Wow...what to say? Ramblings

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DFC
Regular Member


Date Joined Apr 2006
Total Posts : 136
   Posted 7/2/2006 3:30 PM (GMT -6)   
 
 
  To everyone,
    
 I have a really difficult time speaking my mind now as I have been told how I am such a "know it all".  I don't by this site as you are all so open minded.I don't pretend to know it all but I do thirst for knowledge...it was the way I was brought up, no shame in imparting information or learning something new. This site has been a real learning experience for me. I definitely know that I don't want to take any of the medicines that many MS patients take. I am not afraid of needles as I was a gestational diabetic with my four babies and had to take insulin with one of them as diet could not control it alone, so needles are not the problem. However I had a serious allergic reaction to a sulfa drug and ended up in the hospital. I swore I would never go through that experience again if at all possible and therefore will not embark on the ABC meds of MS. This is with my neuro's support. Call me a coward, but I am holding out for stem cell and only hope I can get to that point without too much damage. I, like uppitycats, also do not believe in a higher power or in life after death. I do believe that one has to deal with the here and now and not worry about what tomorrow will bring.
 
Having said that I try to look for the good things in life. Like one of my sons coming this weekend and surprising me. Like not being totally incapacitated by this crazy disease...or having ALS or cancer. I note that we talk on this site about the bad things and so we should so we don't feel so all alone. WE all need to get info from those that are kind to give it or to give info to those seeking it.
 
Having said, that it might be nice to tell everyone about some good things that happened in your life recently. Did anyone in Canada get to see the Canada fireworks last night? For you in the U.S. , I hope you have a great 4th of July. Lets believe in our inner spiritual power however you perceive it because a positive attitude helps fight that MS demon. It is not an exacting disease and medicine is not an exacting science. So follow your own heart and what medical approach that you feel will work for you. Don't be afraid to change it up but don't expect to find any quick diagnosis or cures. It is a process...but as uppitycats says you want to be your own advocate and treat your symptoms and try not to let the doctor mess with your mind. You will eventually arrive at the right diagnosis.
 
Okay I have rambled enough...hope you all have a nice holiday tongue
 
Dale

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/2/2006 3:50 PM (GMT -6)   
I appreciate your "learning" from me, but note that I DO support taking one of the meds to slow the course of this disease, taking at least a small bit of ocntrol over my illness. And they've definitely worked for me.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 7/2/2006 7:39 PM (GMT -6)   

Sunday p.m.

Dale : Happy Canada Day!!!

Living just outside of Detroit MI, and hence Windsor ONT, just a 20 minute ride away, I say, OH CANADA!!!

John yeah

 


DFC
Regular Member


Date Joined Apr 2006
Total Posts : 136
   Posted 7/2/2006 9:34 PM (GMT -6)   
Thanks John and the same to you on Independence Day. Uppitycats...I know that you support the meds and that is okay but it is not for me. I do not know that it can be ever proven that it slows the course as we don't know the speed or route of the disease anyway. It is so variable in different people and even variable in the same person from day to day. I am not in denial but I think a positive mental attitude and not letting stress or depression steal what quality of life that we deserve. Those two symptoms as well fighting the fatigue and getting as much down time as possible is important. Trying not to overly dwell on what our disease may bring us tomorrow and trying to stay proactive is a very difficult balancing act. But we try to live our life without fear of what tomorrow will bring as that stress is so devastating. I agree that jumping from one doctor to another does nothing but make the road harder. Stick with one doctor and be your own advocate. In New Brunswick we have no choice as we have a hard time getting a doctor (scarce as hens' teeth) letting alone doctor shopping and many of them do not want to deal with chronic illnesses. Being referred to a specialist can take months so it is best that we try to understand as well as we can our own variety of MS and do what works for us. Exercise no matter what type or intensity helps me greatly. The love of my 4 children and my 3 pets helps greatly. Happy Independence Day!!! Hope you have great weather on Tuesday, July 4th Having said that did anyone have a good thing happento them lately. Do share as it can be uplifting for all of us . Dale
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