping I can get some answers. I am curently going through all testing for M.S. I have had all kinds of symptoms that seem like M.S. for about two years now. Feeling like a hypercondreac (sp). I have gone to the doctor over the last couple of years because It would seem like I had a flu for a month or all my skin is tingling and numb and limbs are heavy and weak ......and so on, Iv been told Im depressed or other incensitive things. Brother if I wanted attention Im sure I could find other ways to find it. Well anyways, I am a very hyper and phisicaly active 40yr old single mom of 4 so I would like to get to the bottom of what is keeping me down and from being a good mom every few months. So, I have all kinds of guestions.

Like I said I have been going through the testing this last month. I have had a millionn blood test and a brain mri that did not show anything wrong. On July 3rd I am going in for a couple other mri's on for the brain with contrast and on for my neck without contrast. I almost hope something shows up just so I know that I am not going nuts.

My question is: Is M.S. only genetic? No one in my family has it, no one in my family tree has had it. Is it possible for me to have it with out the heredity? I do have a therory; on my fathers side depression in the females was very signifigant. Maybe they were realy feeling crapy because of M.S but did not have the knowledge of M.S. After all even my modern doctor wanted me to believe I was depressed.

Thanks to all

Ocotillops
New Member


Date Joined Jun 2006
Total Posts : 7
   Posted 6/29/2006 9:22 PM (GMT -6)   
There is NO CAUSE and NO CURE for MS. However, there are many many theories on what causes MS. But, they are only theories. Studies suggest that if you have MS, then your sibling will have a greater chance of getting MS.
Les


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 6/30/2006 5:21 AM (GMT -6)   

While there is a genetic predisposition to getting MS if someone else in the family has it, or some other autoimmune disease (like lupus, rheumatoid arthritis, or a host of others)

there is no definite genetic link.  Unfortunately, the fact that no one else in your family has MS means little. It could be that you could get it, or something else.

Depression and other related illness DO "run in families", so with a history of that in your family, it would be usual for the doctor to focus on that, and perhaps miss what is going wrong with you.

Have you only seen a neurologist?  If so, you might consider seeing a rheumatologist, as what is happening might not be neurological in nature, but something like a chronic infection internally, that is causing your symptoms, or one of the other autoimmune diseases, like lupus. A rheumatologist would be more attuned to discovering that.

But you also need to understand that it can take a LONG time for symtoms to develop for many of these related diseases...enough symptoms to develop for the doctor to be able to determine what is wrong.

The fact that you've had so many tests come back negative only means that -- as of now, there isn't enough happening that will affect those results, and if the doctor can't see concrete evidence of disease, then he is left with "emotional problems".  That's tough, but it unfortunately is pretty common.

One thing you can be doing is keeping a log of any new symptoms, or when "old" symptoms re-occur.  Note things going on around you -- seasonal differences, or temperature/humidity differences, or other things like that.  You may find some pattern there (like, some allergies can cause weird things on your skin) that can help the doctor focus his attention on something other than "emotional problems".

I'll go back through the posts here and see if I can find the one I posted about "signs and symptoms of MS", and bump it to the first page. Look for that, and see if indeed any of the things you're experiencing match anything in that post.  Getting the right language to describe your symptoms might be helpful when you next see your doctor.

Good luck!

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 6/30/2006 3:24 PM (GMT -6)   
Hi bbeegun,

What has been ruled out thus far from the blood tests? There are quite a few other conditions and illnesses that can have similar symptoms to MS. Do keep a journal as Uppity suggested. It can be a very good tool to determine if there is any pattern to your symptoms and can help to remember what to tell the doctors. Best of luck with your MRIs, and please do come back and let us know what the findings are.

Kimber
 
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Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 7/1/2006 11:33 AM (GMT -6)   
Saturday noon
 
Hello Beebgun:
 
Have you checked with your stste MS society for a refferal to a MS specialist neurologist?
 
You deserve better luck than this.  John
 
p.s.---and four kids? Wow.   What are their ages? 

bbeegun
New Member


Date Joined Jun 2006
Total Posts : 2
   Posted 7/3/2006 3:43 PM (GMT -6)   
Thanks to all for your replies.n I have been recently keeping a daily journal of symptoms, severity,weather, excersize, stress at home so on and so on to see if there is a cycle or trend etc. I have noticed that when I get a flu or the weather first turns hot that I start to experience the symptoms. Starts with the heavy body,usless limbs, tingling numb skin, I have so little feeling on my skin everywhere now I kind of feel like I live in shell. All this last much longer then a flu, usually it sticks around well over a month or so. However the numb skin never leaves and with each episode more areas become numb. I regularly get a monthly migraine but when I am in one of my yucky times the migraine seems to affect me longer like blured vision or a blind spot. when I am feeling fine other wise the migraine comes and goes within 24 hr.
 
I have not heard anything from my Nerologist about the many blood test having any results, If there was anything note worthy he would have his nurse get ahold of me for an appointment. However, he did tell me that he was looking for everything and anything rare and not rare, and with the amount of viles I do believe him on that(giggles).
 
For a couple of years I just accepted that my herniated disc had lots to do with my situation so I didnt bother doing any research but this last episode realy bothered me because of new syptoms that could have no possibility of being cause by my back or any type of activity I was doing. I have looked into everything possible that was nerve related, female related, medication related,depression related, eviroment related, motherhood related, nothing else seems to match up as well as MS. Wether it is a fixable situation or not doesnt bother me at all, its the not know weather I should be less concerned or more concerned about myself. I would rather put all the time and engergy into caring for my kids and thier needs then I am with mine (you know what I mean) and also the guilt of not being able to do the homework with them the best I can or being able to sit in the kitchen making the best meals when I go through the yucks a couple times or more a year. But as my grandmother always said "this too shall pass" sooner or later.
 
Yep four kids!!!!!! 15,14,11,9, girl, boy, girl, girl. The teens are exhausting. Not that I was an angle.(giggles.)
 
Thanks again all its nice to get some feed back.!!!!!!!!!!!All be groovey!!!!!

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/3/2006 5:22 PM (GMT -6)   
Don't assume that, because you haven't heard from your neuro, that everything is fine. Call and ask. Reports get lost; nurses are asked to call and if they don't get you on the first attempt or two, they stop trying; reports get filed away and folks assume you've been notified, but nobody really has; reports get sent to the referring physician (like, did your family doctor refer you to the neuro?) and the patient doesn't get called...

in other words, call, and ASK. Find out what you need to do to learn about the results. And if indeed everything is "normal", then be ready to say to the doctor, "..well, OK then, if all this is normal, and I'm still experiencing these symptoms, where do we go from here??" Generally you should be given an appointment with the neuro to go over the tests, having him explain to you what he was looking for, and what he found..or didn't find.

Now, if you WERE referred to the neuro by another doctor, then call that other doctor and find out if HE has your test results...and do the same thing: make an appointment, and ask that he explain the results to you, and help you figure out where to go next.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

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