Post Edited (Papa_Bear) : 7/22/2006 7:01:24 PM (GMT-6)
Goodness I'm sorry you are having problems. Mike had similar problems to what you are going through now and once we convinced him to use the cane it really did make a difference for him. The longer he was on his feet the worse things got and his feet turned a really deep shade of red and he experienced that hot feeling too that you are describing. Please be careful in the tub too and check the temp with the parts of your body that aren't effected. It can be very easy to scald yourself and not realize it. I really do hope it gets better for you on their own, but if not your doc may be able to recommend some meds to try. Thanks for checking in, it's always great to hear from you!
A cane can help a lot with mobility issues. If you do need to start using one, do take the time to learn (from a physical therapist) how to use it properly -- which side you should have it on, how to step up and down steps, that sort of thing. One session with a good PT is likely all you'll need, for now.
As for the heat sensitivity -- I can speak from painful experience how careful you need to be! I still have scars on my leg from when I forgot that I was leaning agains a hot oven, while stir-frying something on the oven top. Ouch! So take care!
Hey, I'm real good at diagnosing over the computer! Just ask my detractors!!
Serious, now: I think it's always a good idea, particularly when you're relatively newly diagnosed, to call your doctor's office and at least report new symptoms, or a particularly troublesome flare-up of "old" symptoms. He may or may not want to have you come in...but at least it should be noted in your records that you're having a problem.
Over time, you'll learn how MS is specifically affecting you, and what external influences will specifically affect you. Like - -it's way hot today, and I had to be out shopping for groceries. A 20 minute ride to the grocery store -- and 20 minutes back -- and I've got this awful back and shoulder spasm. Now I know it's related to the MS, know it's related to being overheated, and it'll pass. In the meantime, it's real painful, and annoying. Should I call my doctor?
Well..if I were newly diagnosed, and this was the first time, or first few times it happened -- I'd likely call, and report it. Now I just grouse about it, wince when I have to move, and hope it'll go away.
As for the vision thing -- sometimes that'll continue to clear up, over a period of months. But unfortunately sometimes it won't. Or, like me -- when I get overheated, and/or overtired, and/or..sometimes, "just because", my vision will get blurry, and I'll describe it as "my eyes have gone wonky". Generally it'll clear up, but sometimes it takes several days, or a week. Again, if I were newly diagnosed, I'd be calling. But now, I just sort of let it ride.