sharp pains in head--update

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Tiphanie
Regular Member


Date Joined May 2006
Total Posts : 94
   Posted 7/4/2006 9:26 PM (GMT -6)   
Hi everyone.  I hope you all had a wonderful and safe 4th.
 
I have been getting very sharp pains that shoot through my head.  Not like a head ache but sharp and shooting from a spot that is real intense then lightens as it travels.  The spot is not always in the same spot but mainly on the back of my head and along the left side.  So now to my question:  When I asked my doctor about this he said that it could be a new lesion starting.  This is a little worrisome because lately these pains are several time a day and in 5 or 6 different spots.  So would that mean that if he is correct that I am getting several lesions?  Does anyone else experience this?  Also  it starts suddenly and intense right from the start and last from seconds to minutes.  They cause me to have to stop what ever I am doing and I can't seem to understrand anything going on around me until they stop.  Seems to coincide with they hands not functioning properly a lot of the times.
 
Thank you for your help,
Tiphanie

Post Edited (missinglife) : 7/7/2006 8:57:32 AM (GMT-6)


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 7/5/2006 12:49 AM (GMT -6)   
Hi Tiphanie,
Before I was ever diagnosed with MS I had very sharp (take me to the ground) pain in and around my temples that only lasted a very brief time (thank goodness)!  My neuro told me they were icepick migraines. That name describes them.....feels like an icepick stabbing me.
 
Maybe this is what you have?  Or maybe not, just thought I'd put my 2 cents in.  Take care!  Sorry you are having it whatever it is!
Michelle ><>
 Smile, Smile, Smile!


uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 7/5/2006 4:53 AM (GMT -6)   

Are you certain your doctor told you the pains were "new lesions"?  Generally lesions by themselves don't cause pain.  Their destruction of the nerve path might cause pain, but it's not like the lesion is a "sore", and so "painful".  I'd probably be back asking the doctor about that.

Shelley mentioned icepick headaches, a form of migraine. That seems much more likely.

At any rate, if indeed you're experiencing that several times a day, and with the severity you describe, you should be back to your doctor and follow-up with it.  It's not a typical MS symptom.

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 7/5/2006 9:21 AM (GMT -6)   
Hey Tiphanie
 
Funny u should post this since i just had an eye appointment last thurs that explained some things to me...and may help u as well. I've felt i may be having optic neuritis because i've had several of the same symptoms, but one very strange difference began happening in the last month or so. My eye doc...a new one...examined me and nearly squeezed my eyeball flat and concluded i was having optic migraines. She did find a tiny tear in my retina, but of no real significance. The new and strange symptom i was having was a shooting and SHARP, HARD pain starting in the back of my head and running towards the front on the outside of my head...on the same side of my head as i was having the pain in my eye. Shortly thereafter my eye will begin to hurt unbelievably bad and will hurt for several days...most times about 3-4 days at a time. In fact i'm getting over ( i HOPE) one this morn. I experience blurry vision off and on during that time as well. The thing is tho, i don't always have that pain before the eyeball pain. I mean it only just started to happen a few weeks or so ago, so i dont' have a concrete pattern to rely on yet, but just so u know. that COULD be the prob. My new doc didn't feel i was having optic neuritis at all. She felt it was all due to migraines in my eyeball. Funny, huh? I never knew u could have that. Also, as Michelle said, when they start, i STOP! They completely dictate u'r level of function for the time they are happening. Mine only last a few seconds to a min or so, but i do stop what i'm doing and do experience a level of disorientation. Once they're gone and before the eye pain begins, i'm ok. Another thing to know....when all my funky symptoms began otherwise (balance and other such things we all talk about on here) my neuro thought of basilar migraines. They are migraines that sometimes don't produce pain, but do produce symptoms much like we all have or similar to a stroke. Maybe u could be experiencing some sort of migraine w/o pain? Just throwing this out to offer suggestions. I hope it all helps somehow. I hope u get to the bottom of this and it's NOT more lesions. Know i'm thinking of u Tiphanie and hope u'r feeling much better these days.
 
rhonda

Tiphanie
Regular Member


Date Joined May 2006
Total Posts : 94
   Posted 7/7/2006 9:08 AM (GMT -6)   
Thank you evryone for your input. I went to my neuro yesterday and because I am having so many of these pains he decided to do another MRI. I had this done yesterday and he called me this morning and wants me to come in this morning to duscuss the results. I asked him why he couldn't just dicuss it over the phone and he said that he needed to be able to take the time to explain things and also do another exam of my motor skills like at our first appointment. Now I am soooo worried. Why can't he just tell me instead of making me worry so much. My appointment is in two hours and I am going to drive myself crazy with wondering and what if's.
I will let you you what he says when I get back.
Tiphanie

rhondab
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Date Joined Mar 2006
Total Posts : 2146
   Posted 7/7/2006 9:59 AM (GMT -6)   
Hey Tiphanie

I'll be praying for u and hoping u'r appt goes well and with good news. I know u'r worried and scared and with all u've been thru lately who could blame u. Try to relax if possible and make it thru til that time. I'll be looking forward to hearing about it.

rhonda

Tiphanie
Regular Member


Date Joined May 2006
Total Posts : 94
   Posted 7/7/2006 10:16 AM (GMT -6)   
Thank you Rhonda. I am leaving in a few minutes and one of my dearest friends is going to come with me to try and calm my nerves. She is also a nurse so maybe the words and explanations he says that I don't always completely understand she can explain better.
Thank you
Tiphanie

Kimber
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Date Joined Jun 2005
Total Posts : 1852
   Posted 7/7/2006 1:15 PM (GMT -6)   
Hi Tiphanie,

It's wonderful that your friend volunteered to go with you. Please let us know what you find out, my thoughts and best wishes are with you today.

Kimber
 
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shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 7/7/2006 2:40 PM (GMT -6)   
Tiphanie,
I hope your appt. goes well and you have some closure about all that has been going on health wise! :)
Michelle ><>
 Smile, Smile, Smile!


Tiphanie
Regular Member


Date Joined May 2006
Total Posts : 94
   Posted 7/7/2006 4:39 PM (GMT -6)   
I really don't know how to take the news I got today.
My neuro is not sure now that this is MS. He is not willing to take that Dx away at this point but now believes I have something called Paraneoplastic Neurological Disorder. He said that this can cause alot of the same Sx as MS and is assoiciated with cancer somewhere else in the body. I was uaware that a whole body MRI was being done yesterday but he said that they scanned my entire body and I have what appears to be masses in my stomach, breast and and right kidney. He also thinks that at least one but maybe two of the lesions in my brain are tumors.
Okay now where to go from here and am I going to die were the next things I asked. He responded with alot more test need to be done and Bx. He said that he has been in consultation with another doctor and that they needed to get some more blood and send it to a more specialized lab and that he wants me to see a doctor in Minnesota who specializes in Paraneoplastic Neurological disorders but wants to cntact him first and review what they have found. He asked if it would be okay if he gave this doctor copies of all the tests so far and told me to get ready to leave if that is what I choose to do. In answer to my question if I am going to die he said that this is a rare condition but very serious and that if I don't get treatment that yes for sure I will. He also said that even with treatment and if these masses are truely cancer that as far advanced that they are the prognosis does not look good but thay will do all the can.
He is still going to treat me for MS until he without a doubt feels that it is not MS but MS will no longer be the main focus. I hoped that I didn't have MS but I think this is going to be much worse. I cannot even tell you the shock I am in. I am scared to death and now in just a few short hours I have to tell my husband and see if he will even let me go to Minnesota. I don't know if I even want to go. I don't want to die but I have seen what cancer treatment can do to a person and I think it would just be better to live my life until I am called home than to spend the rest of my life getting treatment that may or may not work away from my family and be so sick.
Thank you again for letting me vent and cry on your shoulders. I hope even if this turns out not to be MS that you will still let me post until my time is up.
Tiphanie

photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 7/7/2006 5:19 PM (GMT -6)   

Tiphanie,

I am so sorry you are going through this.  sad   I really don't know what else to say, but that I am thinking about you and wish for you the best possible outcome.

Please keep posting to let us know how you are doing.  People really care about you on this forum.   

Take Care,

Shar

<<<HUGS>>>

Post Edited (photogirl1358) : 7/7/2006 5:29:53 PM (GMT-6)


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 7/7/2006 6:03 PM (GMT -6)   
Hey Sweet Tiphanie

I'm so sorry to hear of the possibilities. U know without any doubt whatsoever that u are on the top of my prayer list and heavily on my heart. I can't imagine u'r shock or loss as to what to do right now. Take it one minute at a time and fight with all u have friend. Go to Minnesota and get all the help u can get and take u'r family with u. U'll need them and they'll need u. The long term treatment question is a very hard one to address so early on in u'r knowledge of this possibility and certainly one u have to make with u'r family, but u'r right, quality of life can be so valuable even when compared to quantity. I know u'll do great tho and i know u'll come thru all this and be so strong. U hold on and let the doc's do all they can and know for certain that if u have any needs at all we are all here to support and help u. YES...please do continue to post whether it's MS or not...u don't have to have the 'right' disease to have the support everyone here needs. Take care my friend and know u are not alone in this struggle.

rhonda

Tiphanie
Regular Member


Date Joined May 2006
Total Posts : 94
   Posted 7/7/2006 7:59 PM (GMT -6)   
I told my husband who broke down and now is very angry. Not with me but its just that he is scared for me but also the kids and himself. I told him I did not think I should go to Minnesota and he said it is not an option that I need to at least go and see what the doctor there says and what treatment options he reccommends. He called my doctor so he could hear exactly what the doctor says. I swear he lost all color while he was on the phone he looked devastated. This is all so surreal right now. I feel as though I am floating and listening but it's just a dream not real not happening not to me to my kids not to my husband. He said that the doctor wants us to go next week and meet this doctor in Minnesota but has not heard from this doctor yet to see if he wants to take me and when he can if he does. My husband called his brother to see if they can take care of our kids but just said we needed to visit a doctor but didn't tell him why. He said they would so at least at this point I know my kids will be taken care of and be safe. I am sorry if I am talking in circles I am just trying to gether it all. How do you deal with news like this and not want to lay down and die. I look at my kids tonight and my heart breaks for them. I have not told them anything and plan not to until I find out more on my prognosis. I am very greatful to have a place to go and let it all out and people that know what it is like to be sick and scared with so many uncertainties as to what comes next. Thank you for being here.
Tiphanie

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 7/7/2006 8:22 PM (GMT -6)   
O Tiphanie. My heart breaks for u as well. U have a very dear husband and i'm so glad for that. Hold on tight friend. U'r gonna make it. This is so devestating to u and i know u'r head is spinning, but we're all holding u'r hand in spirit and we'll stay right here. Please let us all know how everything goes. Stay strong thru prayer and u'r family friend.

rhonda

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 7/7/2006 9:27 PM (GMT -6)   
Tiphanie,
What a day you've had.  My heart goes out to you and your family.  I pray you will find out the exact cause and will be able to have the proper treatment.  Please continue to update us when you want or feel you need to!  HUGS to you!
Michelle ><>
 Smile, Smile, Smile!


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/8/2006 5:34 AM (GMT -6)   
Oh, Tiphanie, I am so very sorry.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 7/8/2006 5:38 AM (GMT -6)   
Sounds like they're sending you to Mayo Clinic?  I did a google search and it looks like Mayo is the premier facility to diagnose and treat the problem.  Good luck to you. I think your husband is righ - -you need to at least get to the clinic and see what the doctors say after testing you further.

...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 7/8/2006 11:34 AM (GMT -6)   
Tiphanie,

I can't imagine what you must be going through and I'm very sorry. I agree with your husband that you should at least hear what the doctor in Minnesota has to say. My heart goes out to you and your family and please keep us updated.

Kimber
 
Allow Healing Well to continue to help others, clink link for details

Tiphanie
Regular Member


Date Joined May 2006
Total Posts : 94
   Posted 7/8/2006 4:05 PM (GMT -6)   
This is just a fast update. Emotionally I am doing a little better today and my doctor was able to get a hold of the Minnesota doctor. uppity you are right he does want me to go to the Mayo clinic and they can get me in on Wednesday for a consultation and if I chose to do the reccommended Tx then I will stay but my husband will have to come back. I am not sure yet until I hear what they have to say but I will at least go and listen.
Shellypoo in answer to your question last night I asked why they decided to do a full body scan and he said it was not full body but rather major organs. He made this decision while I was in the MRI because the radiologist called him because the two lesions that he now thinks are tumors have grown a significant amount and this concerned him. He knew that I had to be sedated to do MRI's so rather than have me have to go back again and do another he felt it was best to proceed at that time and look at major organs and breast because of this growth and the family history of colon, breast and brain cancer. I of course wish I would have known but under the circumstances I am glad he made this decision because I don't know if I would have even went back if I knew because of fear of what I would find out. I want to know what is wrong with me but I also fear the knowing as well because I give up like what I have already started doing. What I keep thinking is I owe it to my kids and husband to at least find out all my options and consider them before throwing in the towel and calling it quits.
So we fly out Monday morning and will meet with the clinic on Wednesday and then go from there. Please pray for us and the kids. I will thank you now for all the support and prayers.
Thank you ,
Tiphanie

shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 7/8/2006 7:35 PM (GMT -6)   
Tiphanie,
I'm glad your doc made that call on the MRI, it's good you didn't have to go back!  You will be in my thoughts and prayers next week.  I hope they will tell you everything you need to know.  Take good care!!  HUGS!!
Michelle ><>
 Smile, Smile, Smile!


my5cats
Regular Member


Date Joined Dec 2005
Total Posts : 67
   Posted 7/9/2006 10:29 AM (GMT -6)   

My word!  What a situation you are in.  Nothing is untreatable these days though and you have prayers from everyone here and I'm sure you have loads from family and other freinds to boost your strength.  Give it up to God and He will get you through it.  Just know that you have a good doctor to have gone the extra step in your dx.  As much as it is scary, it is better when they are willing to look beyond their own dx for something new.  Mayo is the best, so you will be in good hands there.

All my prayers to you!

Gayle

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